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    Cerebral Palsy

    Cerebral Palsy isn't a specific illness, but rather a general term used by doctors to refer to a set of neurological conditions, which result in movement and co-ordination disorders, caused by damage to the brain. Read more →

  • Spina Bifida

    Spina Bifida is a birth defect that affects the spine and nervous system. Read more →

    we have just found out that our grandson has flat head syndrom and it could cause learning difficulties is this true,





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    my daughter who is 10 has always had a painful left leg and it turns in. if she runs she is screaming in pain or has a long walk it really restricts her and she has had some nasty trips as she is very clumsy we have tried to get her help we tried insoles physio and have seen several doctors round about the time we noticed her intoing about 2 half she started having speech problems and she could do the alphabet and count to twenty but after that she couldnt and has learning difficulties and memory loss please help her as she gets very down about it





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    My baby who is born with a unilateral club foot has started the potential treatment and has gone tru d 6wks cast method at 7mnths and is now in hs boots n bars,now d physio told us that cos of this stage of crawling n learning how to walk,he shan't be restrained n boots shd be takenn off wen he wants to play aft which they can be worn back when he is done playing,now others say 23hrs at a stretch for d 1st 3mnths n boots b taken off only 1hr.i really am getting confused right now .what do I do.cos I want to be sure am on the right track.fingers crossed for a positive ans.





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    hi i need some advice my baby is 7 months old, and has breathing difficulties. he chokes when he lies flat, he very tight chested and wheezie all the time, seems to get ocasional have panick atacks when he is coughing. and worst cases goes blue around the mouth. everybody i meet says he sounds like he has a bad chest infection. he has seen so many different dr in these 7 months, they all say the same he is eating and most of the time well in himself so they arn't worried. send me home, i have got an inhaler for him but it does nothing. i feel like im going crazy i cant sleep im up with him all the time incase he chokes. what can i do?? what is it? any advice would be great.





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    my 4 year old never makes it to the toilet to poo unless she happens to also need a wee. She says she can't get there quickly enough and so she crosses her legs and tries to withold which obvioulsy makes it worse in long run. I've identified through trial and error that she does much heallthier stools when not eating wheat but its taken so long to identify this that she has been on a range of laxitives over 2 years and most of them just made her go more frequently and as she passes 2-3 substantial stools a day I really don't see that she can be constipated. All the fuss and GPs, cranial osteopaths & kineseaologists & healh visitors has left her really anxious that she won't sort this out for school. She is very advanced in her learning and so most of her friends are already at school and they comment on it. I'm worried that when she starts school this year it could become a massive issue for her. My GP won't give me a referal for a dietician or an incontinence nurse as she is under 5 and so it is just put down to toilet training. All comments/ advice greatfully recieved.





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    my daughter is nearly 4 and has been referred to an incontinence clinic, so maybe you should go back to your gp and ask. she was referred by the community paedatrician.

    Hi I am going through exactly the same thing with my son, now 12 but he has been like this since he was a toddler. We have just been refered to a Gastroentirologist recently. He was on meds for reflux but that didn't seem to make it go completely.There is a condition called eosonophilic oesophogitis where certain trigger foods cause a delayed reaction in kids sometimes days after.They tend to have issues with eating, trouble swallowing, vomiting, coughing while eating, having to drink between mouthfuls are some of the issues. My son described it as it is like he has a door in his throat and sometimes it is open and the food goes down ok, and sometimes it shuts and the food gets stuck.He then has to induce vomitng to get the food out.He has also been running off to the loo like this since he was 4. He gets a ' look' on his face and stops eating and you can tell what is coming next. The Dts thought it might be a hiatus hernia but 2 bariums showed nothing untoward wrong.The only way to diagnose eosonophilic oesophogitis is with an endoscopy and biopsies which look for more than 50 white blood cells present in the osophogus which normally should not be there.These are caused by consuming food/ foods which the child is allergic to, but because the reaction is a delayed one it is harder to detect.The cells inflame the throat causing scarring and this causes the dysphagia ( trouble swallowing) This is what I am trying to get the Drs to check for woth my son as he is typically atopic ( allergic ) . My son has year round rhinitis, mouth breathes and many allergies including pets, dust, tree and grass pollens, foods and asthma since he was 1. Also in young children failure to thrive or being small for age, sleep difficulties, tummy aches and lots of ear/ throat infections are very common as well as what you mentioned. I hope you get some answers and us too ! It's been a long road !

    Hi, Just wanted to say I have a 9 year old with learning difficulties and we've tried everything. We tried the patches but she got a skin reaction to it do we stopped. We also did the op to turn her saliva ducts round (transposition of sub-mandibular ducts). It seemed to work for a while but soon the dribbling came back so I think it was a bit of a waste of time. The doc did say in the end that it's a "learned behaviour" so we now have to teach her how to swallow, wipe her mouth and close her mouth all of which she finds difficult (..having learning difficulties!) but of course we won't give up. It's just a bit like 1 step forward 5 steps back!! Just before summer she had 10 baby teeth taken out (..ouch!) & now that they are coming through again you can imagine what the drooling is like!! I'm no GP or speech therapist but I sure have seen a few over the years & the best advice I got from them was about teaching your child how to close and wipe their mouth and remind them to swallow. Also they need to breathe through their nose not their mouth like my daughter who is a habitual mouth breather as she seems to get lots of colds!! Good luck & I hope you found this useful.

