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  • Spina Bifida

    Spina Bifida is a birth defect that affects the spine and nervous system. Read more →

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    Incontinence

    Faecal incontinence means children involuntarily open their bowels and soil themselves, often without being aware it's happening, and this can occur several times a day. Read more →

    my daughter is nearly 4 and has been referred to an incontinence clinic, so maybe you should go back to your gp and ask. she was referred by the community paedatrician.

    My son had all similar symptoms as your son, he eventually had tests done and has had surgery. He was diagnosed with iritible bowel disease, i felt relieved to know what was finally wrong. I was then referred to a dietician and she prescribed opti fibre it does two jobs, it softens the stools and makes him more regular and it also stops him having faecal overflow, stopping soiling and embarrassing accidents. I think opti fibre is a miracle and buscopan is great pain relief. My son lives a very active life participating in every sport, best of luck to you and your son.

    hi my daughter is 13 she has a incontinence proplem shes had this for a couple of years now she has seen a consultant and doctors shes had tablets for infections witch she get reguler they can seem too come up with any thing she is now gettibg really sore and broken skin all over her bottom and between her legs can you please help mum





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    my 4 year old never makes it to the toilet to poo unless she happens to also need a wee. She says she can't get there quickly enough and so she crosses her legs and tries to withold which obvioulsy makes it worse in long run. I've identified through trial and error that she does much heallthier stools when not eating wheat but its taken so long to identify this that she has been on a range of laxitives over 2 years and most of them just made her go more frequently and as she passes 2-3 substantial stools a day I really don't see that she can be constipated. All the fuss and GPs, cranial osteopaths & kineseaologists & healh visitors has left her really anxious that she won't sort this out for school. She is very advanced in her learning and so most of her friends are already at school and they comment on it. I'm worried that when she starts school this year it could become a massive issue for her. My GP won't give me a referal for a dietician or an incontinence nurse as she is under 5 and so it is just put down to toilet training. All comments/ advice greatfully recieved.





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    my daughter is nearly 4 and has been referred to an incontinence clinic, so maybe you should go back to your gp and ask. she was referred by the community paedatrician.

    I don't know whether this will help, but I wanted to say don't give up-keep nagging the doctors, health visitors etc until you get help. My daughter was the same as a baby when I weaned her from breastmilk onto formula milk-she would only go every 4 days and was in agony on the 4th day. She is now 6years old and has been through witholding and then encopresis and now still soils virtually daily-it's been a nightmare. I'd suggest if your baby is on formula milk, try changing it-my son was atopic (prone to allergies and excema/asthma) and I was advised to change his milk to a 'more gentle' one and it helped and I wish someone had suggested changing my daughter's milk too. I know people would nowadays frown on giving children fruit juice or sugared water (as my daughters 2 Nans advised me to do and I wish I had listened to them) but honestly I would personally do ANYTHING to avoid having a child with encopresis.(I was actually told by the health visitors not to even give her extra water, which now I can't believe I listened to- I understand now they would advise it to be ok to do so). My daugher was also given lactolose and tried this for a bit, but we only saw any progress once we got onto Movicol , so I would push for that as soon as your baby is old enough, if he's not better by then. You could look at the website of E.R.I.C which is a charity which deals with incontinence in children (of whatever sort) -they also have a phone no you can ring and they are really helpful and encouraging and also someone to speak to when it gets you down.

    yes i understand what you have been going through. my son is 10 years old and has had faecal impaction for 5/6 years now, we have had him on movicol, seen so many child clinics been told he needs more fiber, try to keep a diary of accidents and how many times he goes, does it hurt how big and all that rubbish but still the problem is still there we are getting nowhere fast, it has totaly ruined his social life and gets so upset by the problem, will someone please help us to do something to sort this out once and for all.

    ive just been reading about bed wetting, my daughter is 6yrs 5mths not only does she wet the bed but she also wets herself during the day every day, this started at the age of 3 and we are at the end of our tether. Shes been seeing an incontinence nurse for over 2 yrs but she just tells us to do star charts but its a waste of time can anyone suggest anything?





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    I did that when I was younger- every day and my mum made me wear tights and she said that they were specialand I couldn't wee in them. It worked! Good luck x

    My daughter is 6yrs 3mths and I guess you would call me lucky as she is dry at night but not during the day. I can't seem to understand it and the doctors don't either. I have tried everything, special underwear/tights, star charts and nothing works. I thought toilet training my younger daughter would help, but no! I have sympathy for you suzanne and also welcome any suggestions.

