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    hi, i am 13 and since i was born i have never been able to turn my wrists over, palm upwards. it really affects me and i wish it could get sorted by surgery or other. i think it has something to do with bones or joints, but i am too embarresed to speak to my parents or docters about it.





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    My daughter is 9.5 years old and also tip toe walks. Its not as noticeable when she wears shoes however when bear footed it is constant. The thing is she now walks funny and they kind of slap when she walks and she has these weird bony lumps. they kind look like bunions but are in the middle side of the foot, so look more like sticky out bones. I have too taken her to the doctor at 5 and was told shed grow out of it. Its frustrating because walking when bear footed looks really awkward fro her :/





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    All parents concerned about their child's walking are usually right to be concerned, since they know their child best. It's true many children will grow out of problems as they develop, but who are the ones that will, and who won't? - and that is the real question for parents and healthcare professionals. I would imagine there are few if any GP's that would put their hand up and say they were confident in assessing pathological paediatric gait patterns, so here's a big tip...If someone tells you your child 'will walk out it' ask them these questions "What is the pathological features of my child's gait?", "what functional limitations does my child have?" "what are the developmental milestones that will show my child is improving?" and if the person sitting in front of you cannot answer them you are talking to the wrong person. Seek an immediate referral to the paediatric physiotherapists with the input of a paediatric podiatrist for foot supports. From your brief descrption I would guess she has metatarsus adductus and this can be helped. With children it is always better to see them as young as possible (i.e. when you thin there is a problem).

    My granddaughter is 7.5. She lives out of town so I never realized the severity of her tiptoeing until the last year or so when we began to see each other more. She constantly tip toes and has now (in my opinion) altered her bones and muscles in her calves, ankle and entire foot. Her toes are spread apart, she stands with her legs seperated and feet pointed out, she complains of ankle pain late in the day. We try to remind her to walk "flat", and she gets very frustrated. Her parents have limited ins coverage, limited cash for copays and they live in a rural area with limited health facilities. What do you suggest?





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    Id suggest speaking to the school nurse and seeing what she suggests because thats who picked up my daughters walking up on tip toes but i didnt think it was a problem but have since been referred to physiotherapy and she is waiting for casts to be fitted to try and correct the problem.

    My daughter was born with 'a flat head' or Plagiocephaly. I did not realise the severity until she was 10 months old. There was no funding on the NHS for a correction helmet. They told me "It is not a life threatening condition just cosmetic." I was lucky enough to see a lady on the local news who was petitioning to government for NHS funding to treat children with this problem. With her help i found Ossur, technology in motion. They are based in Leeds. Treatment was started straight away. Although we were only able to use the helmet for a few months before the skull bones fused the results were, are, teriffic (she is now 5) I am so pleased we persued the treatment and would recommend anyone to contact Ossur for a consultation.

    Hi, they are young enough to maybe try a pillow specially designed for flat head syndrome (or plagiocephaly- google it you will find lots of products) and try to keep them off the back of they're heads as much as possible, lots of tummy time! My daughter has plagiocephaly and is 11 months old now, i've fought with my GP/ hospital for treatment as trying everything else has failed, but i am now going private (with a clinic called 'technology in motion'- who offer free advice/ assessment) as it hasnt improved... the nhs just dont recognise it as a serious condition (mentally to the child if not physical)and refuse any treatment.. Dont worry too much (easier said than done i know), i have been told that serious health issues only usually arise if the actual skull bones/plates have fused too early. I hope this helps a little :)

    my 2 year old daughter has recently been complaining of pain in her inner thigh bones. the first time she done this she got syuck on the floor because the pain was so bad that she couldnt move her legs. i had to lift her up n rub her leg for a little whil before she would even stand on it. it seems to be that the bones are suddenly becoming really stiff, like the bone is locking somehow. i have been thinking about going to the doctor but it seems to ease off and then return again. she is only 2 so wouldnt think that she should be experiencing pain in her bones. what could this be?





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    I have a misshapen head but am 17. My parents never did anything about it, probably because such treatments were unavailable. Am I too old to change?





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    Hi, I am 18 and have the same problem, though luckily it is the only the back of my head and I have seen worse. I'm wondering whether seeing a craniofacila specialist would help to get it treated but I don't know how I would do that.

