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    hi, i am 13 and since i was born i have never been able to turn my wrists over, palm upwards. it really affects me and i wish it could get sorted by surgery or other. i think it has something to do with bones or joints, but i am too embarresed to speak to my parents or docters about it.





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    i read and seen the article on ddh my daughter is a little like this, since she was about 12months old we have seen many doctors but no one wants to confirm anything, she has had xrays and they have show that she has a tilted pelvis and that right side is smaller than the left, and she has also got dimples on all her joints what could this mean as no one will give us a diagnoses she is now nearly 2 1/2 and i feel like no one cares please answer me





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    It is very difficult for us mums and dads to objectively see our children. My son has aspergers and he displays none of those traits. However I know children who are 'normal' how have some of those traits! I personally watched how my son interacted at playground and nursery and realised that all the children have quirks at that age (lots of really bossy girls!). By Primary 1, it became evident that he understood the school interactions less than other children. However, he was a 'nice boy and never bothered the teacher too much, so she admitted that she tended to forget about him'. Basically the school nurse was my saviour, she realised that he had difficulty hopping (he has hypermobile joints)and he was referred to the occupational therapy team, this lead to a referral to psychologist. Intially, I was put down as over mumsy (I explained too many things to my son - the school blamed me!). The psychologist was my ally, he realised what was happening and expalined the situation to the school from then on the school have been much better. He has specialist help with motor skills, language (social stories) and reading. I hope this very brief summary helps.

    Hi, my daughter was born with a dislocated knee. Which could be clicked back into the correct position, which would click back out on it's own accord. Further checks were done, to find she had ddh. She wore a plaster cast from 1 day old, for a week,for the dislocated knee. And then wore a pelvic harness for 6 weeks, for the ddh. She is 18 months now, and has no problems what so ever. You wouldn't even know Thanks to the doctors at the Queens Medical Centre in Nottingham. I am currently expecting again, and this baby will checked thoroughly at birth, as it is hereditory. Local midwives, which totale over 60 years experience, had not seen a dislocated knee on new born before. It turns out, that this condition is 1 in 100,000 babies. And the QMC in nottingham has only ever dealt with 3 cases, including Adele's.





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    Carol re: your post may 2010 Have you ever had him tested for fragile x. Hypermobility (floppy joints) and the difficulty he has with social situations may make it a possibility





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    my daughter was 2 when i was told she had a dislocated hip shes now in a hip splint until shes 4 and i think it should be highlighted as a lot more children have got DDH. so i will be watching it for sure





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    hi my daughter is 13 years old she tiptoes walks sinces laerning i have had her at doctors many times.they said she needs to learn to walk properly.but in the last year her joints were the toes join swell i have had her back at doctors they sat pain killers and rest.i





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    hi my daughter is 13 years old she tiptoes walks sinces laerning i have had her at doctors many times.they said she needs to learn to walk properly.but in the last year her joints were the toes join swell i have had her back at doctors they sat pain killers and rest.i





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    When my son was 18mths old he had 3 warts growing on his hands and now aged 5 he has those 3 plus one has started growing on his leg. I took him to see the GP who said there was nothing he could do as they are growing on joints, and to allow the virus to clear up. My son is now getting bullied not by kids but by parents not allowing their kids to play with my son. Im now heartbroken for him and dont know what else to do.... Any suggestions please





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    I had a wart on my hand as a child,Do not let any moisture on it,Because if it does get moist it will expand. I suggest getting a bit of lavender,rub it on the wart and stick on sellotape. Or rub banana skin on it and again use sellotape. I would also like to add that you should tell the headteacher about the parents doing that because that is clearly alienation. Trust me I should know it happened to me.

    My Son is 9, he had MC approx 2 years on his hand and forehead, after the doctors advice to leave them and they will eventually go within 2 years I looked into Thuja. This worked after taking this for 2 tubes 3 times a day and disappeared completely. He now has them back on his stomach and both inside of his elbow joints, the thuja doesn't seem to be working the same on these,so I have now tried the banana skin, as this worked on a wart on his foot many years ago, but the MC is now looking red and aggressive. I have stopped this for tonight as Iam not sure if this is a good sign or not. Any suggestions?





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    My daughter had surgery at 13 months fora dislocated hip. I am grateful to the programme for highlighting the problem of late diagosis, as it happens all too often. I do feel that the programme failed to mention anything about success rates, and that children have to have years of xrays to ensure that no further surgery is needed. Also, the emotional trauma of seeing your baby stuck in a hip spica cast is heart breaking!