    I had a score of 26 (I think, i've already forgoten) I'm 15 and when I was younger I had learning difficulties, but some say I no longer have them, but a few of the things i do every day in my day to day life do remind others of autism fetures. I do have troubles in some things that others say are dead easy. I have noticed that some things about me that should be fine are getting to go down hill. My memory for one, as you might tell from up there ^ at the top. Does this mean anything important? Anyone know?





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    Yes bipolar can be a comorbid of autism as can any learning difficulties or social interaction problems. If you think you have problems seek you doctors advice do not include it as a after thought go specific with this.your records may indicate problems such as any misdiagnosis for something else.doctors may be aware of a little about ASD but their knowledge may not be up to your level if you look into it in detail.if you understand what is being said then you may be autistic probably are on some level.

    I'm also fourteen and took the test several times, I have diagnosed with dislexia, disbraxia and a couple of other learning difficulties includeing apergers autisum. But it doesn't affect me really, some people think I'm quite unsensiour and compulsive. But I'm fine most of the time or pretend to feel fine. So there's no need to worry about it because its not going to change you is it? Or make a big difference to your life. I know some someone who had mild Tourette's and didn't find out until he was 16. So there's nothing to worry about

    i would just like to comment that my son who is now 12 has been having problems going to the toilet ever since he came out of nappies, although he has severe learning difficulties aswell we still do believe that there is a conection. we have been going back and fo the hospital since he was 5 yrs old was always told to keep giving him his movicol and things will get better.....i am still waiting? he has got to the age now where he is getting embarrised. after an appointment again last week i have asked to have his insides x-rayed and finally they are going to x-ray my son. there doesnt seem to be much help when it comes to children who suffer from this condition and there must be an underlying cause or condition which is causing these children to be suffering in this way? more is needed to be done in order to help these children instead of just CONSTIPATION being used. it does get very frustrating especially when you are asking for help...





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    Just found this site and although my daughter is 24 so much of what has been said rings true for us! My daughter is autistic and has learning difficulties so poo and wee has always been an issue for us but over the last 2 years it has become more of a problem - she refuses to use the toilet and goes when asleep or in the bath (when she is relaxed) she takes movical but getting the correct dose is problomatic - we are waiting to hear from our community nurse and be assessed by a psychiatrist - lets hope that they can make some suggestions to help us - all I would say is make sure you keep on top of the problem as just leaving it will not help in the long term Doctors and school nurses can help but need to know how severe he problem is to take you seriously





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    I am aware of a boy in Hull who had alot of difficulties getting a diagnosis .He was suicidal and excluded from School. He is back at School and hopefully things will get better for him.A diagnosis will help to get access to support .if you think he has ASD then I would have thought that was a good basis for a diagnosis to be made . It is difficult as lot of symptoms can relate to other difficulties though the Spectrum of Disorder includes a range of these difficulties. A Internet search should provide a list of Autistic groups in your area and support that they can provide. You could get a bit of publicity going and start your own support group with other local parents. even my own town has a Autistic drop in centre. Good luck .

    I am 16 and i had the operation in febuary of 2009. I was diagnosed idopathic scoliosis and it occured in later teenager years, Unlike how channel four stated that it is only genetic. I would like to say that i did not have any breathing difficulties as i was still able to do everyday activites. I would like to know whether the breathing difficulties were based souly upon the scoliosis that Jade suffered or if there was a different problem as i had a 65 degree curve and a large twist. Fortunatly my operation went smoothly and i have just past my year aniversary and everything is fine with an subtle thin scar down my back. Thank you to my doctor. And i am willing to talk to people that are preparing for an operation.





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    i have a 13 year old son who has sevier learning difficulties his mental age is of a 7 year old he goes to a special needs school and has language therapy, as a baby he didnt start talking until the age of 4 walking at 3 didnt crawl at all was always behind at school isnt intrested in going out playing football or any sort of activity hes very demanding and only wants what he wants cant make changes or do things differently. hes very aggressive towards me and his sisters. hes only interested in computer games and drawings. i have a friend who has 3 autistic children and my son behaves just the same way they do. when he was about 2 i took him to the doctors because of his behaviour the doctor reassured me on a number of ocassions that he was fine and a boy, boys are lazy he will catch up then when he started school the teachers told me he was this way due to not having the child enviroment not interacting with enough children playing games ect.. Then at primary school he became sufficiently behind with all work reading writing playing talking and we decided to send him to a special needs school but his behaviour now is getting worse by the day hes at the teenage years but doesnt understand whats going on and why hes becoming more and more hard work and a lot harder to handle i just want to know if their is any way i could get him tested or help him i feel as if ive been going around in circles from doctor to doctor and schools to schools





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    Im 25 and most of my family have some kind of learning dissabilty and I scored 45. Guess I can add myself to our Autism list. :S





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    Hi my name is Anthony I am 22 I had adhd when I was younger but I stopped taking my dexanphetamines when i was about 13 when i started smoking I have quit now and I sometimes have difficulties with concentrating on things and I also have quite bad mood swings I get very andry very quickly what should I do?





