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  • Autism and Asperger Syndrome

    Autism and Asperger Syndrome

    Autism and its milder form Asperger Syndrome, often referred to together as autistic spectrum disorders (ASD) are conditions which make it hard for sufferers to communicate or interact with others, or to develop what most people would consider 'normal'… Read more →

    Please visit this website as it should be able to help you in many areas that you have concerns regarding your sons behaviour and communication: http://www.autism.org.uk/

    we have just found out that our grandson has flat head syndrom and it could cause learning difficulties is this true,





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    Talk with a specialist as their view is independent and usually correct but from my point of view the main thing with any kind of autism is interpretation and communication. Do you get hints about the person's feelings from their facial or body language? If you don't then this could mean you often wind up in arguments because you have a lack of social skills that enable you to have more understanding and control over a conversation. Do you feel comfortable communicating with other people and do you engage with them? Do you have an independent streak? If the answer is yes than you should see a specialist. Even so, a diagnosis is not the end of the world and things only get better as you receive the right help and attention for your needs.

    my daughter who is 10 has always had a painful left leg and it turns in. if she runs she is screaming in pain or has a long walk it really restricts her and she has had some nasty trips as she is very clumsy we have tried to get her help we tried insoles physio and have seen several doctors round about the time we noticed her intoing about 2 half she started having speech problems and she could do the alphabet and count to twenty but after that she couldnt and has learning difficulties and memory loss please help her as she gets very down about it





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    hi i need some advice my baby is 7 months old, and has breathing difficulties. he chokes when he lies flat, he very tight chested and wheezie all the time, seems to get ocasional have panick atacks when he is coughing. and worst cases goes blue around the mouth. everybody i meet says he sounds like he has a bad chest infection. he has seen so many different dr in these 7 months, they all say the same he is eating and most of the time well in himself so they arn't worried. send me home, i have got an inhaler for him but it does nothing. i feel like im going crazy i cant sleep im up with him all the time incase he chokes. what can i do?? what is it? any advice would be great.





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    Hi I am going through exactly the same thing with my son, now 12 but he has been like this since he was a toddler. We have just been refered to a Gastroentirologist recently. He was on meds for reflux but that didn't seem to make it go completely.There is a condition called eosonophilic oesophogitis where certain trigger foods cause a delayed reaction in kids sometimes days after.They tend to have issues with eating, trouble swallowing, vomiting, coughing while eating, having to drink between mouthfuls are some of the issues. My son described it as it is like he has a door in his throat and sometimes it is open and the food goes down ok, and sometimes it shuts and the food gets stuck.He then has to induce vomitng to get the food out.He has also been running off to the loo like this since he was 4. He gets a ' look' on his face and stops eating and you can tell what is coming next. The Dts thought it might be a hiatus hernia but 2 bariums showed nothing untoward wrong.The only way to diagnose eosonophilic oesophogitis is with an endoscopy and biopsies which look for more than 50 white blood cells present in the osophogus which normally should not be there.These are caused by consuming food/ foods which the child is allergic to, but because the reaction is a delayed one it is harder to detect.The cells inflame the throat causing scarring and this causes the dysphagia ( trouble swallowing) This is what I am trying to get the Drs to check for woth my son as he is typically atopic ( allergic ) . My son has year round rhinitis, mouth breathes and many allergies including pets, dust, tree and grass pollens, foods and asthma since he was 1. Also in young children failure to thrive or being small for age, sleep difficulties, tummy aches and lots of ear/ throat infections are very common as well as what you mentioned. I hope you get some answers and us too ! It's been a long road !

    I am aware of a boy in Hull who had alot of difficulties getting a diagnosis .He was suicidal and excluded from School. He is back at School and hopefully things will get better for him.A diagnosis will help to get access to support .if you think he has ASD then I would have thought that was a good basis for a diagnosis to be made . It is difficult as lot of symptoms can relate to other difficulties though the Spectrum of Disorder includes a range of these difficulties. A Internet search should provide a list of Autistic groups in your area and support that they can provide. You could get a bit of publicity going and start your own support group with other local parents. even my own town has a Autistic drop in centre. Good luck .

    I am 16 and i had the operation in febuary of 2009. I was diagnosed idopathic scoliosis and it occured in later teenager years, Unlike how channel four stated that it is only genetic. I would like to say that i did not have any breathing difficulties as i was still able to do everyday activites. I would like to know whether the breathing difficulties were based souly upon the scoliosis that Jade suffered or if there was a different problem as i had a 65 degree curve and a large twist. Fortunatly my operation went smoothly and i have just past my year aniversary and everything is fine with an subtle thin scar down my back. Thank you to my doctor. And i am willing to talk to people that are preparing for an operation.





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    I'm 25 and scored 23. My girlfriend has been diagnosed as having Aspergers. She had a feeling I might lay somewhere on the Autistic spectrum but I don't know if a score of 23 is reason enough to go for a proper exam. Sometimes I find it difficult to deal with people and often go about it the wrong way but I put that down to frustration which is caused by communication. Basically, even for my own peace of mind, is it actually worth getting checked out?





