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    Hello,my daughter has been having problem with her hipsince she was one year old I took her for arthrogram when she was four the doctor said nerves are still grow in one leg and her hip bone is not in the socket nothing was done to fixed it my daughter can't walk 100 yards she will be complaining of hip pain and can't walk and her appointment this August I was told she is got mild hip fixed flexion deformity and was told to be having physio which I think she doesn't need this is putting a big strain on me because I still use pushchair for a five year old child because she can't walk far can you advise me on what to do please thank you.





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    Hi I'm 15 and "5,3" I have recovered from a eating disorder and have gained too much weight I'm am between 12-13 stone and it sucks I have a lot of stretch marks and they are some of the worst I have seen they cover my tummy and I've started to get them higher up on my front as well I have them on my belly button ,back hips boobs,bum arms and thighs it embarrasses me so much because I'm used to being quite thin then all od a sudden I gained all the weight and before people are like they are there because of the weight well I know but I can't loose the weight because I can't exercise properly because I have a problem with one of my knees where it comes out of the socket and goes back in so I just can't shift god damn any thing so any advise for a girl ?. Thanks.





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    Incorrect Information - Developmental Dysplasia of the hip is NEVER diagnosed before birth. Also many children, who are late diagnosed, can require much more complex surgery then featured on this video; Snapping and realigning the femur, using bone from the pelvis to create a new socket, pins and plates (sometimes permanent). They may up with a limp and leg length discrepancy if the femur requirs Some require further surgery during their childhood and multiple hip replacements commencing in their 20's - This is unacceptable when you appreciate that there is a 95% chance of 100% cure if detected and treated in the first 12 weeks of a babies. When caught early is described at a "clinicians dream". My daughter is 3 and we have been in out of hospital since 14 months. We have a wonderful surgeon at Great Ormond Street but with very late diagnoses nobody can work miracles and we are waiting to see how her hip socket grafts develop. We have (almost) come to terms with what the future may be for our daughter but do not accept that the sloppy & patchy screening programme in this country is acceptable. Thanks to STEPS charity for all their advice and support. I had no where else to turn and do not know how I would have coped with them and the families I have met through the very active forum.





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    My two year old sucks her thumb and has done since before she was born (shown on scan pics). As much as it offers her comfort we have noticed that the MTP joint is now effected. The thumb can now bend 90 degrees more than a normal thumb. Is this something that needs addressing sooner rather than later? Will it cause future problems with the joint??





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    My daughter was diagnosed with DDH at nine months. Her leg was out of the socket and the ball joint was not there. She spent 8 months in plaster then had a operation. Today she is 14 and 2 weeks ago we were told she as got a shallow hip problem and needs an high risk operation. we have been told that they need to brake her hip leaving a gap putting plates and pins to hold it together. Weve been told she can suffer with nerve damage and lots of other problems. Has anyone had this, we are trying to find out because we are not sure if this operation will help our daughter in the future and do we take that risk





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    My daughter was diagnosed with DDH when she was 2 years 7 months and when looking back and remembering her x-ray her left hip was severely dislocated (nowhere near the hip socket. The consultant then performed her first operation one month after her initial appointment/diagnosis, she was in cast for 13 weeks and then in a harness for a further 4 weeks. Alix was in severe pain and discomfort and her walking was very bad. due to this her consultant performed a further operation in January 2009 where he rebuilt her hip socket (as it was not forming at all) and cut her femur to hopefully bring it in line with her right leg, Alix was in cast for a further 8 weeks and was left with a plate in her hip for a further year, the plate was removed in March of this year - however i have to say that the physio's and consultant have been really good and very informative, both myself and her dad and other people who know her feel that she walked better prior to any operation being done as she now walks with a permanent limp which is very visible, her left leg veers out to the left as she goes through the day and she swings her hips when she is getting tired. As Alix was diagnosed late we had no choice but to let them go ahead with the operation as you are told that they will end up with arthritis in their teenage years - this is not what we wanted. Alix is 5 1/2 years old nearly and is now asking questions like "when will i be able to walk properly mummy" how can we answer this, as we have been told that there is a high possibility that a further operation on her right hip is likely as the right hip is not secure. Alix now complains on both her hips aching and sore and knows herself that she can't keep up with children her own age or younger. I am at a loss and you feel that you should be able to do more than you are but you can't. There is no one to back you or support you unless you are constant contact with the consultant/physio. I agree with you all that more support is needed and more information relating to this condition.