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    My daughter, who is currently 6, just about to turn 7..has been walking on her tip toes since the age of 3, when I spotted it. Through the whole process of getting her referred, it was very lengthy...she has had physio, plaster casts on both of her legs, she has had carbon fibre bottom boots (both of which she learned she could walk on her tiptoes with difficulty), with this not working, we then moved to Botox injections in both calves..which did work slightly but not to the extend we hoped....she has been wearing AFO splints to keep her feet in a rigid position, for 6-7 hours a day at school, she has learned how to tip toe with these, as her AFO splints have an ankle joint in them, so now we are back to the boots, which have just been ordered. We have not received any diagnosis as to why she is doing this, she doesn't suffer from any condition, but has merely developed a habit that is becoming harder and harder to break. We have however been told that she seems to be very flexible, almost double jointed..so it could have been that her hips needed to be made rigid when she was learning to walk, hence locking her hips out and learning to walk by tip toe walking.....All I know is that we are going through shoes like nobody's business....she has full movement, so there isn't (luckily) for the moment any tendon shortening, and we have been given the exercises to look out for the signs of this, and that she is VERY clumsy when she tries to run normally, and trips quite a bit, its worrying all the same.





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    As wrote on top my son had surgery for this problem which has made him walk flat footed we hope we did the right thing he is active and play all sports

    my 12 year old daughter stomach rumbles when she isnt hungry. it makes a really loud noise and goes on for about 10 seconds somethimes what should i do as its affecting her learning because she says its ebarrasing because people can hear it because its so loud





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    I have done this before out of curiosity and always scored 43 yet today scored 46! This does not really surprise me as I have always felt very different to everyone else and have 3 children who all have a diagnosis of autism and although I manage to function without support I recognise many of the difficulties they have as things I have always struggled with myself but to a different degree. Will be very interested in the results of this test.





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    I scored 34 - I'm 46 and have only just made the connection between the social and personal difficulties I have had all my life and Asperger's Syndrome. I've already asked my GP to help me explore this further but it will take up to a year to even get an appointment with a psychologist. I want a diagnosis now! The relief that I could finally put a name and a reason to my lifelong symptoms is enormous and the wait is going to be excruciating! :(





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    I took the test and scored a 42. I am 27 years old, have been labeled as "Undiagnosed Learning Disabled" all my life and have a feeling that I am on the autism spectrum, most likely Aspergers. Currently I am looking into seeing a neurologist for further testing. It's likely that if the diagnosis of Aspergers or ASD had been available when I was younger I would have been diagnosed as a child.





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    Same thing here, with score 40. Except I have always been labelled as a "moron" and I am not looking for anything, it would only make things worse. I wold be labelled as "disabled" which would disqualify me from just about everything I could be good for.

    my 9 month old daughter always looks for hair on the carpet or tries to put my hair in her mouth when tired, i always take it off her but them she tries to pull strands out of my hair just to get some. at first i thoiugh she was just learning and most babies done this but now i have seen a pattern and it worrying that it will be the start of trichotillomania, please advise.





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    If your daughter is developing trichotillomaina, she should be constently tugging, playing, or messing with hair on her head, eyelashes or eyebrows. But if you are getting worried, go to the doctor, its nothing to be embarrest about, i know, i have it. if you start to see bald patches or hair missing, then visit your family doctor or GP.

    On tonights show (4/03/11) it said that "intelligence is not affected when someone has Cerebral Palsy". This is definitely not true. My 23 yr old son has Spastic Cerebral Palsy - Diplegia, he was born with it, and he also has significant Learning Disability.





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    Hi, i have a 7 year old daughter with alopecia and i am really interested in learning some more about this weft as my daughter would love to have it done, how permenent is it and how much do they cost? and where can we get it done!! we live in N Ireland. i would love it if someone could contact me and to answer my questions! thanks





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    Hello this weave when I had it done there was done by pulling the hair the individual does have through a meshthey place on your head and holding it in place with beads and then adding extensions round the sides, if there was no hair it would be attached with glue to the scalp.they cost around 1200 per peice and then you need to have fittings every 6 weeks which cost 60-70 an hour and can take up to 2 hours. With the question on how permanent the peice is it stays on for around 6 months and then comes Off to wash the scalp and see any growth

    I think my son has austum and has a lot of symptoms but I have told his school and his one one support has he has learning differfulites as well and his behind at school but making gd progress he flaps his hands and has do it since was baby anyway i want ur help can u help me to get him tested has i have been waiting and waiting but the people r just letting me down say they will but dont please just want to know either way .





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    hi sylvia my stepson has been living with me since he was three years old and he is eleven now it took me 8 years to get him tested because i knew that there was something not quite right about his behavour but i kept on pushing them in the end i asked my stepson doctor to get him a test done and he did and it came back that i was right a that my stepson has got autism a mother always knows better than other people so just kept pushing people to help you

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