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    Cerebral Palsy

    Cerebral Palsy isn't a specific illness, but rather a general term used by doctors to refer to a set of neurological conditions, which result in movement and co-ordination disorders, caused by damage to the brain. Read more →

    hi my daughter was the same 4 2 yrs i then lowered the movical as the same was happening to me i seemed to get it rite at my own pace as she was on to much in the end so i only gave her 1 everyday then 1 every other day if she was to loose. i seemed to get the balance right in the end n i told the specialist n he agreed i was doing the right thing hope this is of sum help Sam

    My son is now 4 years old he was 3 months early and always had trouble with his bowels maybe once or twice a week. He complains of tummy pain, goes very pale and has been sick. Been to the doctor they have no concern just tell me to buy calpol or change his diet, he has a good balance of food. There is bowel problems in the family. Don't know what else I can do, help?





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    I got 37 - I have postgraduate degree and a job which requires me to interact socially which is something I would say I had to learn to do but it is second nature now. I use the aspects of autism such as attention to detail and patterns in my job so it works for me. Tired of these shows that only have extreme autism example - let's have some balance as some of us are better than 'normal' whatever that is...





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    My daughter is coming up to 2. She has never put her heels down flat. After various appointments she has been referred for casts. This is a waiting game. In the mean time been told solid boots should help, so far it hasnt. I have tried stretching her gently but she seems in pain. Im concerned as her balance is not as good as a normal toddler so continuously falls :(





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    This sound very much like 2 year old daughter who is also a very high tiptoe walker we have been to lots of different hospital appointments from physio to consultants not 1 of them had a clue what to do as physio didnt work or the the special boots that she had fitted now they going to try the plaster cast for 8 weeks on tuesday so heres hoping this works if not the next step is to operate .

    At the age of 15 i started to find unwanted hair. It started on my lip and then i found some on my neck. at first i was very embaressed about it but then i went to the doctors. Weirdly they put me on the pill to balance out my hornmones which worked out well untill i stopped. i am now back on the pill and will be checking to see if it works again

    It is important for a kid with a squint to get it fixed up, because if left untreated, they wont be able to fix it because the brain gets so used to it, that its been permenantly programmed. I speak from experience- at 25 I am left with amblyopia. I did not have any treatment for the squint when I was little. I have no idea why that was my eyes refuse to work together. My brain relies on my right eye. If I try to look out of both my eyes at the same time, I get 2 seperate images, with a gap in the middle, and also the focus switches! Like now when I look out of both my eyes at the monitor the screen blurs, and out of my right eye I see the left edge of the monitor, and out of my left eye, I see the right edge of the monitor! Normally I look at the screen with my right eye. MY left eye can still see yet my brain mostly ignores the image, as it looks to the far right, and gives a different angle of the image than my right eye I can't drive because of the condition. I cannot judge distance and depth, though that might be because of my Aspergers syndrome, rather than my sight alone. I hope that people that could still have this problem fixed, get it fixed before they end up in my position





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    I have no interest in seeking a formal diagnosis but I found this very interesting. I have always been a loner and often feel completely out of my depth in social situations. I often wondered if there was something different in how I saw the world with respect to the way others percieve things. I am considered to be of above average intelligence yet I can't remember people's faces or names and battle to interpret what others are feeling. If someone is telling a story I can understand it but I have never been able to picture it in my head. I prefer to do things according to a routine, I dislike new places and I often find myself repeating behaviours which I need to concentrate to stop. For instance I will tap the thumbs of either hand against my fingers or my fingers against my palms in various patterns and sometimes need to hold my hands flat against a surface to make myself stop. My score was 42/50 and looking at the "Aspie quiz" I score: "Your Aspie score: 162 of 200 Your neurotypical (non-autistic) score: 43 of 200 You are very likely an Aspie" (Out of interest, I am 23)