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    I was bitten by a tick while walking The West Highland Way. I believe it to be in the nymph stage. The tick was not engorged but around the bite was a red rash about 2-3" in circumference. The tick was removed(maybe the head was still in) and the area washed and treated with a topical antibiotic. The redness seemed to clear up leaving a small dark purple spot where I had been bitten. Symptoms were headaches and sore throat. As we were traveling I did not pay it much mind. Upon returning to Canada I noticed the area around the tick bite began to blister I went to a doctor who gave me doxycycline for 7 days. It was finally starting to clear. I have had a test for lymes done which came back negative although in the past couple of weeks after the antibiotics I have had joint pain and heart palpatations. I returned to my doc who does not seem to think I need any further treatment. I normally do not have headaches, joint pain or any heart problems. Any ideas what I should do from here? The symptoms seem to be subsiding but these came on after the antibiotics.





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    Curious to know how you got on. I suspect you may have caught recurring fever which is in the Lyme s disease family. It to is caught from tick bites.

    My daughter has DDH, it wasn't picked up at her first check but was detected slightly by a GP at her 8 week check- we were asked to ocme back in 2 weeks and check again. A different doctor said 2 weeks later she def needed reffering as she also had the uneven creases. At 6 monthss old she saw a consultant who x rayed and said it was totally out of the socket and she needed surgery. She ended up woth an open reduction with her tendons cut and in spica cast for 8 months. SHe has been out of plaster 6 months and we have been told now that her socket is too shallow and we are waiting for a pelvic oesteotomy followed by a further 3 months in cast. We like alot of other families have found the STEPS wesite a life line an invaluable help.There is very little help else where.These childern have to go through so much when DDH isn't diagnosed early enough. There need to be more tests.My little girl is almost 2 and cannot walk and will be firther delayed due to needing more surgery.





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    My daughter was checked prior to leaving hospital at 3 days old & they said that I should have her x-rayed at 3 months old as her hip test showec a sign of dislocation.the health visitor did the Barlow test at 3 months old & said no xray necessary & everything was ok.This was back in 1999.My daughter began walking at 14 months old & I noticed she tended to drag her left leg.It was when she was in the bath I noticed her creases were not equal & my gut instinct was to take her to the GP.I had to convince the GP I was not a neurotic new mum & eventually he referred her for an x-ray & low & behold her hip ball joint had not fully formed ,it looked tiny & her socket joint was shallow .At about 18 months old she had the frog hip spica op, I am not too sure if it was a closed reduction or if any surgery was involved as when the hip spica came off after 3 months ,there didn't seem to be any scar,I think it might have been manipulation of the hip to get it in place. Then another Hip spica with her legs in the A frame with the broom handle near her feet was done,a further 3 months in that.That was a nightmare getting her in & out of the car,I had to buy a twin pram & extend my career break for at least 6 months during all of this ,as the nurseries just did not have the equipment to accomodate her! I had to make my own adaptations to the car seat straps & a lot of the normal functions & play were in a baby nest & beanbags.i have to say her upper body strength was phenomenal & she managed to walk in the A frame hip spica ,even up & down the stairs! she just took it all in her stride ,well hypothetically anyway. After the hip spica was removed ,the specialist said her hip joint had improved when he did the follow up xray at about 24 months old. So I returned to work.She had developed a funny gait with her knees in a knock knee's position & her feet turned in & she tended to walk on the insides of her feet ,so I took her for follow up tests at about 5 & 7. I was not happy with the follow up checks as they did not even x-ray her! All I was told was,all children walk like that & I should be happy that she could walk & she would grow out of it. Friends told me I should demand a second opinion as clearly she could not be considered "normal" with the way she was walking. She has a tendency to fall over & it has affected her in school on sports day & in PE, she never gets picked for any teams ,because of her lack of speed etc. So at 11 years old I tok her again to the GP & this time I showed them her shoes, which were severly worn down on the insides ,basically if you put the shoes on the floor & look at the heels there is a valley in the shape of an upside down v ,between the two.So we had to wait 5 months to see a paedeiatric orthopeadic specialist & this week she did get an xray which showed her thigh bone as twisted in , & she has intoeing & flat feet .no wonder she was complaining of pains in her knees on walks as I was trying to train her into walking with her feet straight! The specialist said Never do that ,as her knnes could collapse! There is nothing much they can do & the specialist joked & said , unless you want me to break her legs & reset them ! Orthotic insoles wont be of much help, as her problem is from the upper limb ,her twisted thighs & not just her arches in her feet.On top of this she has hypermobility in her legs & can twist her leg at a 90 degree angle from a sitting position , she can do some strange thing with her feet ,turning her feet in a position you would put shoes in a box, one foot pointing forwards & the other one in the opposite direction. I am just worried that her condition will cause the early onset of osteoarthiritis & I am at a loss as to what I can do next . i could kick myself for putting my faith in the health visitor in the first place ,when clearly they were not qualified to do their job! If I had known sooner, maybe this could have all been rectified with a pevlik harness.





