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  • Meningitis

    Meningitis

    Meningitis is an infection that causes tissues round the brain and spinal cord to become swollen, reducing blood flow to the brain, and in its most severe form –bacterial meningitis - it is an extremely dangerous, potentially life threatening con… Read more →

    Meg, thanks for your reply to my question. I'd love any further info you can give me. My child had a positive result to a blood test for Lymes approx 7 months ago but the test has been repeated since and come back negative. There is confusion because doctors think he may have had Glandular fever too, although 2 separate blood tests for that have come back negative. Is there anything else I can do or should be asking for? The heart conditions sound worrying, any more info on those?





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    i think my son who is 4yrs is on the spectrum but just cant seem to get the help he needs , i cant explain how he is and never have be able to :( ..wen i see the worring sighns i just know like a instinct feeling i have, i know he is very clever and so good with numbers alot of my family say my son is fine as he is so clever and can make freinds, i think he is very good at covering up his confusion at times, ofetn answering things with yes or no but wen i dig deeper he has no idea , this only happens some times as, im so confused i know he is clever and i hate the fact that poeple think he does not need help in some areas because he is clever at soemthings , he is a very serious little boy and a know it all, my son never sits still and hates goin theatre or cinima and often his enviroment will affect his behaivor, my son lost his speech at 1yrs old this may have been due to a siezure altho never has a doctor been worried about his loss of speech , he started to talk again last yr , i can understand him but others struggle. there is many other small problems i cant explain, i just cant put my finger on it and this makes it very hard for me to to help my son wen talking to doctors as they ask me and i say that im not sure iv tried writing lists but the health professionals just dont take my concerns far enough as im unable to explain my self wen put on the spot , altho latley my mum has started to notice things about my son and my mum has started to talk to me ABOUT it and other docters have noticed wen he is very ill he still runs about whilst in hospital and like he dont have a care in the world ...i just dont know what to do or how to get the help he needs i might not explain my self well but i sure do know he has somthing about him 'he is different' (qiurky) and very funny he loves to make every one laugh and is intreeging thank you i hope you can read my dreadfull spelling :) xx





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    my son does show sighns of ocd he is very perticuler about were his toys go in hid bedroom and also very clean soemtimesthis is worsethan other days , and took alto for me to make him learn itsok to play with sand and paints he is now ok aslong as i tell him he can wash wen he is finished i dont allow him to wash half way thro a activity now as it can make him more aware of his hands getting dirty/sticky he has always liked to line thingn up since a baby and spinning things altho iv not seen him into spinning things for along time but at one point it all he done (6month -8months) was constant and slowy the spinin faded out , he still loves to line things up and arrabge toys in a certain ways he loves to make his toystalk to each other in pretend play but always ends up throing them with anger xx

    Same with my son. Iknew instinctively something was not right, but was never diagnosed. Like your son, he is clever but always a bit quirky. I ended up going to a local educational psychologist when he was 7 and having him tested. Turned out he had aspergers mildly although because it was not diagnosed 'through the authorities' ie; school, GP etc so not official diagnosis. Still worth doing as we know why he is quirky now. If, like me you are not able to afford private, google local charities who fund this kind of stuff. Educational grants i think it comes under.For the record, we home taught him for first 4 years of big school as we didn't think he would cope mentally with big school at age 11. He has just gone back to school for gcse's as we cant fund them, and is doing very well. He also has his own little online business painting war hammer models for people which is very successful for him. None of his school classmates have had the initiative to do anything like that. So it's not all doom and gloom. Just be prepared to step in and change the situation if you think it's all getting out of hand; ie school bullies, when he gets to high school. By the way, we got no help with home schooling but local education dept are obliged to help you, even if they say not. We only recently found that out as they try to keep it quiet. Best of luck

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