Conditions

Lupus

Lupus - butterfly rash

Lupus takes it name from the Latin word for wolf, but don’t worry – it won’t turn your child into a wild animal!

This is the name given to a condition that causes swelling, aching joints, headaches, skin rashes and generally feeling very tired and rundown. Around one in 3,000 people in the UK suffer from Lupus, which tends to affect girls more than boys, particularly kids aged 14 or over. Lupus is a result of an autoimmune disorder, which means your body mistakes something normal and natural for something potentially dangerous, and starts attacking itself, so the disease cannot be caught from someone who has it.

As well as feeling tired and suffering from painful swelling around the joints, some people suffering from Lupus also experience hair loss, mouth ulcers, and can feel sensitive to sunlight. In the worst cases, Lupus can also affect the kidneys and may cause blood to appear in the urine, but it is rare that the condition is life-threatening.

Scientists still don’t know precisely what causes Lupus, but the chance of contracting it rises to one in 40 if someone else in the family has it too. The condition cannot be cured and there are times when they will be worse than others, but there are lots of effective treatments to minimise the symptoms.

If a doctor diagnoses Lupus, your child will need regular blood and urine tests to make sure the kidneys are working properly. Painkillers and steroids can reduce the discomfort and tiredness that comes with the condition, and drugs called immunosuppressants can stop the body from attacking itself.

Once the condition is diagnosed and treatment given, most people with Lupus are able to lead completely normal, active lives, though kids should stay out of bright, warm sunlight, which can make the condition worse, and always use a strong sun block. The good news is that for lots of sufferers, Lupus is completely manageable, and by middle-age there is a chance it’ll stop be a being a serious problem and the treatment can end.

What the Men in White Coats Say

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Hello, i am a 14 year old girl and suffer from an eating disorder since i was 12, i get very tired a lot of the time but can then go very hyperactive but will be tired again after. Although i have an eating disorder i am slightly overweight and have been dieting/doing as much excersize as possible but i am unable after a short period as i get tired and my asthma also causes me trouble. Therefore as much as i might diet i cannot seem to actually shift away much weight as i would like. I have painful and clicky hips but my gp said that i should be fine i have results of an exray on its way. After looking up ways to loose weight on a daily bases i have ran out of ways to loose weight whilst being healthy and as you can probably imagine with all my problems i am finding it really hard. Please could you get back with help as soon as possible.?





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My daughter has had blood in her urine now for two months also protien and leukocytes, i am worried sick she has no infection has had several courses of antibiotics still the same she is always yawning has her hyper bursts then is exausted, always complaining of a ache or pain in her tummy , back or neck , doctors are just saying dont worry she is fine! they haven't even bothered doing any blood tests.





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I am a 17 year old female and I have worries of this condition. I found out about it while looking at a page about about nails and one of the things it said was if the skin around your nails becomes red and itchy from stress and other things which I do get and have never thought about, to I went on to the boots medical page and read the symptoms terrifyingly Match things I have and have never linked. I have never been tested for anything like this so I was wondering if it was time to see my doctor. *muscle aches and pains: Quite often *Permanent rash over cheeks: It's not as bad as some pictures but very comparable its like thick red leather over cheeks and redness over nose I've tried scrubbing it off, every moisturizer and make up doesn't cover it only makes it look more flaky even in pictures when I was a baby you can see the raw redness on my cheeks *Extreme fatigue and weakness: Very often I just feel like I cant move out even if i've had 12 hours good sleep a while later I cant move or keep my eyes open while my mind is awake my body's fast asleep * Increased risk of miscarriage: Doesn't apply too young Rashes from sunlight/UV light: Since I was a baby the doctor always said it was eczema Flu-like symptoms and/or night sweats: Not so much night sweets but flu like symptoms my attendance in school has always been very low due to feeling ill Weight gain or loss Hard to tell I've been very thin and very fat my apatite goes for long periods of time Inflammation of the tissues covering internal organs with associated chest and/or abdominal pain: Yes severer pain on both sides of my chest left side feels like it is my heart right side feels like someone is digging a knife in my ribs just under my breast at any time from trying to sleep or in the afternoon, the doctor said it was stress then we went another time indigestion which I really disbelieving (I would like to add my doctor is really bad, hes rejected my mother pain medication when she has cervical spondylitis and needs to take her meds every day "stopping and starting could kill her" judge at her disability tribunal stated. and when I developed Quincy he said it was a sore though and a week later I was rushed to A&E) Seizures, mental illness or other cerebral problems: Quite a few from severe depression in process of being diagnosed with Bipolar disorder, ODD, ADD, slight aspergers, stress disorders, night terrors, dyslexia and loads of others (NUT CASE) Headaches, migraine: Now and then for no reason I've had one most of today Kidney problems: never been tested Oral/nasal ulcers: not really Hair loss: not completely but it does get scary I have thick hair but at times it comes out alot Depression: very often Haematological disorders including anaemia: I haven't been tested but as soon as I get blood taken I feel sick light headed and week for over an hour or so I don't mind needles and have food in my tum Swollen glands: don't think so Fever: Since I was a very young child I used to end up in hospital because they would go through the roof and make me hallucinate *Raynaud's phenomenon: when I get stresses I noticed my fingers get irritated and itch and become a bit puffy Any help please I know it is alot but I am really worried most of the symptoms I have had longer then I remember and really want to get it sorted my skin really bothers me as I am 17 and want to become a make up artist and getting flawless skin is impossible and really drags me down.





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i have little spots on my chest and it's starting on my neck i also get loads of headaches and i have pain in my calves and i get pain where my kidneys are and i always feel tired so do i have this condition .





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my 2year old has been in hospital 17times with numerous illness and they have found her iga levels are very low she now goes to st thomas hospital in london as she has also had a photo sebsitive rash since she was born on may the first she is back there as they now suspect lupus..im terrified but if it is then im glad the two years of illness shes had will be managed and controlled x





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Hi please please help my daughter she is only 11 years an has white spots an her face take her to the doctor an he gives me steroid cream an it didn't help. i am so worried.





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i have redness and spots and dry skin on my face i had it since i was 4 years old i also have it on my back chest and shoulders now its spreading on my neck and arms what should i do please help me





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so if lupus is a chronic condition, does that mean there is no cure?





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Unfortunately there is currently no cure for lupus, however, there are various treatments available to ease the symptoms. See your GP for more advice, or alternatively, click on the NHS link above, 'What the men in white coats say, or on right hand column under title 'more information'. Hope you find some more ways to help your condition.

No, as yet there isn't a cure. Just medication to keep it under control.

ive had sle lupus for 4 yrs now and yes it is true there is no cure only meds that can keep it at bay.


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Content supplied by NHS Choices

Lupus is a chronic condition that causes inflammation in the body's tissues. It is an autoimmune condition, which means that it is caused by a fault in the immune system. In people with Lupus, the immune system attacks the body's healthy cells and tissue instead of protecting the body from illness and infection.  Read More »