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    my little girl goes for her op on the 6th september we have attended 4 doctors saying there was something wrong first one said i was an over anxious mother second one said it may be development issue as her dad has dyslexia third said she is just finding her balance the fourth one i was at my wits end and said i wasnt leaving until she referred me for xrays i cant explain how i feel right now its such a long journey ahead first op is cast for 18 weeks second op is very likely and third op is 20-30% chance but all they keep saying is she will be fine for school she will be 17 months at the end of this month! its been good to see the video of oscar and good to see this hightlighted my husbands father had one leg shorter than the other but was not officially diagnosed with hip dysplasia so the doctors werent intersted





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    hi i have a wee girl my health visiter first niticed she had one leg slightly longer than the other doctor agreed and got her refurred dor a scan at about 3 months they ssid she had one hip slightly under developed and said she would need x wrayed at six months so went and got her x wray'd and she told me it seemed her pelivs was at a tilt but said it could be cause she was not lying straight in the x wray and i would be contacted if they needed to do another one.... she also has an exta leg crease or one less on her thigh... im still waiting to hear just wish they would make up there minds all i keep getting is that she is border line... my dad has to get knee replacement and my mum and dad have autheritis didnt relise thats what it could turn out to be if not fixed just dont no what to do next ,,,, she also was measured the week befor her x wray and she still had one leg slightly longer yet the nurse told me she didnt think she was ....

    I am an adult woman who used to be a tip toe walker. I walked like this until I outgrew it around age 10. Nothing was ever done to remedy it, and I didn't even realize that I was 'abnormal' until I was in my early 20's. I was in to see a doc for something unrelated, and was laying on the examining table on my back with my feet flat on the table, rather than toes pointing up. He told me that this was 'not normal', but after an exam, he chalked it up to a 'short tendon' and told me that it would not cause any problems. I am now 44, and have not had any issues other than having enormous calves (17" - 18"), and being unable to squat flatfooted. This does cause issues with weight training, as I am unable to perform certain styles of squats or some of the Olympic style lifts as my balance is compromised.





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    I walked on my toes since I was 12 months old. By the age of 10 I had seen loads of drs, specialists and had several tests and physio. At 10 years old; a childrens hospital put my legs in casts for 3 months; to stretch my acielis tendons. With every week returning to tighten the casts to stretch the tendon a little more. I'm now 21; rarely walk on my toes. Have quite muscley legs for a slim girl. Though the toe walking never had affected me. Growing up I danced, was a very good runner and had great balance. Only concern now is at 21 I am having a few back problems, which may lead back to the toe walking.





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    Thanks everyone for all the posts. I''ve not seen the show, but I stumbled across your posts while searching the web for info on treatment for DDH on baby's 18month plus. I'm petrified, my daughter will be left with a long term disability and like many of you, I went to my doctor on three occasions about her hip locking and when she started to walk her left leg appeared to have a limp. The Dr. put it down to her growing and said they have a gateway upto 24months where they may appear off balance. Luckily my nursey also picked this up, so I refused to take his word for it after the 3rd time, and requested he referred me on. From there my daughter was diagnosed with DDH and is now on a waiting list to be seen. My main priority is getting her seen before the chance of full recovery is slim. We still feel unsure as to what will be of it all, hence feeling petrified, and annoyed it wasnt picked up sooner, as we have yet to have the ink X-ray (anthagram) and from there we will know the severity of the operations.





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    Dear Jen, Give the STEPS charity a call on 01925 750 271. They are a lovely bunch of people whose main purpose is to give advice, help and support to parents who have children with DDH. Also, find out from your hospital how long you should wait before expecting to hear from them. It always worth chasing things up. I have 2 children (baby and toddler) who had DDH and are recovering extremely well now. However, 18 months is a pivotal age for treatment. Best wishes.

    Dear Jen, Give the STEPS charity a call on 01925 750 271. They are a lovely bunch of people whose main purpose is to give advice, help and support to parents who have children with DDH. Also, find out from your hospital how long you should wait before expecting to hear from them. It always worth chasing things up. I have 2 children (baby and toddler) who had DDH and are recovering extremely well now. However, 18 months is a pivotal age for treatment. Best wishes.

