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    Cerebral Palsy

    Cerebral Palsy isn't a specific illness, but rather a general term used by doctors to refer to a set of neurological conditions, which result in movement and co-ordination disorders, caused by damage to the brain. Read more →

  • Spina Bifida

    Spina Bifida is a birth defect that affects the spine and nervous system. Read more →

    Hi, my name's Monica, I have a 21 month old daughter. For the last 6 months I have noticed that every time she's strapped to her high chair or pushchair, she pushes herself backwards and forwards, as if her back was hurting. She doesn't cry or moan, she just does it every time. Her stomach protrudes a lot when she does it. Should I be concerned that it has something to do with back pain or curvature of the spine? Thank you.





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    Hello. My name is Katie and I suffer from cystitis regularly, I also have been given 'trimethoprim' as an antibiotics. I have had this problem since the age of two and am now 16. Try applying Vaseline to the area - this soothes the pain from where the vagina is inflamed and dry, make sure your child drinks plenty of water, avoid soap and bubble bath products whilst bathing, look out for a liquid medicine called 'Potassium Citrate Mixture' at your local pharmacy. This liquid medicine is diluted in water and relieves the symptoms of cystitis within 15 minutes. Also another thing you can try for your child is to have a hot water bottle positioned towards the bottom of the spine at night time, this will help soothe the pain and I would definitely advise to wear cotton underwear due to the fact that it is comfortable to wear. Make sure that your child hasn't cut herself in the area and that she wipes herself form after using the toilet correctly; front to back. Hope my advice is helpful! Best of luck, hope your child feels better soon x

    Hi, my name is stef. Im 19 and had corrective scoliosis surgery 7 weeks ago. My wasnt as bad as jades as my spine wasnt pushing on my organs, but my curvature was slightly bigger of 60 degrees. I was in hospital for under a week and was walking the next day. Im very happy with the results and my posture is great.





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    Im 16 and too have idopathic scolios, i got diagnosed last year. I have an 'S' shaped curvature with around 43 degrees in the thorasic spine and 33 degrees in the lumbar. It is still to be decided whether or not i will undertake an operation because, it is very much growth related, so hope is that i dont grow anymore!. I swim every monday, attend a back class every tuesday, do pilates on a wednesday and they all seem to have helped.





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    Hello, I am 18 years old and I had spinal fusion surgery in July of 2010. I am currently in my second semester of college in Pennsylvania. I had a 60 and 65 degree double curvature of the spine and had a full spinal fusion with two metal rods and 14 screws I now have a 15 and 20 degree curve. I recovered extremely quick and am doing well, just thought I'd share a positive story.





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    I was under greater and street hospital and when I turned 16 I was discharged as i was no longer a child. I went to my GP as I was suffering from terrible back pain as well as the pain in my foot and he referred me to an orthopedist and they told me I have curvature of the spine and a tilted pelvis due to my club foot. I had a special inner sole made as i have one leg shorter than the other. I had my first operation at aged 17 months and loads in between and my last operation at aged 15 years. But I can honestly say the pain I'm experiencing now is the worst I have experienced since being born with this condition.

    I'm 14 and I've been diagnosed with scoliosis during the summer of this year. I have a triple curvature in my spine and I am just wating for a date for my operation. Because I have 3 curves, I don't appear to have a bad posture as it's evened itself out. My biggest curve is 75 degrees and the others are around 55 and 30. My hips are very uneven and so are my shoulders. Apparently I would have started with it around 9/10 and it's taken 4 years for me to notice it. I get a lot of pain while I am in school as I am sat down all day and there is a lot of pressure going onto my back. When I have the surgury I wont be able to do sport for a bit(which I'm not that keen on anyway)but I'm really concerned about staying as active as possible, are there any ideas for any exersices that I can do when I'm going through my recovery that will be okay for me to do? Also, I'm starting all my GCSE's now, and I'm worried I wont be able to keep up, even though I will get all my work home, any ideas on how to keep concentrated on it? thankyou!x





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    I was born with club foot im now 35 my foot wad operated on wen I was 6hrs old they took out my calf muscle and did something to my accilies tendon this as left me with no movement wat so.ever to my left foot my left leg is shorter than my right I have a step in my spine and a curved spine im in absolute agony day n night and was wandrring if any1 else has the same as me as I know a few peeps who had club foot but no 1 with 1 leg longer or spine probs





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    I am 25 and I'm having all the problems you just mentioned I am in agony at the moment especially during the colder weather I can barely walk as my foot seizes up. I have terrible back pain and after carrying full term twins its only got worse!

    I was under greater and street hospital and when I turned 16 I was discharged as i was no longer a child. I went to my GP as I was suffering from terrible back pain as well as the pain in my foot and he referred me to an orthopedist and they told me I have curvature of the spine and a tilted pelvis due to my club foot. I had a special inner sole made as i have one leg shorter than the other. I had my first operation at aged 17 months and loads in between and my last operation at aged 15 years. But I can honestly say the pain I'm experiencing now is the worst I have experienced since being born with this condition.