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    hi i have a nearly 5 year old daughter with same problem, we see a specialist at the incontinence clinic and go through hell with the school.. tryed everything like you have and the relapses keep coming back. how is your daughter now ? emma

    my daughter is 6, been to the incontinence clinc for over a year, been on fibre diets, movicol, senna, had a bladder scan and we have had no positive results so far, its lowered her self confidence, ashamed, makes every day life for us as a family harder etc. i know how frustrated you are as a mum

    This actually sounds to me like autism. ASD ( Autism spectrum disorder)presents very differently in girls than in boys. Go to Autism UK and get some information to arm yourself then take her to the GP and ask for her to be tested. Be prepared for a long wait though as it can take months for the appt to come through. My 9yr old daughter was actually being councelled for her incontinence with CAMHS when they diagnosed her with ASD.

    I am in the same boat, my son is 9, it happened at school in his bed, he is on 2 movicol a day and he still has "accidents" it costs me a fortune in clothes and washing. It took years for me to get anywhere an I only got help through a friend the doctors completely ignored me and refused to help, again nothing medically wrong. They never checked his bowls just took bloods. I'm at my wits end. If he doesn't poo the bed he wets it every night. He won't help himself it's like pulling a stubborn horse and now his incontinence nurse is saying she can't do anymore he has to help himself :( there must be more they an do?!

    my daughter is 6yrs old been attending the hosi for 3yrs they tld me shes gt cronic constipation & pt her on movicol which has nt helped then they pt her on octifibre nw on senacot & still nt wrking she can go 5 days without a poo & the poor thing goes on the toilet herself 2 try way no luck..dnt knw what else 2 do..shes supposed 2 get an incontinence nurse out 4 support bt shes seen her since christmas (as shes 2 busy) bt its nt good enough a need help gud u give me advice....thnks





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    My son is five years old and has attended paediatrician for over two years now with no success whatsoever. He has had movicol,senna and lactulose,lentil soup,prune muffins,you name it he has had it! At the moment we are waiting for a referral for a child psychologist(been waiting since Dec 2011). He will sit on the toilet but as the poo just runs out of him, nothing goes into the toilet so he doesn't seem to connect with why he is sitting on the loo!! Also we were told that children are not prescribed suppositories even though when the problem first occurred our son got one,which worked,so it was a yea for one professional and a nae for another. Help please.

    my daughter is 6, been to the incontinence clinc for over a year, been on fibre diets, movicol, senna, had a bladder scan and we have had no positive results so far, its lowered her self confidence, ashamed, makes every day life for us as a family harder etc. i know how frustrated you are as a mum

    My daughter is 17 in highschool and has incontinence with her bowls and blatter. She will have an accident about 4 times a week in her pants. I go to the doctors and everything but nothing is helping. She's been wetting the bed lately. I have been making her wear goodnites ( night time protective underwear ) so she doesn't keep messing up her sheets. She pooped her pants at her friends house when the were finishing dinner. She's been wearing protective durring the day depending on how many accidents. Please help her and I are both tired of cleaning sheets and getting stains out





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    Our grandaughter has just been diagnosed with NID neuronal intestinal dysplasia which means that she has some cells in her intestinal tract but they don,t work very well. What I,ve read about it is that she will always have problems with pooing and like your daughter will have accidents due to this. You might want to mention this to your doctor but you need to have a biopsy done to confirm it. Hope this helps you

    In reply to Dawn. My daughter is 8 and she wets her knickers every time she does a hearty laugh, I am going to take her to the doctors next week to see if anything can be done. It just seems more of an issue now she is getting a bit older, she goes to friends houses for tea and I am just sat at home worrying that she will wet herself when there, and 99% of the time she does. I have researched on the internet and think it may be something called giggle incontinence, did you hear anything about that on your visits to the doctors? I have thought about getting my daughter to wear tena ladies too, to take a bit of the worry away. I am sorry to hear you are having problems with it too and hope you get it sorted out.