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    i found out i had aspergers just before i was 19 at the end of January 2012. It was too late by then. Had to quit college as i was failing my communication section. It has now added everything up. I eventually told people and its made things easier. Sometimes i think people think im a wierdo but i know im different and dont feel the need to explain myself to someone who obviously doesnt know or understand





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    Hi, Just wanted to say I have a 9 year old with learning difficulties and we've tried everything. We tried the patches but she got a skin reaction to it do we stopped. We also did the op to turn her saliva ducts round (transposition of sub-mandibular ducts). It seemed to work for a while but soon the dribbling came back so I think it was a bit of a waste of time. The doc did say in the end that it's a "learned behaviour" so we now have to teach her how to swallow, wipe her mouth and close her mouth all of which she finds difficult (..having learning difficulties!) but of course we won't give up. It's just a bit like 1 step forward 5 steps back!! Just before summer she had 10 baby teeth taken out (..ouch!) & now that they are coming through again you can imagine what the drooling is like!! I'm no GP or speech therapist but I sure have seen a few over the years & the best advice I got from them was about teaching your child how to close and wipe their mouth and remind them to swallow. Also they need to breathe through their nose not their mouth like my daughter who is a habitual mouth breather as she seems to get lots of colds!! Good luck & I hope you found this useful.

    Hi my name is Anthony I am 22 I had adhd when I was younger but I stopped taking my dexanphetamines when i was about 13 when i started smoking I have quit now and I sometimes have difficulties with concentrating on things and I also have quite bad mood swings I get very andry very quickly what should I do?





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    Hi, I'm mum to my 6 yr old who this week has been diagnosed with scalp psoriasis and dry skin. My gp who has had extra dermatology training is supportive. She has given her an ointment containing coconut oil and coal tar to put on the hair and sleep with overnight plus an emollient mouse for the skin. My child does not have the communication skills to convey her feelings for this, she just itches her head all day and refuses point blank to wear anything on her legs as they itch her. She seems to go round semi naked liking the cold ! Please could someone tell me from a child point of view what she is experiencing and how she may be feeling. Thanks





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    I have done this before out of curiosity and always scored 43 yet today scored 46! This does not really surprise me as I have always felt very different to everyone else and have 3 children who all have a diagnosis of autism and although I manage to function without support I recognise many of the difficulties they have as things I have always struggled with myself but to a different degree. Will be very interested in the results of this test.





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    I scored 34 - I'm 46 and have only just made the connection between the social and personal difficulties I have had all my life and Asperger's Syndrome. I've already asked my GP to help me explore this further but it will take up to a year to even get an appointment with a psychologist. I want a diagnosis now! The relief that I could finally put a name and a reason to my lifelong symptoms is enormous and the wait is going to be excruciating! :(





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    I had a score of 26 (I think, i've already forgoten) I'm 15 and when I was younger I had learning difficulties, but some say I no longer have them, but a few of the things i do every day in my day to day life do remind others of autism fetures. I do have troubles in some things that others say are dead easy. I have noticed that some things about me that should be fine are getting to go down hill. My memory for one, as you might tell from up there ^ at the top. Does this mean anything important? Anyone know?





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    Hi, my daughter is 5 yr old and she catches cold/ or similar infections very often. When she has fever it usually very high 40-41. She normally gets antibiotic which makes her better, but I`m concerned she`ll develop allergies later in life. She also snores very loud, even when she`s well. GP done some tests ( urine and blood) and everything came back negative. Why is she getting ill so often? She`s on antibiotic almost every 3 months. She doesn`t eat all food ( such as most meat, all pasta, all rice, etc. )either due to food sensory issues. She was diagnosed with complex social communication disorder a few months ago. She often wets herself, because she`s scared of noises in the toilets ( even in school). She has lots of other sensory issues, but right now I`m concerned about her being sick so often and taking antibiotic.





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    Try a probiotic. I recomend three lac by ght ( global health trax ). It's a cure all. Hope her health improves!

    I had spinal fusion surgery when i was 16 years old aswell.I had a 73 degree curvature with a twist at the top near my neck. I too didn't have any breathing difficulties, i did have to wear a brace before my operation for 23 hours a day for 15 months, which unfortunately didn't make a difference which is why i had to be operated on. I agree that the operation is extremely worth it.





