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Conditions

Coeliac Disease

Coeliac disease affects around 1 in 100 people in the UK. The disease is caused by intolerance to gluten which can be found in wheat, rye and barley and affects the bowel. The immune system, of sufferers, mistakenly attacks the gluten in the digestive system, presuming it is harmful, this causes symptoms of diarrhoea, weight loss and stomach pain. It can affect people of any age, although it is most common in 40 to 50 year olds.

In babies, further symptoms can be found; a swollen stomach, bulky pale poo, and failure to grow and gain weight. In children, watch out for poor growth, oily poo that is difficult to flush away, and tiredness and breathlessness caused by anaemia. Gluten intolerance damages the gut, which stops vitamins and minerals, like iron, from being absorbed, which triggers anaemia.

If you suspect your child may have Coeliac disease see a GP, do not attempt to cut out gluten without a proper diagnosis. This is done through a blood test and, if needed, a gut biopsy.

Although there is no cure for Coeliac disease, the symptoms can be managed through a strict gluten-free diet. Foods to avoid are: bread, pasta, cake and biscuits, crackers, cereals, pies and pastries, oats, gravy and sauces. However, gluten-free bread, pasta and other products are readily available at supermarkets, so keeping control is fairly easy.

If a gluten-free diet is not maintained some quite serious complications can occur; such as Osteoporosis (brittle bones disease), malnutrition, other intolerances like Lactose (milk) intolerance could develop and an increased risk of bowel cancer.

For more information about Coeliac Disease and gluten-free diet and recipe advice, see:
Coeliac UK, Glutafin, Trufree and Dietary Specials

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I have just been looking at your website and I am shocked by the information here. Coeliac disease is NOT an intolerance to Gluten it's an autoimmune condition. This is where the immune system, the body’s defence against infection mistakenly attacks healthy tissue. It is far more serious than give it credit. My brothers diagnosis came too late for him and almost too late for me. The majority of G.P.'s know far too little about it, the NHS is not educating it's staff on the disease. Research is tailored to specific areas eg. osteoporosis, however what this disease does to the human body can be far more devastating than people realise. My brother had no real symptoms of coeliac disease neither did I. But the cancer that claimed his life and almost mine would never have developed if we had known and stayed on a Gluten free diet. There are more people undiagnosed than diagnosed. The ones who have represent a tiny fraction of the people who have it.





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Thumbs up, Clive, for putting your correction in. Totally agree with your comment and felt angered when I read "intolerance". Wheat/gluten intolerance does exist, and the symptoms are similar, but I am so tired of my sons condition being misrepresented as an allergy.

Hi my daughter is nearly 2 and ever since i took her off formula onto cows milk she has seemed to have this problem. She has been diagnosed with chronic constipation, sometimes she wont go for a week and when she does i have to help her with it. I have tried everything and now she has movicol. She isnt as constipated anymore but her poo is still small hard balls and looks almost white. i demanded a blood test last week which has come bk negative for milk allergy but has shown level 3 platelet antibodies (i was told basically there is an allergy going on there) and also low iron. I'm at my wits end shes always tired shes so pale im thinking it could be CD and if so does anybody know if she would have to have a biopsy as shes so young?





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Hello. Doc would do a blood test first to test for antibodies the body makes to fight gluten in people with cd If that was positive then perhaps a biopsy but I understand that's not always done in young children to confirm diagnosis. I would demand blood test for cd. Speak with coeliac uk also they might be able to help x

Hello. Doc would do a blood test first to test for antibodies the body makes to fight gluten in people with cd If that was positive then perhaps a biopsy but I understand that's not always done in young children to confirm diagnosis. I would demand blood test for cd. Speak with coeliac uk also they might be able to help x

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Hi I'm Evie and for the last 2-7years I have been showing symptoms of either Crohn's or coliac disease and I am not diagnosed with anyproblems but my father suffers from extreme Crohn's fare up every few weeks or when he's stressed I have began me subtracting and suffer cramping with stomach muscles instead of womb muscles does this meN I have a bowel issue or am I just paranoid BTW I am 14





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Im 42 have coeliac since age 4 and have had crohns since 2011 my consultants always tell me dont let anyone I know get fobbed off with ibs when u could have the above my daughter is 11 and im now having tests for her as shes had alot of pain





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My son is 3 years old. I have CD and he often vomits/suffers with tummy pain and has loose bowel movements. He is also a little hyeractive and often gets itchy rashes on his skin. I had him tested (blood test) for CD and it came back negative. We were then discharged from the hospital (who did the tests). If it isn't CD - what can it be?