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    my daughter is almost 14 and started with what looks like eczema about 2 years ago. doctor gave her emolient creams & anti histimines. it clears slightly on face then returns with a vengeance & looks like bad sunburn on eyelids & cheeks. Joints on arms & neck affected, sometimes scabs on head, lips. Really uncomfortably & psychological at that age & its not improving. Rasp blood test negative so doc says shes not allergic to anything? we stopped her swimming at school as that makes it unbearable. Any ideas would be great as lost confidence in our doctor.





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    My daughter was diagnosed at birth and then dischsrged as being ok after all. It wasn't until she was 22 months and had been walking for over 6 months on a totally dislocated hip that we realised. By then of course it was too late and she had to have major surgery resulting in her being in a cast from her chest to her ankles for 3 months and being unable to walk for more than 4 months. She is now recovering but will not be perfect until she's at least 9 years old. Early detection is the difference between surgery and no surgery. It traumatised us as a family.





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    My daughter was nearly 2 when she was diagnosed with 1 totally dislocated hip and the other was abnormal. She is now 5 and has undergone 6 operations and is due to have surgery again this summer. Her new born & 6-8 wk check were NAD (nothing abnormal detected)despite her showing classic signs of the condition from very early on. The current screening programme gives parents a false sense of security. Doctors should be explaining to parents what the signs are to look for and to seek medical advice if they are concerned without delay.





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    HI MY 3 YEAR OLD GIRL HAS HAD A PROBLEM FOR WELL SINCE SHE CAN WALK WE HAVE BEEN TOLD THAT SHE HAS HIPS+PERSISTENT FEMORAL OUTEVERSION AND SHE IS A TOE WALKER THOUGHT TO BE FROM TIGHT CALF MUSCILS BUT HAD PHYSIO AND STILL TOE WALKS SHE FALLS OVER ALOT AND HER KNEES GO OUT SHE AKES ALOT NO ONE KNOW WHATS UP AND IT WORRYS US AS SHE IS ONLY 3 IS THERE ANYTING WE CAN DO TO HELP HER PLEASE HELP ................. I WAS WATCHING THE BOY WITH THE DISLOCATED HIP AND A FEW THING SOUNDED LIKE HER BUT SHE GOT HER HIP TEST WHEN A BABY BUT NOT SINCE HELPPPPPPPPPPPPPPPPP THINGS LIKE THE DOOR BOUNSER MY GIRL WAS ALL WAYS ON A TILT AND ONE LEG SHORTER IDK I NEED HELP





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    Go to your GP and ask for a referal to Orthopedics if you do not already see them and then insist on an xray of her hips. It's always better to be safe and have the xray, one way or the other you will know, otherwise you will go out of your mind with worry. ;)

    My daughter was born with hip dysplasia, it was spotted hours after her birth so she was referred to the orthopaedic clinic at our local hospital. After an ultrasound it was determined both of her hips were dislocated and so needed to be fitted with a harness to keep her legs in position for about 3-4 months. After fort-nightly checks at this clinic over a period of 18months she was discharged from the clinic with the all clear. Now almost 4 years old she has recently been complaining of her hips and tummy hurting. Im just wondering if this was normal or if i need to take her to the GP to get it checked out?





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    With her history I would get it checked out.

    my daughter was diagnosed with DDH at birth by our midwife, she was then refered to a peadeatric orthopeadic surgeon who on examination could not detect the dislocation but as a precaution sent her for a scan which showed not one but both hips where dislocated. After having all these examinations done she was put in a pavlic harness at the age of 13 weeks she is now 26 weeks and is still in the harness she has had another scan and it shows the right hip is now in place and the left is a little shallow so hopefully this will be the extent of the treatment she will need, what concerns me with this condition is how easily it is missed especially knowing the younger the diagnosis the better the result after treatment.





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    Why is a documentary on DDH been shown on a programme about "Embarrassing Bodies"????? I took my daughter for her 9 month check with the HV, all was fine until she asked to measure my baby, that's when she said that she had one leg longer than the other, I asked what this meant and the HV said "don't worry, it can be corrected by wearing double nappies, she might have a dislocated hip". Obviously I was worried sick, there was a problem with my little girl, I then saw the GP who referred my to a consultant. Luckily we got to see him within a week of seeing the GP. An x-ray confirmed she had DDH. I am now waiting for her to have an operation followed by 4 months in plaster, she will be 11 months and 3 weeks when she has her op. I am SO UPSET and ANGRY that because of NHS failings my daughter and our family has to go through this trauma. I AM NOT EMBBARRASSED ABOUT DDH.