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    My daughter has been suffering from chronic constipation since I had to stop breast feeding when she was 2 weeks old. She is now 20 months old and has been taking Lactulose & sometimes liquid glycerin suppositories (Babylax) since 3 months old. With 5ml of Lactulose per day she may do a poo with straining and some liquid poo followed by a stool every 3 days. With 10ml, 1 every day or so. She has a text book diet as per advice, with extra fruit, veg, wholemeal & water. She enjoys eating. I'm worried that having constipation over such a long period of time, including faecal impaction, may mean she has lost sensation in & around the anus. She has certainly developed psychological issues around doing a poo and doesn't even want to try, making things worse. It's so hard to see her walking around with bent knees all day or even avoiding movement and lying down. When she gets the urge, she goes flushed and sweats, her nappies are marked, but there are no stools. Her tummy is always bloated and hard. Should I put the GP under pressure to refer us to a Pediatric Gastroenterologist and test for underlying conditions such as allergenic foods, Hirschrung's disease, anorectal malformation or spinal cord abnormalities?





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    I can sympathise with you as my eldest son is 6 years old and is constantly wetting himself during the night, even when I am waking him twice during the night which is tiring for both of us and he also often wets himself during the day. I am worried that something is wrong and also concerned that the smell during the day could cause him problems at school. You have mentioned an incontinence nurse, was this a referal from your own GP? Someone has suggested I now see my GP to ask for blood tests in order to haver everything checked out, have you done this and if so, did it tell you anything? The only answers I got from my Health Visitor a couple of years ago were that he 'would grow out of it' and that they could possibly look at a mat with an alarm which wakes him up when he wets himself but I explained that I wanted to stop that happening so I thought that it was pointless! I also get so many people fobbing me off by saying 'it happens with so many boys for a lot longer' I am desperate for answers.

    My son is now 12 and is still soiling his pants once to twice a day. This has been going on his whole life. We have to been to many specialists. They say it all relates to constipation. Was on parachoc, movicol all those things for years and nothing worked. Used to give him enemas as a little boy, which wasnt pleasant!! He was checked by a neurologist for spina bifida, no idea why. been to incontinence clinics, childrens hospitals, naturapaths, all any one can tell me is its constipation. It happens at school, hes just learnt to except the fact and its not right. He is going to high school next year and I want this fixed. Years ago I was told his sphincta was probably stretched by being constipated for such a long time, but it has never got better, he says he doest feel it. Its embarrasing for him and frustrating, I need someones help!! What can I do?? At the moment were just living day by day dealing with it cause nothing works. Is there some kind of operation to fix it. Hes 12 I dont want him to spend his whole life like this, It cant be healthy, what do I do?????





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    try to get your GP to refer you to hospital, and ask for botox to be injected into his sphincter,(they do it at leicester RI) it should relax his muscles and therefore allow him to pass faeces more easily n painfree, my 5 year old grandson has had this done and YES IT WORKS!! however it doesnt last very long, he has had this done 3 times in all and also needs to ave GA for manual evacuations,he has now been put on a waiting list to have a "MACE" procedure again at leicester RI. this is where his appendix is taken to the outside of his abdomen and twice daily he will have to sit on the toilet for approx 20 mins while a liquid is passed through a catheter to wash out his bowel, sounds very daunting but the hole in his abdomen would be the size of a catheter and weve been informed that it is 85% effective and is also reversable. good luck i sympathise with you and your son.

    there IS AN OPERATION!!!! mt 5 year old grandson has had botox injected into his sphincter under GA, however it doesnt last very long, and hes had to have it done 3 times and also manual evacuations under GA, he is now on a waiting list for a MACE procedure ( wort googleing) it will sound very daunting but its not that bad really, theres 85% sucess rate on this op, we have been assured that the gastro nurses do not let the 15% get away with it not working!!! they do both types of surgery at Leicester royal infirmary, i must add the surgeons are excellent there and the nurses are second to none, very welcomming and although they are run of their feet they ALWAYS have time for you and your child, good luck