    My 7 year old son suffers with misshapen ears. the top half of his ears are folded. It is now becoming an issue at school, due to peer pressure/ bullying. an you suggest anything that may help. Thanks x





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    my son is 4 his both his feet turn inwards took his drs at 1 said leave it it will correct itself took it bk at 2 to foot pedietrist they said leave it again took him bk at 4 cuz i wasnt happy nething changed and now he is scared of the drs cuz he has his injections!! the women we saw thou said he cud have insole didnt work thou now im thinking if his bones were still developing like the pedietrist said when he was 2 why did he give him insoled then?? maybe his foot wud of been ok now but i think at 4 he bones r alot harder and this will be hard to ever correct





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    I was very worried reading the following sentence: 'Dr Christian sends Bradley and his mum Hayley to see an orthotist who will fit Bradley with a helmet...it will mould those soft bones into the right shape.' I was very thrilled TV4 is raising awareness in this area as it has been neglected by the NHS but unfortunately it will cause a lot more mysteries. I already had a chat with a worried mum whose baby would need the helmet but she doesn't want to risk brain damage. The helmet IS NOT moulding the bones as far as I understand from Dr Blecher who is a leading researcher surgeon in Europe in this area and has been treating thousands of babies in the past 17 year.





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    hi i amm 13 and i am only 4.1 stone and think i am fat i dont care what i eat but i will not get dreesed in front of people becouse you can see quite a lot of my ribs and other bones





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    i'm 13 years old and only 6.7, my mum worries about my weight and says she doesnt like how skinny i am. you can see my bones and it's horrible, i always eat, but don't seem to put on any weight.





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    I am 12 and my parents are exactly the same I am 6.2

    I have the same thing but im 6 stone

    I have dark purple and red strech marks on the top of my thighs and up. I'm thirteen and as far as I'm aware I havn't grown massivly only about a couple of centermeters and I havn't put on much weight although I have become a lazy bones ;). Does anyone know how I get rid, how I prevent anymore and why they came in the first place???





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    I have strech mark's on the inner of my thigh there very purple and notiicble they go all the way down my leg I have them on my breast's,my hip's, the top of my bum, and I'm not even fat, I might be a little over weight prehap's but I'm not obese, I'm very self-consious I'm only 16

    Just to reassure everyone, my daughter ( now 4 and a half) had a helmet from the age of 8 months until 13 months. We went through Technology in Motion in Cardiff. The helmet did round out her head to a shape where only I notice it now. The hat never bothered her, although she did have 2 sores in the beginning. The only time she cried, due to the hat, was when we took it off her for good! Now almost 4 years on, she is a well developed, intelligent (already reading simple words), lively little girl. No harm done. My only thought now is that i should've done it earlier when i first found out about the hats. Having said that i haven't thought about it for the past 3 years until I saw the programme last night. My third child started to have a misshapen head within 2 weeks of birth, by 3 weeks I had ordered the sleepcurve mattress and that worked brilliantly for him. No hat needed. I wish you all the best on your journeys and hope this has reassured you about the longer term effects.





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    Hi im looking for an answer been doing research and i cant find nothing for sure i think im going to take my 9 yrs old daughter to the hospital i was cleaning her ear tonight and as i was looking in her ear to make sure it was all clean i seen something white in her ear and realized it is a cluster of bumps or bones im not sure cant really tell im freaking out can someone please tell me what they think this may be because the picture i found online that looked close to it was malassezia otitis externa in dogs please help me





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    My son had an extra little toe. We had to wait until he was a year old before having it removed, this is because a babies bones are not fully formed until around a year old. We had our sons toe removed at Great Ormond street hospital- fantastic place!!! Doctors were a real credit to that hospital!

    If your baby is 10 months old now go asap to once of the helmet clinics and have a free assessment. In some of them there are surgeons seeing babies who operate in hospitals other days of the week so they really know what's going on in the head. Later there won't be a chance to correct the head shape with the helmet! This is your window of opportunity now. After 6 months of age the bones get firm and the shape will not change according to studies in this area.

