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    Cerebral Palsy

    Cerebral Palsy isn't a specific illness, but rather a general term used by doctors to refer to a set of neurological conditions, which result in movement and co-ordination disorders, caused by damage to the brain. Read more →

  • Epilepsy

    Epilepsy

    Epilepsy is a long-term condition which causes people to have what are known as fits, attacks, convulsions, or seizures. Read more →

    I was diagnosed with epilepsy when i was 7 and im now 15 i wouldnt be worried as i once looked at a photo and didnt remember a fire place i dont remember much stuff that happened in the 5 years after finding out what was wrong i came off the medicine that saved my life a year ago i feel good about myself now (What medicine are u taking and do u know what caused the epilepsy )

    Hi im 15 and I was diagnosed with epilepsy at the age of 11 but since my last fit about a year or two ago I feel like I have forgotten simple things like my age. Should I be worried?





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    I was diagnosed with epilepsy when i was 7 and im now 15 i wouldnt be worried as i once looked at a photo and didnt remember a fire place i dont remember much stuff that happened in the 5 years after finding out what was wrong i came off the medicine that saved my life a year ago i feel good about myself now (What medicine are u taking and do u know what caused the epilepsy )

    hi my name is jenny and i have epilepsy, and was diagnoised with grAnd mal sejuires when i was 14 and currently on sodium valpourate and clonazepam. I only ever had 5 sejuires, in my early teen years. am now nearly 27 and taking the meds, but am i still epileptic??? please help. my memory is awful, tired all the time, i struggle with the demands of my 4 year old son. lathergic. help needed.





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    My son just turned 4 we have been under the hospital for about a year now and hes had eeg's and mri scans and still found no brain problems but he has been diagnosed with focal epilepsy due t the electricity being produced further in the brain, When he has a seizure his eyes roll leg and arm stiffen and he's a bit twitchy sometimes he can do 10 in a day then nothing for a few weeks. He is now taking a anti seizure drug called Carbamazephine and they are at bay so go back and pester your gp for cosultant referal! My son is also very fit and healthy in every other way. Good luck x

    Hello Natalie Thank you kindly for your caring comments it nice to hear that you are confident with your Epilepsy the one thing that we hope for Bailey is that he can be happy and have a life in the future. Bailey has Lennox Gastaut Syndrome of Epilepsy a hard syndrome to control with drugs, so unfortunately it will be hard for Bailey as there is no medical findings why Bailey has Epilepsy, although at the moment he is having a good time since having a Vagal Nerve Stimulator inserted in his chest it has reduced the number of small seizures and the recovery from the Tonic Clonic seizure is quick, we just hope it stays or improves this way. Thank you again for leaving a positive comment it made us smile to think that Bailey will be happy even if he has to live with Epilepsy. Kind Regards Rachel, Craig, Bailey & Ross

    Hi I am a mum of my wonderful son who has a rare epilepsy syndrome called 'Dravet Syndrome'. he will be 7 soon and had very prolonged seizures from 4 months old, develped normally till the age of 3 then regressed loosing all his speech, understanding and fine & gross motor skills, although 1 year later he did regain his gross motor skills but nothing else. Seizure still hard to control used most available drugs, keto diet and currenlty using a VNS implant. I know that my sons epilepsy type is rare but do know must epilepsy's are easy to control on just one medication. Good Luck to all having to experience this condition





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    my 3 year old son has severe epilepsy and has all the seizures that bailey has, he has been diagnosed with lennox gastaut syndrome epilepsy and so far has had no seizure control with any medications, he can also have 100's of seizures a day. his are caused by a condition called tuberous sclerosis complex which means he has tumours on his brain and brain damage meaning he's also severely disabled. this video really touched my heart and i always find it helps me feel less alone with what life is like.





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    I run a page on facebook for the parents of children with epilepsy, and am SO glad to see this here!





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    My name is Danielle and I had been diagnosed with Epilepsy when I was 10. Now I'm 13. I still have major episodes and I'm kind of scared of what would it be like when I get older. Can anybody give me some idea's of how to calm down a little.





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    I live with a mum who has very mild epilepsy she has tablets for it I have to know the recovery presition and to know my dads mobile of by heart he used to work nights but he stopped just in case she has a fit I don't mind it i look after my mum if she needs it if not then she looks after her self!





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    I was diagnosed with Epilepsy when i was 2 years old, im now 17 and i very rarely have an epileptic fit. I'm still on my medication because im doing my AS levels. I hope the little boy in the video manages to grow out of his fits and have a normal life.





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    Just watched a repeat of EB in Australia and saw your story, my daughter 21yo was diagnosed with Epilepsy almost 6 years ago and our stories are very similar, we are also looking into VNS, pleased to see previous posts that VNS has helped (even a little)... thanks for doing the show, don't feel quite so 'alone' xx





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    My son is 10 years old and wets the bed. This only started after he was Diagnosed with Epilepsy at the age of 3 we have tried everything from waking him t go to the toilet, changing his diet, medication, alarms you name it we have tried it. He is very self conscious of this and will not go to friends houses for sleep overs and it's the same when we go on holiday. He seems to think its his fault bu I know it's not. Don't know what else we can do to help him.





