Conditions

Fibromyalgia

Fibromyalgia

Fibromyalgia (sometimes referred to as FM) is a condition which causes a throbbing, aching pain in muscles and tendons anywhere in the body. It can affect anyone (the NHS estimate that between 2 and 4.5 per cent of people in the UK suffer) and it can strike at any age, including during childhood. Some people with fibromyalgia also experience a heightened sense of physical sensitivity so that the slightest contact is uncomfortable, and find that bright lights and tiredness make it worse.

It isn’t known exactly what causes fibromyalgia, but scientists believe it may be associated with problems sleeping. As well as persistent muscle pain (pain that has lasted more than three months) fibromyalgia in kids can start with fluey symptoms, and make them very restless while they sleep. Kids may also be physically twitchy or restless, have difficulty concentrating properly and suffer from headaches, diarrhoea and insomnia. They may also feel that their hands and feet are swollen, even though they appear normal to look at. Alongside these symptoms there’s a general sense of being very tired and run down, which is often worse in the morning.

Since a lot of these symptoms are quite common in all kids from time to time, it’s important to visit your doctor for a proper diagnosis. This will involve your doctor pressing gently on those specific parts of the body which, for the fibromyalgia sufferer, will be particularly tender or painful.

Fibromyalgia is an awkward and uncomfortable condition and the symptoms can lower anyone’s quality of life. As well as the physical aspects, it may cause kids to feel upset and depressed. At present there is no complete cure for it, but there are treatments which will lessen its impact and help kids live with the disease. These include exercises, heated pool treatment, painkillers and antidepressants. The key though, to helping kids with the condition, is ensuring they get plenty of sleep at night, making sure they take exercise (even though this will hurt at first) and providing a supportive emotional environment. These, combined with prescribed medication, will help your child live a completely normal life with fibromyalgia.

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Hi im 47 I have been back and forth to my gp now since september 2013 with chronic pain alover my body and just feel constantly tired ive had numerous blood tests and xrays but nothing is showing I mentioned to my gp could I have fibromyalgia but was told There's no such condition .is this true or am I being fobbed off canssomeone please help





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I know how everybody is feeling. I am 55 now. I was transfused in 1982. From that point on my life changed for the worse, but I am pushing on. I got hep c, a few years back I went through the interferon treatment and the hep c is gone. That treatment was a nightmare on its own. I have also been suffering with chronic pain since the transfusion, this of course is fibromyalgia. I am still deeply disappointed in the Australian Red Cross for never following up or even admitting they destroyed my life basically. I am on Prednisone now it helps. I also find that i don't like cold weather and I try to exercise





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I am 20 and i have had fibromalgia for the last two years. i am on medication prescribed by an orthopedic consultant. I have had physio etc and it works at the time but when im not getting it im in a lot of pain. I was wondering if steriod injections are an option as i have alot of pain in my back daily. i can take up to 6 painkillers a day?





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I know you posted a year ago but i have FM also have had it for over 10 yrs you need Lyrica prescribed by a rhuematologist and only take nurefen (ibuprofen) try light swimming in a heated pool you will be surprised!

I am 50 and have had FM for a few years now. I am on strong pain relief meds but still in bad pain. I have been to pain clinic and they have been helpful. I suffer from tirdness all the time and the hardest point is that people say you look well but inside you are falling to pieces, with the pain When I try to walk its as though I am walking on broken glass I have the pain all over my body. Eventually I believe that there wil be a cure, but at the moment all they can do is try to help with the symptoms.

i am 45 was told i had fm when i was 68 ive been in & out of hospital due to flare ups then cannot move i also have hypomobility the pain & tiredness is bad but people do not understand as u look normal . im lucky i have a good doctor





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I have headaches constantly and it makes it worse when swim and put my head under the water. I recently had my braces tightened and this is making it worse but I had had symptoms before that. I haven't suffered from any of the other symptoms except the trouble sleeping but I have had that nearly all my life. A symptom I have also got is my head starts 2 twitch a bit and it makes me blink a bit more than usually . I am 13 years old and It started a few weeks ago. I just need some help. :)





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I basically need someone to help with the diagnosis of my 6 yr old daughter. As a sufferer myself its all too clear to me that my daughter seems to have the same symptoms which have been for about the past two years. She has the typical muscle aches in various parts of the body that flare up as and when and last for various periods. She suffers with fatigue. She has very heightened senses. And she also suffers with muscle aches for a few days after doing an activity she is not used to doing - which can be something as simple as raising a teapot during an activity in class. She was referred to my local hospital by my GP. The consultant at the hospital felt that she was not experienced enough with Fibromyalgia and referred my daughter to Great Ormond Street where she has been an outpatient for the past year. The appointments are few and far between due to their heavy schedule and basically we get seen every 6 months. They have basically said to me in not so many words that all because i have the condition does not mean she has! As far as i'm concerned, i see it that as i do have the condition then i'm able to spot it far more than most! Anyway, they've done their initial usual tests. Full bloods of which i've yet to receive the results. They've confirmed she has hypermobility like myself. They've confirmed that all her muscles are extremely weak. Upon examination they discovered that her left knee was very swollen and told me she had fluid on her knee probably caused my arthritis so she was sent for a scan. As i expected, nothing showed. I knew only too well that the swelling is caused by fibromyalgia. They've come to the conclusion that due to her muscle weakness she needs to come to the hospital for a two week intensive physiotherapy course! I'm extremely concerned for many reasons. Mainly too much exercise could be extremely detremental to her. Also, as a sufferer myself its not so easy just to say we can come and stay in London for two weeks. I'm a single parent and also have a 16 ur old currently studying her GCSE's. I'm concerned that physiotherapy is the worst thing for her. The reason i went to my GP initially was because my daughter's school requested it to enable her to have a diagnosis so that when she has time off due to her pain or wen she cant complete a full session of p.e. they can look at her file and have a good enough reason. They have threatened me with Welfare due to the time off she's had. Myself and my daughter were involved in a very traumatic experience and i believe both our FM stems from that. I have been a sufferer of M.E. and have had many bouts of glandular fever which i know can be triggers. But my physical pain became worse after an incident when i was pregnant with my daughter. At 5 weeks pregnant i was in incredible pain in my stomach. I was scanned and as the egg was position correctly in my womb i was told to go away and take pain killers. The pain continued and was so worse there was never a minute without it and no comfortable position. I was scanned again at 7 weeks and told the same thing. At 9 weeks pregnant the pain was so bad i lost consciousness. My blood pressure and heart rate fell through the floor. I was rushed into A&E where it was discovered that i had had a twin growing in my fallopian tube which had ruptured leading to severe blood loss. I was immediately operated on, cleaned up and given a blood transfusion and spent the next week in hospital. I was told that due to the trauma i would probably lose the other baby in the womb. However, i didnt and that is my daughter to which i refer. Sorry to waffle on but felt it necessary you knew all the facts. If you are unable to help with her diagnosis, please steer me in the right direction. I am not in a position to pay privately but have to go via NHS which doesnt seem to be helping me right now. Many thanks





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Content supplied by NHS Choices

Fibromyalgia is a chronic (long-term) condition that causes pain all over the body.  Read More »