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  • Scoliosis

    Scoliosis

    Scoliosis is the name given to curvature of the spine and the condition starts to appear in affected children between the ages of 9 and 15. Read more →

    Hi i was watching the program tonight about jade,i have a 9 year old with a very curved back she says it hurts her to bend over she also as trouble with her right leg witch turns in so she as trouble when she runs she falls over i tell her to straighten her posture but she can,t do you think it could be the same as jade problem should i take her to the GP soon thankyou





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    I would take her to see your GP, You certainly wont be wasting their time, At the very least they will be able to offer advice, etc.

    Hi, my name's Monica, I have a 21 month old daughter. For the last 6 months I have noticed that every time she's strapped to her high chair or pushchair, she pushes herself backwards and forwards, as if her back was hurting. She doesn't cry or moan, she just does it every time. Her stomach protrudes a lot when she does it. Should I be concerned that it has something to do with back pain or curvature of the spine? Thank you.





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    Hello. My name is Katie and I suffer from cystitis regularly, I also have been given 'trimethoprim' as an antibiotics. I have had this problem since the age of two and am now 16. Try applying Vaseline to the area - this soothes the pain from where the vagina is inflamed and dry, make sure your child drinks plenty of water, avoid soap and bubble bath products whilst bathing, look out for a liquid medicine called 'Potassium Citrate Mixture' at your local pharmacy. This liquid medicine is diluted in water and relieves the symptoms of cystitis within 15 minutes. Also another thing you can try for your child is to have a hot water bottle positioned towards the bottom of the spine at night time, this will help soothe the pain and I would definitely advise to wear cotton underwear due to the fact that it is comfortable to wear. Make sure that your child hasn't cut herself in the area and that she wipes herself form after using the toilet correctly; front to back. Hope my advice is helpful! Best of luck, hope your child feels better soon x

    I was born with club foot im now 35 my foot wad operated on wen I was 6hrs old they took out my calf muscle and did something to my accilies tendon this as left me with no movement wat so.ever to my left foot my left leg is shorter than my right I have a step in my spine and a curved spine im in absolute agony day n night and was wandrring if any1 else has the same as me as I know a few peeps who had club foot but no 1 with 1 leg longer or spine probs





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    I am 25 and I'm having all the problems you just mentioned I am in agony at the moment especially during the colder weather I can barely walk as my foot seizes up. I have terrible back pain and after carrying full term twins its only got worse!

    I was under greater and street hospital and when I turned 16 I was discharged as i was no longer a child. I went to my GP as I was suffering from terrible back pain as well as the pain in my foot and he referred me to an orthopedist and they told me I have curvature of the spine and a tilted pelvis due to my club foot. I had a special inner sole made as i have one leg shorter than the other. I had my first operation at aged 17 months and loads in between and my last operation at aged 15 years. But I can honestly say the pain I'm experiencing now is the worst I have experienced since being born with this condition.

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    yes i have the same thing. so just touch your toes and ask someone to look at your spine and if it slightly curved then yes you have scoliosis and if it is straight then you would have to see your doctor...

    Hey, Just wondered if the curve in your spine can get worse over time? I'm from bristol and part of children of the 90s, theyve been doing full body xrays since i was born and on my last visit told me i had a curve in my spine which was never there before. ive never been diagnosed with scoliosis but is it possible that i have it and its gunna get worse? xx





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    it does get worse over time i had a 63* degree curve when first diagnosed then before my operation i had a 68* curve i am now fine after having the op xxx

    Yes it can get worse if yo keep growing in january mine was 56 degrees and now it is 82 degrees Thanks

    My daughter was born with a Tethered Spine. Although she doesn't have spina bifida it was mentioned with some link to her condition. She is now 12 and still has little or no control of her bladder. She has to wear adult incontinance pads all the time, and it is getting to be very embarrasing for her now she is getting older. She has had her spine detethered and has had collogen injections, but nothing has changed. It seems the surgeons have given up on her, but i believe someone must be able to help her. I believe she may have structrual damage to the bladder, but i can't find anyone to help her. Please can you advise me on someone who i can contact to help





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    I am 16 and I have just discovered that I have Scoliosis. The doctor is referring me to a specialist. One of my hips is more 'curved' than the other, and I sometimes get a few pains in my curvier hip. I feel quite upset about it and I really need reassuring. What can I do to help make it better?





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    My name is emily and I'm 14 years old, I have a habit of walking on my tip toes, I've asked my mum about it and she said it's normal because I've done it for ages, my feet are all curved upwards from doing this, and I feel worried because I haven't grown out of it and can't seem to either.





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    Hi I have just turned 13 and I have had scholiosis for 2 years now. I have had x-rays telling me that, at the moment it is at a 48 degree curve and they are now sending me to London's professionals on scholiosis to examin me and to decide weather I need to have an operation. Just to ask; 1) what did you have done in your operation (I have seen some people have a long metal rod attached to their spine and some have a flexible material in the area that the spine is curving to stop it curving anymore) I was just wondering what YOU had done. 2) would you say that the operation has helped you in life and there is not so much pain when you do curtain activities? Thanks, rosa.