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    Had an appointment with my neurologist who i see regarding the removal of a brain tumour in 2009 and who i also see for epilepsy. He told me i show signs of autistic "traits" but im not autistic. I scored 32. Does that sound about right? Kat





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    i was diagnoesd with epilepsy when i was aged 6.I did nt understand it at first but i had my first tonic clonic seizure when i was 12. But this year and last year have been diffcult i have had 2 to 3 years and i have been in hospital plus my tablets have nt been working well. i am going through depression and bad anixety





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    Im 17 and i was diagnosed with Epilepsy when I was 6months old due to meningitis. Like the little boy in the video i had to wear a helmet and was having over 100 seizures a day till i was 12. i just wanted to wish the family the best of luck with finding the right medication and hope that as he gets older his seizures calm down like mine did. I'll never be able to drive, but im happy i can finally have a life :)





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    Hello Natalie Thank you kindly for your caring comments it nice to hear that you are confident with your Epilepsy the one thing that we hope for Bailey is that he can be happy and have a life in the future. Bailey has Lennox Gastaut Syndrome of Epilepsy a hard syndrome to control with drugs, so unfortunately it will be hard for Bailey as there is no medical findings why Bailey has Epilepsy, although at the moment he is having a good time since having a Vagal Nerve Stimulator inserted in his chest it has reduced the number of small seizures and the recovery from the Tonic Clonic seizure is quick, we just hope it stays or improves this way. Thank you again for leaving a positive comment it made us smile to think that Bailey will be happy even if he has to live with Epilepsy. Kind Regards Rachel, Craig, Bailey & Ross

    hi im 14,i really hope this young wee boy really does get the right medication to help control these seizures,i to have epilipsy ,hopefull this young boy grows out of them....

    Hi there, this is a message for Baileys parents.My son has ESES which is a rare form of Epilepsy and he ended up with over a 100 seizures day and 85% of the night also.His doctor put him on Rivotril and from the next day his seizures dramatically reduced and soon after he had none during the day.He also takes other meds but its Rivotril that changed his life.Hope this info helps.Best of luck I know how hard it is.





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    Dear Emer and Hanna We thank you whole heartily for the information you have given us and its so nice to know we are not alone in the way we live our lives and our children. We had filmed soooo much on the day and wanted to bring across so many more points such as how the siblings are affected, the side effects of medications, the numerous hospital visits, the global delays, co ordination, schooling and transport to school, claiming benefits, respite the list is endless as you already know we could do with having and hour on Epilepsy alone, we hope the few minutes of filming gave people and insight a least. Take Care Rachel, Craig, Bailey & Ross.

    hi another message for bailey and his parents.my nephew is two and suffes with drop attacks and tonic clonic seizures he also wears a helmet and very often has really bad falls as a result he usually has alot of black eyes.he will never be able to talk as of now and onwards he is brain damaged.i would also like to say his mother is amazing in what she does for him his brother too.bailey you your brother and your parents do amazing.good luck

    I got 38 in the Autism test, and have tried these tests before, always scoring very high like this. I've always felt I didn't fit, am agorophobic, obsessive/compulsive, multi-phobic,very creative, not at all practical. Would there be any reason or advantage to getting a doctor to diagnose me? In a way, it makes me feel better but in another way it increases my sense of alienation. Two of my three sons also score high, the third doesn't have much contact with us. My sons didn't have the childhood immunisations because of worries about high incidence of epilepsy in the family, but two of them developed it anyway.





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    Dear Emer and Hanna We thank you whole heartily for the information you have given us and its so nice to know we are not alone in the way we live our lives and our children. We had filmed soooo much on the day and wanted to bring across so many more points such as how the siblings are affected, the side effects of medications, the numerous hospital visits, the global delays, co ordination, schooling and transport to school, claiming benefits, respite the list is endless as you already know we could do with having and hour on Epilepsy alone, we hope the few minutes of filming gave people and insight a least. Take Care Rachel, Craig, Bailey & Ross.

    hi for 7 months now my daughter has been having a seizure once every month, she is still being investigated for epilepsy but i am a concerned mother who only wants to know whats going on, thing is with my daughter is that each seizure she has had is different from the one she has had before, she used to have them in her sleep for a few minutes, she had a major one that lasted 20 mins and was given medicine to stop the seizure, shes had ones where just her leg shakes, ones where she knows its coming and can talk through it.. it will happen once a month and now on that day she will have more to come, shes had 3 eeg's and is not getting any results :( can anyone give any advice as i have been trying to look up this condition on my own as doctors say my daughter may just be a mystery (which does not help me 1 bit) many thanks a concerned mother





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    My son was diagnosed with epilepsy 18 months ago at age 2½ years. His seizures were resistant to any kind of medication and some medication actually increased the number of seizures especially the drop seizures. He has been on the ketogenic diet for 15 months and has had periods of 3-4 weeks of being seizure free or having between just 2-8 drops a day. He is only on the ketogenic diet and does not take any medication at all. The Matthews Friends website (http://www.matthewsfriends.org)is dedicated entirely to the ketogenic diet and is packed full of information and help. My son is now living a normal life just like any other 4 year old, thanks to the ketogenic diet and his 'magic' food.





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    I had a similar situation. I was tested for epilepsy after my mum brought concerns about my concentration to our GP, but nothing was discovered. Unfortunately for me at the time ASD wasn't widely known, so I wasn't screened for any such disorders. But now I'm a university student, and after a seminar about autism and Asperger's, I noticed a lot of symptoms were directly relatable to myself. Iv taken the AQ test 3 times and scored 40+ each time, so I'm in the process of seeking medical diagnosis so I can get help (especially with social situations and coping with my uni work). Assuming I have a form of Asperger's Syndrome (which is very much like autism but without the severe lack of intelligence deficit) it would explain a lot about why I am like I am, and help those around me to understand me too. My advice, read up on ASD (which is autistic spectrum disorder) and if you feel that you fit the criteria there or about for any of the disorders, and that getting a diagnosis could help you in any way, see your GP. I stumbled upon knowing about Asperger's and autism, but if Id known sooner, my life may have been a little easier. Either way, you'll be fine, but no need to struggle with anything if help is available.

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