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    I know exactly what your going through. My daughter is 7 years old, was dry day and night until she was 4. Now not a day or night goes by when she hasnt wet. She goes through at least 50 pairs of knickers a week. We have been referred to the incontinence nurse after repeatedly going back to the doctors. I have been given an alarm to put on her bed at night, it's like a sheet you lay on the bed with a lead attached to an alarm box. When she wets, the alarm should go off and wake her up. Unfortuantly the alarm tends to go off every time she moves, wet or not which has just resulted in an extemely tired child. The nurse also told us that dark drinks (blackcurrant, coke etc) aggravate the bladder so to cut them out. It's been a 2 months since the nurse's visit, and in all honesty nothing is making a difference. The thing that bugs me is they are only concerned with the night wetting and not the day wetting! It's the day wetting that im struggling with the most - i just dont know what to do and the next review is in September! You are not alone

    my daughter has cracked it! reward charts etc did not work at all. after seeing a doctor at the incontinence clinic, i was told to up the movical to completely clear her out. the doctor showed daisy some pictures of poo and pictures of the process of the the poo (eating food and it going through the digestive system). at home my eldest daughter made a flap book showing a girl eating, it going to her tummy,the food breaking down until the girl sits on the potty and does a poo and is smiling after and shows everyone.There isn't any books that actually show the poo coming out and going into a toilet so i think this helped.I also took her to the science museum where there is a toilet that flushes showing a "poo". I took box of toys into the toilet and after lunch i would sit in there with her for about half an hour playing with the toys while she sat on the toilet, we talked about pushing it out and that you have to let it all out( she used to let tiny bits out at a time so that i could be constant).I removed the potty as before this i was letting her take it into other rooms. I don't know what made her suddenly "click" with it but i hope that this might help someone because i really understand what it's like

    my daughter aged nearly 4 has had soiling problems since before potty training. I have been to the gp and seen 2 consultants at hospitals. The gp was helpful, she prescribed the movical and referred me, but i found the consultants a waste of time. one said that she suffered from mild constipation and was not concerned and to keep on trying with the potty training, the other made me feel useless by telling me i wasn't trying enough and to make her sit on the potty or toilet for a long time. i had pushed to be referred both times with referrals being lost. my daughter can soil constantly throughout the day and when on movical it gets even more runny but the same amount comes out each day and even if i sit her on potty or toilet every hour she will still have soiled in her knickers or pullups. i have pushed for an xray and a scan to make sure there is no physical problems and am waiting for her to have these, but they didnt want to give these, surely these children should be examined to make sure there isn't any underlining problems? i am now waiting for an appointment for her to be seen at the incontinence clinic. the problem i also have is that as she is in part time nursery, i put her in pullups but find she will wee in them as well as soil.i don't want to confuse her but when in knickers she will just sit in it and it leaks through onto her clothes, this i can handle at home but i don't think its fair on her or the others if she leaves marks on chairs etc.





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    hi my son is nearly 4 and he is having the same problems he also gets a sore bum sometimes, he been to pediatricians and they took poo samples that all, they wouldn't do any test which ive asked for they said he will grow out of it but he gets really upset if we ask him to go to the toilet for a poo, they made me feel the same and i don't know what to do anymore please let me know if u get anywhere thanks u

    my daughter has cracked it! reward charts etc did not work at all. after seeing a doctor at the incontinence clinic, i was told to up the movical to completely clear her out. the doctor showed daisy some pictures of poo and pictures of the process of the the poo (eating food and it going through the digestive system). at home my eldest daughter made a flap book showing a girl eating, it going to her tummy,the food breaking down until the girl sits on the potty and does a poo and is smiling after and shows everyone.There isn't any books that actually show the poo coming out and going into a toilet so i think this helped.I also took her to the science museum where there is a toilet that flushes showing a "poo". I took box of toys into the toilet and after lunch i would sit in there with her for about half an hour playing with the toys while she sat on the toilet, we talked about pushing it out and that you have to let it all out( she used to let tiny bits out at a time so that i could be constant).I removed the potty as before this i was letting her take it into other rooms. I don't know what made her suddenly "click" with it but i hope that this might help someone because i really understand what it's like

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    Please get him a 2nd opinion! My son's "Constipation" started at 22 months, he is now 14. The ONLY treatment Drs want to give is Movical, its a very lazy and cheap alternative to actually investigating the condition properly! Problem is if just one DR says it "Constipation", in my experience any subsequent doctors follow the first diagnosis to avoid under-mining the initial doctors assessment. By now my son would have been on Movical (A VERY strong Laxative) for 12 years! I was told he would grow out of it and that he was deliberately 'with-holding' to get my attention ... here we are 14 years later, same problem so Hogwash in my view. Your son's life must be pretty miserable as an incontinent teenager, it is for my son. I don't know if your son is receiving any treatment(s) but we are looking into a 'new' treatment where the anus is botoxed: sounds horrendous but it does make some sense .. it allow the waste to come out, preventing further damage to the colon and as the botox wears off (over 3 months)the child gradually regains control of the anus muscle(?) and can re-learn how to poo. In reality it means 6-8 weeks of total incontinence and 4 to 6 weeks where the child will start to regain sensation/control. I figured this procedure is only possible if it could be done at the beginning to July, endure the worst over the school holidays with a 'break-through' by the start of the School term in September. I don't know if there is anyone (on here) who has agreed to this procedure for their child and had good results, but might be worth discussing with your GP?