    I have had the issue of toe walking since a kid, and I'm 45 now. I'm just now looking into some ways to reduce my calves. My mother ignored the issue. She thought it was 'cute'. Other than getting teased about being a ballerina or a "tippy toe" walker on occassion, I didn't really have (m)any issues growing up. There are no issues with balance; if anything, balance wil be stronger because you're not centered. What it WILL affect, though, is footspeed. Your child will never be able to sprint fast, because the foot plane won't give the foot leverage and push that it needs in, say, a 40 yard dash. Another thing you will notice is that your child will not be able to stay on their feet as long as someone who walks with normal gait. The MAJOR manifestation you will see, is that the calves will become huge. In my case, they're enormous. And because I have a long torso short leg body type, I look like the proverbial 'Alpine Man'. Once those calves get overdeveloped, there is little to nothing you can do to fix this, so I think this is one of the main reasons you should look into the matter more seriously. Cutting the tendons is a draconian measure for sure, but some discuss that as a way to reduce calf muscle. I'm not a MD or PhD in Medicine, Pediatrics or Orthotics, so my credibility is squat academically speaking, but I have lived the issue, and personally, I don't personally think the casts and such will address the issue. I believe that your child will need to be 're-programmed' to walk properly. I was unable to re-learn to walk properly, even being consciously aware of the toe-walking. On long walks, like a day long walk around a theme park, the walk would settle into the heels a bit because of fatigue. But - I have a new 'discoverydevelopment' I will share. It started when I was playing golf, and was told that I had no hips in my swing. I realized, from video, that I was "hip locked" . A large reason why I was "hip locked", is that I never used my hips walking, and developed my hips. I started doing hip stretches each morning, along with calf stretchs on a Power Systems calf stretch incline (metal, adjustable), and all of a sudden, my walk has more hips in it, and my heels seem to 'want' to touch the ground. It has changed my walk dramatically - but more naturally also. My recommendation; a rigorous routine of hip stretches and calf stretches. You've got to essentially get them to re-learn to walk, but subconsciously - not consciously or they will always revert back to toe walking. And to 're-program' the walk, you have to make it EASY for the body to walk naturally. It won't be easy without hip flexibilty, and dorsal flexibility.





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    Take children probiotic gummy as long child 4 older.. Probiotic helps bring the ph balance back to normal .. It usually sign has over growth of yeast in her body ... Which not treated leads to bacteria or health issues .. By giving body good Bacteria your protected ur body.. There are natural ways fruit with seed will help.. Down line when she adult ultimate flora is wonderful.. If want know if have a overgrowth of yeast there test and long list of things can happen to body when there isn't a enough good Bactreia . This might sound gross spit in glass of water if spit sinks or long strains spit. That is signs over growth of yeast .. The whole world would past. Because of all that process food.

    A 33 score might mean you have some autistic traits that could be classed as a spectrum disability. If your honest answering the questions then I would say that you probably do have some difficulties socially. You might have checked the other test that combines sytemising & empathising it's called the extreme male brain and you need to check the results on a grid ! google search it . The description extreme male brain does not indicate which sex you should be is no indication of orientation. You need to look at this in depth as it a complex thing read the web sights & what other people are writing about. Dyslexia , dyspraxia ,attention defacit can be co morbids that is if you have these conditions you are more likely to have autism or aspergers syndrom as it used to be called. I think it has been changed in the USA to a general term Autism Spectrum Disorder. Present your case to your Doctor don't mention it as a by the way. They should have heard of it if not ge prepared to info them with the facts .your doctor will be able to look at your records to see if any indication of unspecified or misdiagnosed problems has arisen . Some times the symptoms can appear to be similar to phsycofrenia if you have a history of depression or stress related difficulties or even autimune problems that could indicate a good case to a referal to a physciatrist for assessment & then to a specialist & there are not many of them around. You might be content that if you are autistic then your a very honest person & your not judgemental & good with computers not bad going but if your unhappy & think a diagnosis might help then stick at & insist even try a different doctor if you feel they are not being sympathetic or a bit thick about it after all they cannot know everything they're only doctors ! By the way I have dyslexia & a wrong diagnosis that I have only recently become aware of . I'm also unemployed & was bullied t school I'm lousy with sport !