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    I'm having the same sort of problem with my 6 year old son. For a couple of months he was complaining that his legs hurt at bedtime and at first i thought he was just doing it to stay up later! I eventually took him to the doctor just to put his mind at rest. He was diagnosed with hypermobility. He has been fitted with insoles due to the state of his feet. He has the same problem with running etc and lack of speed. The annoying thing is there's nothing they can really do for him. He suffers pain in his feet, legs and hips but they can only try and manage the condition, not cure it.

    I was diagnosed at birth, so in that respect I was lucky. But I had no treatment and told that it would sort itself out when I started to walk - it did not. However, despite it being a very bad shallow hip socket on my right side I was absolutely fine all through childhood and my teens. I did a lot of sport, dancing, very active.... Then in my early 20's the pain set in. I had a pelvic osteotomy (PAO) to correct the shallow socket and that eliminated the pain for about 4 years but unfortunately the osteoarthritis had set in. I had that same hip resurfaced earlier this year at age 31 and it has already changed my life - my hip feels like it did back in my teenage years! But its likely that won't be the end of the journey as revision surgery is likely to be in my future. I do think screening from birth is absolutely necessary, but I'm not certain whether all cases can be treated early on which will negate the requirement for further surgery. But screening is vital to having a choice! I was 'lucky' enough to have that choice. I'm also lucky to not be living pain free due to amazing medical treatment.





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    Hi! i've got a problem very similar to jacks if not the same! My foreskin is like its joint together and when erect i can't see the head. i'm 17 years old and i have never seen the head of my penis. i've gone all of these years thinking its normal, i mean i'm not in pain with it and i can urinate and masturbate fine. any ideas or solutions to suggest???





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    There is a huge amount of information on the internet about this. I would do some research. This link may help http://boysunderattack.com/penis.html Take care dude

    Precisely, if you have reached 17 and have no issues, why worry now? Well - most men can pull back their foreskins so perhaps it's time for you but do not force it OK. When you are in a bath or shower, the warm water will soften the foreskin. Try and pull it back a little bit and forward again. Do it when hard or soft, whichever seems to work. Always pull it forward again. Wash off any goo (smegma) that maybe lurking on your penis with water only. Keep up the stretching exercises for a few months and eventually you should see a difference. It will be worth it. Take care and good luck

    My daughter has DDH and is about to go for major surgery on her femur and pelvis in 2 days time, followed by a further 4 months in plaster! Bearing in mind she is only 2 and 1/2 and has spent a year of her life in plaster already! Again due to NHS failings, no proper screening and missed diagnosis! We have not yet dealt with the anger we feel as a result of this as the treatment our daughter and scarly thousands of other children are going through is so invasive and intense that all our energy and focus goes on trying to remain possaitive and trust the NHS to deal with this 'PREVENTABLE' treatment they are putting my daughter through! Hopefully this show will raise awareness of the condition and STEPS charity.