    Hi I'm a 16 year old female and last may I got diagnosed with type 1 diabetes for about 2 weeks I felt really Ill I must of went to the Toliete 5 times a night and just wanted to drink water all the time my mouth was so dry and that's when I began to get worried , all I could eat was watermelon as it was moist and I had no energy at all my weight dropped from 7 stone to 5.4 stone and I could see my hip bones :( thank god the doctors treated me as soon as they found out I was upset for a few days and even to this day I sill Carnt believe I have it am going through my exams now and my blood sugar was great but now going up and down its important to go to doctors if u get any symptoms :)





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    My daughter was breech so had a routine scan for DDH at our local hospital she was 6 weeks old! they fitted her with a Pavlik Harness at 8weeks old, after 3 weeks the consultant took it off as he said it won't work, so we had to go to southampton general for an open reduction operation, she had this done at 9months. She had to have week of traction which was horrendous! then had the op followed by 3 months in various plasters, we are now on 6 month check ups with an xray every time, waiting for her bones to develope and then a possible ostyotomy!!! this is all with early detection, lord knows how it would of been if she was a late diagnosis! My little girl is a fighter and takes it all in her stride, I wouldn't say DDh is embarressing but it is good to get more awareness about the struggles families have when their child is being treated, thank goodness for the STEPS charity as we would be clueless about treatments and what to expect.





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    I had 2 curves, the top one was around 35 and the bottom one was around 30. I hated my back brace! It was really awful and ugly (although it got me out of PE!) I couldn't wait to be out of the brace. After the op, it takes a little while to adjust to not being able to move as much as you used to, and it feels so wierd to walk for a while because suddenly the muscles and bones are in the correct places so you almost have to learn to do some movements again! Other than that it was ok, and after about 6 months to a year I started doing gentle yoga classes which helped me SO much and I have almost normal flexibility now. Everyday wise, I find I'm not restricted much, I can't really go long distances in certain cars which have big lumbar support as I can't curve my back around the lumbar support! I've had to buy a Corsa rather than a KA as the seats are flat! And if I'm lying on my back I can't get up! My boyfriend says I'm like a turtle! I have to roll over on my side to get up. I can touch my toes standing up though, but not sitting down, and I can't do sit ups! But I'd trade all of those abilities any day for my lovely new back. Hope that helps :-) xxx

    Whilst i agree that clubfoot isn't an embarassing condition,isn't the point of this show to demonstrate that it is members of the public that are embarassed by other people's illnesses not necessarily the patients themselves? Any way I think any publicity which raises awareness on conditions such as clubfoot to be positive...my only issue is that not every case is treated as easily as the one shown..My son is nearly 10 and to date has had 11 operations on his clubfeet ...his treatment included serial casting at birth for 7 months, achilles and tendon releases, dennis brown bars and boots and 2 attempts at illizarov frames. He still has insoles and walks with a tilted stance and they may want to fuse the bones in his feet at about 16, He is often in pain especially in colder weather and his legs and feet are stiff with little movement. That said he is member of a local drama group and plays for the local junior criket club x





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    Hi Helene, my son is now 16, born with bi-lateral talipes, Jack started with plaster casts at days old, changed weekly until he was 10 months, when he went in for his first surgery (Tenotomy). Jack has worn 'special' shoes all of his life until the past couple of years. 18 months ago he had his second fusion operation (after a large lump of bone had been removed!!). He is still wearing insoles, (went to Orthotist this am!).He is an amazing swimmer and wonderful person; his walk is much better since his last operation. My major disappointment is when we asked his surgeon about Ponsetti when Jack was still young the surgeon dismissed this suggestion as if we were stupid, said it hadn't been proven.... Please remain positive, Jack has been able to do 10 Tors, Duke of Edinburgh and is active in Army Cadets. This is definitely not an embarrassing issue, and needs to be treated with sensitivity and respect

    Watching the show tonight I felt it did not portray the true nightmare some of us are going through, the little boy was diagnosed late at 10 months, but the operation was made to look quick and easy and he's now completely fixed at 16 months. My daughter was diagnosed at 16 months, had 3.5 weeks of traction and she has had 2 failed closed reductions and 1 failed open reduction, the procedure shown tonight, on both hips, she was in theatre for 7 hours. This year at the age of 4, she needs Pelvic and Femoral Osteotomies, cutting bone from the top of her pelvis, both sides, grafting it onto the sockets, cutting both thigh bones and reshaping them, then it all being held in place with metalwork. Our daughter is registered disabled, her hips dislocate regularly which leaves her in pain and she needs to use a wheelchair as she has poor mobility. She will most likely need surgeries on her hips throughout her life. The little boy on the show was very lucky, there are many children in similar situations to our daughter and some adults I know through the charity STEPS that are still going through treatment for their late diagnosed DDH. It's a shame this was not highlighted on the show.