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    A 33 score might mean you have some autistic traits that could be classed as a spectrum disability. If your honest answering the questions then I would say that you probably do have some difficulties socially. You might have checked the other test that combines sytemising & empathising it's called the extreme male brain and you need to check the results on a grid ! google search it . The description extreme male brain does not indicate which sex you should be is no indication of orientation. You need to look at this in depth as it a complex thing read the web sights & what other people are writing about. Dyslexia , dyspraxia ,attention defacit can be co morbids that is if you have these conditions you are more likely to have autism or aspergers syndrom as it used to be called. I think it has been changed in the USA to a general term Autism Spectrum Disorder. Present your case to your Doctor don't mention it as a by the way. They should have heard of it if not ge prepared to info them with the facts .your doctor will be able to look at your records to see if any indication of unspecified or misdiagnosed problems has arisen . Some times the symptoms can appear to be similar to phsycofrenia if you have a history of depression or stress related difficulties or even autimune problems that could indicate a good case to a referal to a physciatrist for assessment & then to a specialist & there are not many of them around. You might be content that if you are autistic then your a very honest person & your not judgemental & good with computers not bad going but if your unhappy & think a diagnosis might help then stick at & insist even try a different doctor if you feel they are not being sympathetic or a bit thick about it after all they cannot know everything they're only doctors ! By the way I have dyslexia & a wrong diagnosis that I have only recently become aware of . I'm also unemployed & was bullied t school I'm lousy with sport !

    Yes bipolar can be a comorbid of autism as can any learning difficulties or social interaction problems. If you think you have problems seek you doctors advice do not include it as a after thought go specific with this.your records may indicate problems such as any misdiagnosis for something else.doctors may be aware of a little about ASD but their knowledge may not be up to your level if you look into it in detail.if you understand what is being said then you may be autistic probably are on some level.

    I'm also fourteen and took the test several times, I have diagnosed with dislexia, disbraxia and a couple of other learning difficulties includeing apergers autisum. But it doesn't affect me really, some people think I'm quite unsensiour and compulsive. But I'm fine most of the time or pretend to feel fine. So there's no need to worry about it because its not going to change you is it? Or make a big difference to your life. I know some someone who had mild Tourette's and didn't find out until he was 16. So there's nothing to worry about

    Katherine remember that you are 15 and going through a stressful part of life. A lot of teenager's don't like social situations at this time. You should let your parents know that you are worried about this if you feel comfortable talking with them. Otherwise you can talk with your GP, another family member, a school nurse or teacher, other close friends, who ever you think will listen and understand your feelings. My daughter has Aspergers and although diagnosed at 16 yrs old we always knew she had difficulties. For us it was a relief to finally understand why and move forward with this understanding.

    i would just like to comment that my son who is now 12 has been having problems going to the toilet ever since he came out of nappies, although he has severe learning difficulties aswell we still do believe that there is a conection. we have been going back and fo the hospital since he was 5 yrs old was always told to keep giving him his movicol and things will get better.....i am still waiting? he has got to the age now where he is getting embarrised. after an appointment again last week i have asked to have his insides x-rayed and finally they are going to x-ray my son. there doesnt seem to be much help when it comes to children who suffer from this condition and there must be an underlying cause or condition which is causing these children to be suffering in this way? more is needed to be done in order to help these children instead of just CONSTIPATION being used. it does get very frustrating especially when you are asking for help...





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    my son has had difficulties with his bowel since birth he is 12 now he has been on lots of laxatives such as picolax and sodiaum picasulphate which work after he takes them for 4 or 5 days but he then has to take time off school as he loses control of his bowel which is embarassing to him they tested him around 5 yrs ago for coeliac which was negative but the only time he had any respite from it was when he was having a wheat free diet but the dr said as he had a negative test he couldnt justify him being on wheat free diet





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    I have often heard about kids testing negative when they are very young but then they are diagnosed later in life. Perhaps you could talk to your GP about getting him tested again. Also its good to bear in mind that someone who has CD can get a negative blood test if they are not eating enough gluten or just as there in only a 90% chance of picking up CD from the blood test. If a further test is still negative it might be worth getting them to do an endoscopy to be sure.

    hi he did have and endoscopy but that also came back negative although he was on a wheat free diet when he had it not sure if that would cause a negative test??

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    Just found this site and although my daughter is 24 so much of what has been said rings true for us! My daughter is autistic and has learning difficulties so poo and wee has always been an issue for us but over the last 2 years it has become more of a problem - she refuses to use the toilet and goes when asleep or in the bath (when she is relaxed) she takes movical but getting the correct dose is problomatic - we are waiting to hear from our community nurse and be assessed by a psychiatrist - lets hope that they can make some suggestions to help us - all I would say is make sure you keep on top of the problem as just leaving it will not help in the long term Doctors and school nurses can help but need to know how severe he problem is to take you seriously





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    Hi im 20 and have had asthma all my life. I was rushed into hospital as a baby and toddler because of breathing difficulties. Like most of you, my mother panicked the majority of the time. Commonly, my asthma is worse at nights and winter, it always has been. I advise you to visit your GP and explain the symptoms and they should prescribe you with a blue inhaler (ventolin) which contaons steroids and is a fast acting reliever. This is only for short term relief! If needs be the GP can prescribe you with a stronger more long term reliever. For mums out there worrying about their child having asthma, fear not! It hasnt prevented me from doing anything and i am now a succesful rugby player. Thanks for your time and remember, dont panick!





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