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    only just watched video of oscar's story i'm thrilled he's doing so well my 4yr old daughter claire had ddp but was only found when she was 2 yrs old she walked very well had no problems with that but had a slight limp and a large clump of loose skin on her groin we took her to temple street hosp in dublin she was under the care of dr connolly after her fist x ray we saw the extent of her ddp she had no left hip socket at all her left leg was 2 inches shorter than her right after 6 weeks wait we started the process of making it right which most of you know is very heart breakig instead of just one op to correct it she had 4 different ones first to cut her tendons and ligaments, second to pop leg back in, third to build a new socket called a salter cut then fourth to remove pins she was then free to move and had to build up her confidence to walk again which took 2 months but was worth every hard moment we endured during the 8 months throughout all of this can i say i was heartbroken for my baby girl and cried almost every night but claire was an absolute star it never bothered her that she couldn't walk she just got on with it took all the ops and xrays like a pro and always had a smile on her face she is now running dancing and to my horror jumping like nothing ever happened we will be attending hosp till she is in her teens but it's a very small price to pay for such great moments i wish all babies and parents who go through this all the best the end certainly justifies the means good luck xxxxx

    I am confused, got bitten in July, swelled up in August, suffering severe fatigue, joint and muscle pain, cramps, dry eyes, painful neck and wrists. Doctors said its nothing, finally got to see a private rheumatologist who suggested could be Lyme disease , he has now telephoned and says test shows I might have been exposed to the virus, ! Have I got it or not? Now being referred to hospital for infectious diseases, scared as I have been I'll for quite a while now, at the moment I can't go t work. Any advice?





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    Hi, my daughter was diagnosed with hip dysplacia 3 weeks ago at 8 weeks old. Apparently her hip socket is only 20% developed, this is a result of her being breech throughout all of my pregnancy. She is now wearing a pavlick harness 24/7. She doesn't like it all and it's heart breaking to see her in it. We had a follow up scan yesterday after 3 weeks but it showed no improvement. I'm keen to hear if anyone else has experience of the harness and their thoughts on how effective it is? Many thanks





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    Hi i have had 2 out of 3 of my daughters treated in the Pavlik and both have been treated successfuly after being in the harness for 13 weeks. what I would say is after a couple of weeks in the harness they knew it was working. The girls settle down after a few weeks in it. but hated the weekly checks at the hospital as they didnt like being messed about in the harness. Hope you have successful treatment.

    Hi Emma, My little girl went was diagnosed with DDH at 6 weeks old. Hers was caused by being breech all pregnancy too, and was bilateral (both sides) with neither socket formed and both completely dislocated. She wore a Pavlik for 7 weeks from 6 weeks old and had no improvement. At age 4 months she did 2 weeks in traction (not common here in Australia), and then had a closed reduction. She wore a hip spica for 12 weeks, and then a dbb (type of brace) for a further 18 weeks. She came out of that a week before her birthday. Overall she has been in some form of brace/cast for almost 10 of her first 12 months of life! She is doing really well now, although still cannot crawl, stand or walk, but will get there. I hope that your journey is a smooth one.

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    My daughter was checked at birth, 6 weeks old and it was only at her 7 month check it was discovered she had clicking of the hip. We were referred to the hospital and were actually dismissed saying there was nothing wrong as they couldn't get her hip to click. Mu health visitor fought for 3 months to get any xray and at 11 months they did and my daughter had no right hip socket at all!!!! This condition isn't taken serious enough and I don't think the checks at birth are adequate and more and more cases are slipping through the net. It's good to see a program that is higlighting the problem.