    I scored 44, I am 28 years old female and I function in all situations well, because I fake it, I have studied "normal" human behavior since I was 2 years old (or earlier, but remember I did it intentionally since 2), so I can fake it exceptionally well, my GP told me I for sure have no Aspergers or any kind of Autism spectrum as I am too sociable and intelligent for that, so Oscar for me for such a good performance. However it is not all so easy - I really wish I was diagnosed as a child, because I had extremely challenging school years, all that ridicule and bullying without understanding why and how to respond, all that awkward moments at sports lessons - unable to play any kind of sports, unable to catch a ball or keep the balance, being called lazy, slow, lame, bad attitude, too sensitive and impolite... But it is so much better now, though I still have a lot of problems like extreme food allergies and hey-fever, hormonal problems and not able to drive a car. But at least nobody is forcing me to play basketball or any other ball games anymore, slowly but surely things are improving for me. I have a 2 year old son and every day I watch him closely for any signs, but so far so good - he looks perfectly normal loud and confident explorer - so not like me when that age... It is kind of painful to say this, but I am very very happy, that he is not like me because that means he will be able to have a normal happy life.





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    I have Coeliac Disease, it took 3 decades of constant ill health from birth (gluten in diet from being a very small baby). Symptoms include: balance problems, severe exercise intolerance, catching every virus going around and struggling to get over infections before getting another viral infection, dreadful flu like symptoms, recurring tonsilitis - sore throat, pins and needles sensation (ice burn sensation), breathless, anemia, feeling sick, retching after eating, hungry all the time but yet feel over full and sick after eating, bowel symptoms, hypertension, tachycardia, concentration problems, high temperature all the time, very emaciated, swollen abdomen after eating, sometimes completely swollen with oedema, glomerulonephritis chronic, tremor, dizziness, tinnitus, vertigo, headaches, ATAXIA. But alas 3 decades it took for a diagnosis, I was told I would grow out of it, that I was weak and of poor stock ! and that I was female thus it was attention seeking, mental and all in my head and told not to worry majority of females have mental problems, I was told to go and get a husband and have a baby as that would give me a focus in my life and my symptoms would just go as my focus wasn't on my symptoms !!! Many doctors and decades later minus any self-esteem and confidence I had in myself and the medical world, my medical file was accidently put on the wrong desk, that person's desk was a gastrointestinal registrar researching the connection between anemia and coeliac disease, and at last I got diagnosed. Within 4 weeks I was 100% healthy at last (naturally not eating any processed food), unfortunately I started going down hill again after eating processed foods and I found out the prescription food and other gluten-free items had too much gluten in them for me (I wasn't aware they had any gluten in them, they have since reduced the amount of gluten permitted in the gluten free food), my neurological problems returned and never left, I have moderate ataxia caused by the gluten disorder coeliac disease, the damage has been done, I am strict with my diet, but sadly I am unable to reverse the 3 decades of damage. I am unable to have children because of the health problems. And have osteoporosis also caused by coeliac disease, eyesight problems (blurred vision, double vision, paresthenia, muscle weakness, pyramidal signs, hypertension/tachycardia, low ferritin levels. I urge people to not just think bowel problems for Coeliac Disease or other Gluten Disorders you can have myriad of symptoms mild to severe at anytime, and the sooner you get diagnosed the better, we should not underestimate the damage caused by any Autoimmune disorder including Gluten Disorders. It is quite misleading when the symptoms of Coeliac Disease seem to be bowel only, maybe embarrassing bodies can help by describing that their maybe a myriad of symptoms not related to bowel?





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