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    Lesley agree. The only person who should be embarrassed are the "Trusts" that have sloppy or no clear policies with failsafes. Lets hope that when NIPE roll out the new programme that all PCTs including Drs have to follow strict protocol INCLUDING accredited training in performing the hip check and that babies with risk factors are automatically offered an urgent Ultrasounc (risk factors - Breech post 36 week irrespective of mode of deliver and family history (parent, sibling)

    my little girl was found to have left ddh at a few days old. she wore a harness for 12 weeks which failed and then had both a closed and open reduction of hip at 4 months both of which failed. she is awaiting a pelvic osteotomy which her surgeon wants to do when she is 18 months (she is now 7 months). the waiting is horrendous, so difficult to put it all to the back of your mind. she is now trying to crawl/walk and spend every day just wishing for a miricle to happen and it to all be better. glad it is getting some media attention as people just think a dislocated hip is a minor problem. hope it will stop people staring at babies in hip spicas!!





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    Hi Emma, My little girl went was diagnosed with DDH at 6 weeks old. Hers was caused by being breech all pregnancy too, and was bilateral (both sides) with neither socket formed and both completely dislocated. She wore a Pavlik for 7 weeks from 6 weeks old and had no improvement. At age 4 months she did 2 weeks in traction (not common here in Australia), and then had a closed reduction. She wore a hip spica for 12 weeks, and then a dbb (type of brace) for a further 18 weeks. She came out of that a week before her birthday. Overall she has been in some form of brace/cast for almost 10 of her first 12 months of life! She is doing really well now, although still cannot crawl, stand or walk, but will get there. I hope that your journey is a smooth one.

    Things have changed so much for the better. I was born in 1941. I think I may have had my hips dislocated when I was born and it went un-noticed. I could never sit cross legged, turn summersaults or jump vaulting horses, and my gym teachers, some of whom taught academic subjects, made my life hell. I could never ever walk far, but I could cycle 150 miles in a day without any trouble when I was a teenager. I was x-rayed after being knocked off my bike at 16 and diagnosed with the arthrytic hips of a 75 year old. There was nothing to be done then and I soldiered on for 50 years until I ground to a halt. I have now had two total hip replacements and I've thrown away my sticks, I can walk 10 miles and cycle 50.





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    I'm 17 and going to university next year. I have had eczema my whole life but the past 3 years it has become awful and unmanageable. It used to be limited to my arm and leg joints, but now its spread to the rest of my arms and legs, neck, chest and torso. It's such a hassle and a stress and I have looked into so many things. I found that Salcura DermaSpray Gentle soothed the skin and stopped the itching, but it didn't help the eczema go away in the long run. I use aqueous cream on my face which works and keeps it clear, and a strong natural moisturiser on my body. Honestly, I can't say how much I had eczema, its so restricting, especially when I'll be moving out next year. But I'm not going to let it stop me from going out and having a good time, I'll just have to wear long sleeves and tights to make myself feel comfortable! Eczema is such a pain!





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    Help for you and many others in the same boat is at hand with the new behavioural approach to atopic eczema: please see www.atopicskindisease.com asap! While the clinic-based programme is slowly becoming available, a self-help programme is available now for everyone like you, with plenty of support and tips online. There is no need to live a restricted life - discover how to live without eczema using The Combined Approach. It is a life-changer!

    I was also diagnosed with CDH as a baby but was luckily diagnosed within the first week! I would like to mention that even with great care as a child, I too have suffered as an adult. I had to have an operation on my left knee at 18 as I had damaged the cartlidge due to the extra weight carried on this knee. I am now 28 and waiting to see my consultant to see if I have arthritis. I have had swelling of the joints for the last year and often cannot lift my leg off the floor to get dressed but I get by. Like Lucy I think this condition has given me strength of character and have never let it get me down. To give some good news I have managed to carry a child and gave birth without any major complications and thankfully my Son was given a full bill of health. I would like to encourage parents of children with CDH to get in touch with the charity STEPS they offered my parents great support.

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