    I had my operation back in 2002 and have never had any problems as a result. My curve was at the base of my spine so the surgeons went through my side, not my back like Jade. The scar is still present down the right side of my body but it's barely visible. I had to wear a back brace for 6 months to ensure my spine wasn't jolted whilst the vertebrae fused together which was slightly restricting but my friends were amazing and looked after me really well at school. I even managed to go on school trips to Dorset and Italy only 2-3 months after having the op. Good luck to anyone having the op - it really is worth it in the end.





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    Hi i'm Jaz and im 14 years old. I had this operaion 2 weeks ago and it turn out really well, i went from having a 70 degree curved to a 15 degree curve. I went home 6 days after surgery, i'm not in too much pain and i can walk and run again, which is really good. I would fully recommend the surgery xx





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    i am in the same situation. my daughter is nearly one and has just started sitting unaided for 5-10 mins on one side of her bum.i have major concerns which have all been associated to late developer. from 6months i noticed that one leg is shorter than the other, the fold on her thighs are not in symetry, tip toe on one feet when she upright and she looks curved from behind. i have not had the opportunity of an x-ray yet but from what i've read from lena i would visit my Gp again insisting for one.





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    i was diagnosed with scolosis at the age of about 6yrs, i had an s shaped spine after trying the brace i was told i would need surgery at the age of 12 i had to undergo the major operations, 1 to unscramble my ribs 2 to implant the metal rod down my spine initially the operation was a complete success but after the removal of the plaster casts i soon started experiencing terrible pain. At the age of 16 my specialist finally decided to investigate and after many tests i found out that the top of my rod had become loose, he told me surgery was an option but it was a 99% failure meaning i would likely never walk again, i am now 31 and as im getting older i have found im getting more pain and i do find myself wishing i had never had it done as im still suffering. I also worry bout the long term effects of having the top of the rod loose





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    Hi yer. Since the age of 6 months old I was diognosed with scoliosis. I was in Body Plaster's and Braces up to the age of 14. I was one of the lucky one's that didn't need an op like Jade to have a rod attached to my spine. I'm now 35 and I'm pretty well and with no back pain.





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    Hi again, i just wanted to say that i also have a twist in my spine aswell as a curve, i was just wondering would they un twist it too? thanks





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    Im am 47, I have always walked on tip toe, but only when im bear footed. But the last 5 years I have worn slippers around the house and now I seem to walk on the right side of my right foot and for the last 5 years I have suffered with back problems, degeneration of the spine & sacroiliac disc slippage. Anyone out there who can help?





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    My 5yr old son wears a boston brace and we are hoping this will control his s shape spine enough so he does not have to have surgery when he is older - but I haven't seen any examples where bracing a child has then prevented surgery? Is ther anyone out there who has been braced and they have avoided surgery?





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    My 5yr old son wears a boston brace and we are hoping this will control his s shape spine enough so he does not have to have surgery when he is older - but I haven't seen any examples where bracing a child has then prevented surgery? Is ther anyone out there who has been braced and they have avoided surgery?





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    I have a rare type of scoliosis but I have 3 different curves and all of witch are agonisingly painful on a day to day basis, I have been braced 7 times and they have made me slightly worse than what I previously was I have not undergone any surgery yet but I want to

    Hi, my name is stef. Im 19 and had corrective scoliosis surgery 7 weeks ago. My wasnt as bad as jades as my spine wasnt pushing on my organs, but my curvature was slightly bigger of 60 degrees. I was in hospital for under a week and was walking the next day. Im very happy with the results and my posture is great.





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    I have a daughter who is nearly 9 now, she has suffered from constipation her whole life. Hers is caused by sacral agenesis,the nerves going from her sacrum(lower spine)that control bowel movement are not formed properly. She now takes movicol sachets and i also give her powered psyllium husks every morning on her cereal which help a lot.

    Hi, I have a 20 month old grandson. He was diagnosed with scoliosis at 8 month. He gets repeated chest infections and his breathing has been affected. He is due to have the operation when he's 4. I do worry lots about him and I was wondering if anyone knows of a child so young having the operation. His spine has a severe curve.





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    Hi Catherine my todler also a boy has this condition and will have to undergo surgery. I have not met anyone else to date whom is aware of a male child with this condition as it rarer in boys. Would love to chat more? I am also so very scared!

    At least your grandson. would be better

    we have just found out my 9 year old daughter has 2 curves to her spine missing discs floating rib and a missing rib some of her fertabes arent developed proply and some are infused together and she has problems with her kidneys her right 1 functions 23% and left 1 63% and she is really windy but no one has told us what the name of this is or what the out come for my daughter will be? can any1 help me please





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    Hi try ringing Asbah if you don't all ready there brilliant and will offer advise and support

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