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Hi sounds more like an allergy. Try dairy free for a week and you will see if there is a difference. My son was like that, he was diagnosed allergic to dairy at 9 months old. Hope this helps Kaz

It could still be CD, some conservative doctors would wait till there is actual bowel damage before even considering the trauma that the kid (and everyone) has to go through with being fobbed off and misery due to having to eat all the bad foods to even havie it show up on a test... You wouldn't wait for a heart attack if you had high BP/Cholerterol diagnosed; keep on at those docs and get more bloods done... Or if you are sick of all the quackery, jst get him gluten free, keep a food diary and show the evidence to the doctors. Also try to be corn free as well?

My son was tested for coeliac ! He is 4 . It was negative but his iga levels are very low which makes the test for coeliac false! As children with low iga levels are inclined to be coeliac.. Makes no sense to me! I know he suffers loose poo about 10 times a day .. It is interfering with his school life.. What do I do??





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go back to the doctor and demand a biopsy its not nice but its the only way to know for sure, my son was ill for 2 years before being diagnosed and I had to fight for that operation, he lost weight had a massive stomach, didn't grow and had severe constipation or really loose poo's he would swing from one to the other and became very ill

My son is 11 and has been chronically constipated since birth (it took him 72 hours to pass meconium). We have had a horrendous time, 1 consultant basically called me a lazy parent because he had a nappy on aged 2 and a half, he was impacted and I had taken him to A&E. He has been off dairy then told to put him back on it as he was calcium deficiant, on high fibre then told to reduce it as it was causing to much bulk, had at least 4 oral abscesses due to weak tooth enamel(he was taking 40 mls of lactulose a day at 4 months old!!!!!) he has had picosulphate, movicol, lactulose and exlax. nothing seems to be working, at least once a fortnight he has "overflow" issues and soils himself, bedding, underwear etc...I am at my wits end! Doctors constantly tell me its a dietary issue but do not seem to grasp that this has been an issue since birth so how can it possibly be dietary or emotional??? How do I get people to listen to me?





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Did he have the movicol twice a day regularly for a week or so. Needs to be taken regularly with lots of water. I have 2 sachets morning and night and keep well and mostly empty on that. The key is regular-not just when he's uncomfortable. Might need to be on it for life. Good luck.

Hi I'm 15, I get incredibly painful stabbing stomach pains after eating foods such as pasta or too many fatty foods, I will also find that every month I will get diarrhoea and I also feel very sick.. After having too many days off school my mum took me to the doctors where they decided to do a blood test for celiac but my doctor thought I could just have a bit of IBS, it came out negative so my mum stopped me going to the doctors which was really frustrating. As I have only had this the past few years I have tried to just cope with it but then I had a friend who is gluten intolerant that told me a blood test for celiac 9 times out of 10 is wrong and not accurate. The pains are getting gradually worse and I would really like to have an answer as I am a keen sportswoman and pasta and foods with gluten is a large part of my diet.. Is it likely I do have celiac or could there be something else wrong?





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This sounds very similar to my experiences before being diagnosed with Coeliac Disease. I was so frustrated with continuously feeling ill despite a negative blood test, that I kept going back to the doctors until they did more and went further with a biopsy. After 2 years of feeling much like you do, I was diagnosed with Coeliac Disease, and being quite sporty, was really pleased to find that I could eat lots of gluten free pasta and other foods similar to my previous diet, but free from gluten. Don't give up, if you want to feel well, go to the doctors without your mum. Sometimes we've got to take control and push ahead to get the answer we want. Wishing you all the Best.

My doctor is testing me for CD....if the results show positive she says the next step will be colonoscopy. Reading this site and other information I thought that Endoscopy would be the form of diagnosis? Please can I have advice on the most appropriate course of action Thank You





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I have had colonscopy after i was dignoised with crohns disease but i have coeliac disease and had it since age 4 im now 42 but i found out i had crohns disease 3 years ago you should ask to be tested for crohns and coeliax as they both have same side effects aswell as ibs dont get fobed off make it clear what you want as you know your body and pain and good luck

My daughter has just been dishcharged from hospital with movicol to treat an impacted bowel, they have told me to give her weetabix, brown bread etc. I am now concerned that she could have C.D am I not aggrivating the problem?, She is 4 years old has lost weight and regularly has accidents. We have an appointment on thursday, I have spoken to them this morning and been told they will perform the test, I am angry they didn't suggest it.





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If your daughter has CD she will need to eat lots of gluten to ensure the tests are accurate. It is awful eating gluten while you are waiting for tests etc. (I know, I've been there). Try to get your doctors to do the tests quickly to reduce the misery to the shortest possible time.





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It looks like no one else has asked this question, so please fill in the rest of your details below.





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