    My daughter is 5 and we've been dealing with this for 2 years now. I am staggered that the medical profession doesn't seem to know how to deal with this and find a treatment solution that works as I come across so many children with this problem. How much research in the UK is actually going into this? All the study groups I find online are in the US so you can't join. Has anyone tried the Clean Kid Manual method? - the manual is on sale in the US but it's priced $75. I'm getting desperate to sort this out before dd starts getting teased at school but this seems very pricey and for all I know could be a con. It's a familiar tale. It started at potty training, dd did great with the wees, didn't get the hang of poos the same way, used to do a big proper poo in her pants once a day (what I'd give to go back to that stage!), easy to sort out, drop it down the loo, quick bum wipe and knicker wash and that was that. And then she started holding it in. I blame me & her dad for giving her a bit of a hard time, because she was nearly 4 by then and was actually quite capable of doing a poo in the potty if strongly persuaded. And then she got really constipated, and then got impacted, about a year ago, and we've had the year from hell since then. She was put on lactulose and sennacot for months, which resulted in thin ribbon like poos which she had no hope of controlling, many times a day, and then there's been health visitors, the GP, a paediatrician, and the community nursing team. Back in about February she was finally put on the Movicol clean out regime, where we had to up the dose each day until she had diarrhoea for 2 days and then start cutting it down until we reached a maintenance dose where she was having one proper BM a day. We've never got there. Sometimes we've got reasonably close, where she's going a couple of times a day and managed to keep her pants clean, but she has a lot of relapses where we have to regroup and try a different tack with it. We're in one at the moment, she's pooing in her pants 4 or 5 times a day, mostly after school, but she comes home with dried on poo in her pants so I don't know when she's doing it at school. She's not constipated, it's not leakage fluid, it's small soft-ish poos which over the course of her 4 or 5 accidents, add up to the one decent BM we'd like to aim for. We're told that it can take months for a colon to shrink back after it's been stretched by faecal impaction but that was a year ago. We've done sticker charts, sweeties for poos in the toilet, punishments (dolls in cupboard) on occasion if we think she's taking the mickey & can't be bothered, once after a particulrly bad time her favourite doll ended up going in the bin (she didn't poo her pants for a couple of weeks after that), bubble blowing on toilet, reading stories on toilet, playing game apps on my mobile phone on the toilet, saying you can watch TV/play on the computer/ have your fruit juice ice lolly/ etc once you've been on the toilet, we've done encouragement, praise, we've done criticism at times, we've done getting her to take responsibility for herself by helping to wash her dirty knickers, we've done stories about sneaky poo, we've done giving her a bit more movicol, we've done giving her a bit less movicol, we do several toilet times a day after meals or snacks to get her into the routine of it, we do good diet & lots of fluids, we've done choosing special knickers and keeping them for when she keeps her pants clean, you name it, we do it or we've done it. And it's all worked with varying degrees of success..... for about 5 minutes. I know my daughter really well but with this I'm foxed. I swither wildly between thinking she can help it but just can't be bothered (or why would throwing her doll away make her keep clean for 2 weeks??) and thinking I can't believe I gave her grief for it when surely she mustn't be able to help it or she wouldn't do it. We're a bit at the end of our tether with it, scraping poo of a bottom over & over and washing poo out of pants is no fun but I desperately just want to sort this out for her sake, she doesn't deserve to have this problem. Who was the answer???





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    My son is 6. We have done just about all that you have done. You name - we have tried it. We had a sticker chart for a while at the end of which he actually got a brand new bike. It didnt last though. I am also at the end of my tether and I do not like giving my little boy laxitives every day for years on end.

    hi i have a nearly 5 year old daughter with same problem, we see a specialist at the incontinence clinic and go through hell with the school.. tryed everything like you have and the relapses keep coming back. how is your daughter now ? emma

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