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    Hey, Just wondered if the curve in your spine can get worse over time? I'm from bristol and part of children of the 90s, theyve been doing full body xrays since i was born and on my last visit told me i had a curve in my spine which was never there before. ive never been diagnosed with scoliosis but is it possible that i have it and its gunna get worse? xx





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    it does get worse over time i had a 63* degree curve when first diagnosed then before my operation i had a 68* curve i am now fine after having the op xxx

    Yes it can get worse if yo keep growing in january mine was 56 degrees and now it is 82 degrees Thanks

    My daughter was born with a Tethered Spine. Although she doesn't have spina bifida it was mentioned with some link to her condition. She is now 12 and still has little or no control of her bladder. She has to wear adult incontinance pads all the time, and it is getting to be very embarrasing for her now she is getting older. She has had her spine detethered and has had collogen injections, but nothing has changed. It seems the surgeons have given up on her, but i believe someone must be able to help her. I believe she may have structrual damage to the bladder, but i can't find anyone to help her. Please can you advise me on someone who i can contact to help





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    Hi I have just turned 13 and I have had scholiosis for 2 years now. I have had x-rays telling me that, at the moment it is at a 48 degree curve and they are now sending me to London's professionals on scholiosis to examin me and to decide weather I need to have an operation. Just to ask; 1) what did you have done in your operation (I have seen some people have a long metal rod attached to their spine and some have a flexible material in the area that the spine is curving to stop it curving anymore) I was just wondering what YOU had done. 2) would you say that the operation has helped you in life and there is not so much pain when you do curtain activities? Thanks, rosa.

    I had my operation back in 2002 and have never had any problems as a result. My curve was at the base of my spine so the surgeons went through my side, not my back like Jade. The scar is still present down the right side of my body but it's barely visible. I had to wear a back brace for 6 months to ensure my spine wasn't jolted whilst the vertebrae fused together which was slightly restricting but my friends were amazing and looked after me really well at school. I even managed to go on school trips to Dorset and Italy only 2-3 months after having the op. Good luck to anyone having the op - it really is worth it in the end.





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    i was diagnosed with scolosis at the age of about 6yrs, i had an s shaped spine after trying the brace i was told i would need surgery at the age of 12 i had to undergo the major operations, 1 to unscramble my ribs 2 to implant the metal rod down my spine initially the operation was a complete success but after the removal of the plaster casts i soon started experiencing terrible pain. At the age of 16 my specialist finally decided to investigate and after many tests i found out that the top of my rod had become loose, he told me surgery was an option but it was a 99% failure meaning i would likely never walk again, i am now 31 and as im getting older i have found im getting more pain and i do find myself wishing i had never had it done as im still suffering. I also worry bout the long term effects of having the top of the rod loose





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    I had spinal fusion surgery when i was 16 years old aswell.I had a 73 degree curvature with a twist at the top near my neck. I too didn't have any breathing difficulties, i did have to wear a brace before my operation for 23 hours a day for 15 months, which unfortunately didn't make a difference which is why i had to be operated on. I agree that the operation is extremely worth it.





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    yes i have the same thing. so just touch your toes and ask someone to look at your spine and if it slightly curved then yes you have scoliosis and if it is straight then you would have to see your doctor...

    My daughter at the age of 12 developed idiopathic scoliosis overnight - she was braced for 16 months - I kept asking if this would waste her muscles - I was assured it would not. When she removed the brace and decided to go it alone - her curves got worse as her muscle had wasted. She is now 18 and her curves are now 76 thoracic and 56 lumbar. She doesn't want the operation. She is attending BTEC National Diploma in Sports Studies, is a lifeguard, kayaks and her general is health is good. She does everything she wants to and has no problems, other than a slight shoulder protrusion. So is an operation always necessary and can the curvature correct itself as instantly as it occurred?





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    I was diagnosed with scoliosis when i was 14 and had the operation when i was 15. I can honestly say that it is the best think I have done, my curve was 52 degrees when i had the op and now it is less than 10. It hasnt stopped me doing anything and i still ski and horse ride regularly. Looking at me you would never know there was anything wrong, my shoulder is not protuding any more and i hardly suffer any pain at all. I had the operation in August and by Christmas i was back at school, 18 months after the op i was back on the ski slopes. I cant say whether or not your daughter should have the operation but i am not 25 and i am so pleased that i did.

    Hi yer. Since the age of 6 months old I was diognosed with scoliosis. I was in Body Plaster's and Braces up to the age of 14. I was one of the lucky one's that didn't need an op like Jade to have a rod attached to my spine. I'm now 35 and I'm pretty well and with no back pain.





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    Hi again, i just wanted to say that i also have a twist in my spine aswell as a curve, i was just wondering would they un twist it too? thanks





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    Im am 47, I have always walked on tip toe, but only when im bear footed. But the last 5 years I have worn slippers around the house and now I seem to walk on the right side of my right foot and for the last 5 years I have suffered with back problems, degeneration of the spine & sacroiliac disc slippage. Anyone out there who can help?





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    My 5yr old son wears a boston brace and we are hoping this will control his s shape spine enough so he does not have to have surgery when he is older - but I haven't seen any examples where bracing a child has then prevented surgery? Is ther anyone out there who has been braced and they have avoided surgery?





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    I have a rare type of scoliosis but I have 3 different curves and all of witch are agonisingly painful on a day to day basis, I have been braced 7 times and they have made me slightly worse than what I previously was I have not undergone any surgery yet but I want to

    My 5yr old son wears a boston brace and we are hoping this will control his s shape spine enough so he does not have to have surgery when he is older - but I haven't seen any examples where bracing a child has then prevented surgery? Is ther anyone out there who has been braced and they have avoided surgery?





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    I have a daughter who is nearly 9 now, she has suffered from constipation her whole life. Hers is caused by sacral agenesis,the nerves going from her sacrum(lower spine)that control bowel movement are not formed properly. She now takes movicol sachets and i also give her powered psyllium husks every morning on her cereal which help a lot.

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