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    I was diagnosed with left and right DDH as a newborn and spent almost a year in harnesses and casts from when I was 6 months old. I am now nearly 18 and stuffer from hip problems. I have been very sporty having been a ballet dancer, horse rider and swimmer. My left hip is concerning me as it aches when I sit, stand and walk. I have been going to the Physo on and off for the past 2 years about this pain and it has eased with treatment of the muscles around it but lately this isn't working. my hip often clicks and I have to pop my ball out of the socket to ease the pain. I have also been forced to give up ballet. Should I be concerned the my DDH has reacurred? Is this possible? And more importantly, will this effect me in later life with having children?





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    Hi Emma, My little girl went was diagnosed with DDH at 6 weeks old. Hers was caused by being breech all pregnancy too, and was bilateral (both sides) with neither socket formed and both completely dislocated. She wore a Pavlik for 7 weeks from 6 weeks old and had no improvement. At age 4 months she did 2 weeks in traction (not common here in Australia), and then had a closed reduction. She wore a hip spica for 12 weeks, and then a dbb (type of brace) for a further 18 weeks. She came out of that a week before her birthday. Overall she has been in some form of brace/cast for almost 10 of her first 12 months of life! She is doing really well now, although still cannot crawl, stand or walk, but will get there. I hope that your journey is a smooth one.

    son diagnosed aged 2 1/2, ddh both sides, 3rd appointment at doctors got him an xray (although he walked liked charlie chaplin), doctor thought was just short tendon, referred to GOSH, had pelvic ostetomies both sides, 3 months in plaster, six years later left hip socket not growing, going back in (aged 10) for left side to have another osteotomy and pelvic graft, no plaster this time, but up to 2 months non weight bearing and up to a year on crutches, with possibly further surgery! awareness could have prevented this situation.





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    Following on from my previous comment on 1/1/13. We ended up phoning NHS direct at 1am on 2/1/13 as my son's issue with his left leg worsed. He could not move, sit, stand or walk and was in a lot of pain. They advised us to go to out of hours GP. To cut long story short they were worried that he may have an infection in hip joint which would mean emergency surgery. Had Xrays and blood tests which were all clear. Had ultrasound which showed fluid on his hip. Alarm bells! Then had MRI scan under general anasthetic to see where fluid coming from and rule out infection. Lots of investigation from bone specialists etc, the outcome was this. He had 'benign reactive arthritis' which was brought on by his flu virus. Google it. It's quite common. A temporary thing that rights itself after a period of time. All to do with immune system. My son has fully recovered and is walking fine. Going for check up in few weeks. Hope this helps. Kelly.

    I was glad to see DDH on the show but feel it was'glossed over'. My daughter was finally diagnosed at 18 months after months of been fobbed off by 3 GPs and 2 consultants who said she had a deformed leg-even after i pointed out the extra crease. she had a closed reduction 2 years ago but we found out last week that her socket is still too shallow and she will now have to have a pelvic osteotomy and go back into cast at the age of 4. had she been properly screened and had any of her consultants(she was in SCABU for 6 weeks-delivered at 32 weeks after developing Twin to twin transfusion)listened to my concerns and not dismissed me as an over anxious mother this could all have turned out very differently. DDH is not simply 'cured' as was implied in the progamme and should be followed up in future programmes.





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    I was born with CDH in both hips, as a baby i had been in the harness had 4 operations been on traction for 6 months and was in plaster cast for 2 years. I was under a surgen until the age if 18. How ever when i had my first child at 22 i started getting pains again so went to my gp and was refered to the same surgen who operated on me as a child. He then refered me to some one else who refered me to some one else who is now looking to opearate. He has contacted a surgen from canada who is a top specialist to ask more advice. My right hip is past it and at 25 i can have a hip replacement but it is not recomended as i will need another one in about ten years. I also have artritus caused by my hip condition, and because of my spine not being straight due to my hips i also now have a bad back and have just been for a mri scan at the nuro department. I take a high number of pain killers and anti inflametries every day i have restricted movement in my hip joint and i struggle with day to day things :( luckly my partner and family n friends are a real help. Both of my daughters have also been born with this too my youngest is in the pavlic harness but thank god her hip joints are forming and my eldest daughters hips only needed double nappies :D!





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