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    My son was diagnosed with bilateral (both hips) hip dysplasia at 1 day old and 31 years on, he is still having treatment as it was never successfully treated. I also felt that it was a shame that it was not pointed out that if both hips are affected the legs will not be different in appearance. I was also found to have bilateral hip dysplasia at 40 years old. I had my left hip replaced in 2005 and my right one in 2006....brilliant!!!

    would also like to add, my daughter was in casts for 11 consecutive months, so with the 3 and half weeks of traction prior to that, she was immobilised and we couldn't bath her for a year!

    My 5 year old son developed brachycephaly within 3 weeks of birth and I could see it getting progressively worse. As a member of a pregnancy/prenting message board I was aware of how it's treated in the US so asked to be referred to the hospital. By this time, looking at charts/photos my son was somewhere between moderate/severe brachycephaly. I too was fobbed off with "It'll right itself in time" and "His hair will cover it." As a nursery nurse I've seen several 3 to 5 year olds with "flat heads" so I knew that wasn't the case. Private treatment was only available in London at that time and I was unable to fund this and travel regularly from Scotland. A friend recommended the "Noggin Nest" which I started using with immediate effects. Within a week the back of his head had begun to round out and in time corrected it completely. I must add that I started using this at around 3m, I doubt it would have helped if he was older and the bones had begun to fuse more. There is also a specialist mattress avilable, known as Sleep Curve which aims to prevent plagiocephaly and to correct in early stages. I hope this helps raise awareness of plagiocephaly and that if tackled early it can be easily treated.





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    I have to say i was dissappointed with that, late diagnosis, 5 months later, aftr an operation that was made to look quick and easy, he's all fixed. That is NOT a true reflection of this condition. My daughter was late diagnosed at 16 months in January 2008, she has had repeated surgeries that have all failed, for the open reduction (the op shown here) she was 7 hours in theatre as hers affects both hips, she needs more major reconstructive surgery, cutting and reshaping her pelvis and thigh bones, metal fixing plates, she needs a wheelchair, her hips dislocate all the time, she will face a lifetime of problems.... the op looked easy and quick, it just didn't do us justice! My daughter is not the only late diagnosed facing years of surgery! The STEPS Charity website has loads of families going through this with their little ones and even has adults who were late diagnosed, still having surgery on their hips. Early diagnosis and more awareness is so important, it's a shame the show didn't highlight this or mention the STEPS charity who have helped us all so much. If I hadn't had the experiance with my daughter, I would have watched that tonight and thought, well thats easily fixed... not a true reflection at all.





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    Just want to add as well, my daughter has 3 and a half weeks in traction, followed by 11 months in casts! She was completely immobilised for a whole year and she's still not "fixed".

    Hi Julie.. ** Try making an appointment with a physiotherapist who specialises with children. The physio we're seeing has treated quite a few idiopathic toe walkers. My son is now undertaking 2nd stage of treatment. FIRST STAGE = series of castings over 6 weeks - plastered casts on both feet to his knees - they stretched his feet a little / held in place and put casts on... left cast one week.. took off then a new one applied. Feet get stretched a bit more for each weekly NEW cast.. The improvement was incredible and I certainly didn't expect him to be able to stand with flat feet with the severity his toe walking was at.. Now he wears resin splints every day to walk as his muscles are in recovery and too weak to walk without. He's had MRI on brain to determine whether there was a signal causing him to toe walk and results came up clear. He as an MRI appointment for his full spine in two days time. There's still lots of physio to do before determining whether he will still need surgery but the improvement so far is astonishing.. ((( PHYSIOTHERAPISTS AND PODIATRISTS are your best bet ))) they are aware of the severity of toe walking. Hoping sharing the steps we took will help steer you in direction of who to turn to next. It IS urgent to get treatment early as possible whilst bones are still growing. Doctors should be aware of how sever it is to get treatment early as I've been told if the condition doesn't correct by the time the child is 5 it will not without help. Wishing you good luck xo HUGS

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