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    hi, i'm 14 and i got told i had scoliosis when i was 13, i was suffering really bad back ache after been pushed into a wall..since then i've had to restrict my life by not doing horse riding and doing most things i love! i'm in the proses of been monitored every 6 months, and i'd just like to ask whats it like growing up with scoliosis and does it affect you and how you've got through? thanks! :)





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    I also have scoliosis. My physiotherapist has advised me to stay away from high impact sports as these are very bad for your back so all the sports you are mentionning are probably not the best for your back. Activities that improve flexibility (yoga, pilates) and muscular tone (gym, swimming) are very good for scoliosis sufferers. Hope this helps.

    Kate, I'm so sorry you feel too embarrassed to mention this to a GP. I'm in my late 30's with Scoliosis that was diagnosed when i was around 13. I would urge you to seek some medical advice to help you cope with other pains and issues concerned with your problem. My scoliosis is due to an underlying condition and an operation wasnt thought to be the best option for me at the time, however times and opinions change. Good luck - Jayne

    You have to be extremely careful in the first 12mths or so following a scoliosis operation whilst the metalwork and bone graft start to 'fuse'. However, once the fusion has solidified properly you can gradually return to a normal life and everyday activities, then over time increase these to whatever activity you are interested in. I had a metal rod inserted and spinal fusion as corrective treatment for scoliosis at 17 (I'm now 39!), but 2yrs after my surgery I was going to theme parks, skiing, climbing, windsurfing, to name just afew. Yes, if an accident did happen, like a car crash for example, we would be worse off than most people and take longer to 'rebuild' again, but...that's life and I don't let it stop me!

    It's never too late Kate! Surgery is possible whatever your age. I had my original spinal fusion operation when I was 17. The metalwork was then removed when I was 35, and at 39 I had another lengthy operation performed with further metalwork and an extension to my existing spinal fusion. Yes, surgery is not a nice thing to go through but I wouldn't hesitate to do it all again! Please go see your doctor and he will refer you to a specialist - I've found it quite upsetting to read that it is embarrassment stopping you from seeking treatment and the chance to be pain free and maybe with corrective surgery even expose more of your body!!! Kids can be cruel and the effects stay with you for a long time. The shape of your figure is not ugly and it is not your fault that it has turned out this way, believe me, your doctor will see people with much more embarrassing ailments and illnesses. I know it can feel like you are the only person on the planet that looks abnormal and feels like this - I've been there and it can certainly knock your confidence - but you're not on your own. Scoliosis is a recognised medical condition and although I've not needed to use them, I believe that there are many forums and support groups on the internet, try typing 'scoliosis' into a search engine. I wish I could help you more, please go to your doctors and start to turn your life around! Jane x

    I have bean told my son has scoliosis he is onlay 9 his curve was 32.11* and that was all most 4 weeks ago the doctor says that it is bad for his age he is geting a back brace but thay says that he will probably still nead the op i am so woryed can you give some advice please thanks. From michelle





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    I was diagnosed with scoliosis at 14 and had the metal rods fused to my back to straighten it. I am now 22 and have no problems whatsoever but what I am curious about is what activities I can and can't do. I used to be really active but have basically stopped everything after my operation. Is there any activities that I should really avoid or can I do basically everything as long as I am careful? e.g. going on rollercoasters, horseriding, zorbing, skiing, snowboarding, iceskating, skydiving etc (I do like being active!!)





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    You have to be extremely careful in the first 12mths or so following a scoliosis operation whilst the metalwork and bone graft start to 'fuse'. However, once the fusion has solidified properly you can gradually return to a normal life and everyday activities, then over time increase these to whatever activity you are interested in. I had a metal rod inserted and spinal fusion as corrective treatment for scoliosis at 17 (I'm now 39!), but 2yrs after my surgery I was going to theme parks, skiing, climbing, windsurfing, to name just afew. Yes, if an accident did happen, like a car crash for example, we would be worse off than most people and take longer to 'rebuild' again, but...that's life and I don't let it stop me!

    I also have scoliosis. My physiotherapist has advised me to stay away from high impact sports as these are very bad for your back so all the sports you are mentionning are probably not the best for your back. Activities that improve flexibility (yoga, pilates) and muscular tone (gym, swimming) are very good for scoliosis sufferers. Hope this helps.

    I was told i couldnt have kids unless i had fusion as i found my scoliosis too late - 24 years on since fusion i have two amazing kids - yeh my back hurts still but live a better life than if i dudnt have fusion - my only regret is that one of my daughters has it now as well - so from a mum's point of view wear your brace!!!! The pain of watching your children suffer is way worse than any pain i went through myself x

    I'm a 26 year old female with scoliosis which I have left untreated and undiagnosed all my life due to the embarrassment and anxiety of having to deal with it as a teenager. Since entering my twenties I experience a lot of neck, shoulder, back and leg pain. One side of my ribs protrude and the curve is significant and noticeable. I still cant bring myself to show my doctor my back and ask for help. Is it too late for me do anything about this, is surgery only an option for teenagers? any comments greatly appreciated. :)





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    Kate, I'm so sorry you feel too embarrassed to mention this to a GP. I'm in my late 30's with Scoliosis that was diagnosed when i was around 13. I would urge you to seek some medical advice to help you cope with other pains and issues concerned with your problem. My scoliosis is due to an underlying condition and an operation wasnt thought to be the best option for me at the time, however times and opinions change. Good luck - Jayne

    It's never too late Kate! Surgery is possible whatever your age. I had my original spinal fusion operation when I was 17. The metalwork was then removed when I was 35, and at 39 I had another lengthy operation performed with further metalwork and an extension to my existing spinal fusion. Yes, surgery is not a nice thing to go through but I wouldn't hesitate to do it all again! Please go see your doctor and he will refer you to a specialist - I've found it quite upsetting to read that it is embarrassment stopping you from seeking treatment and the chance to be pain free and maybe with corrective surgery even expose more of your body!!! Kids can be cruel and the effects stay with you for a long time. The shape of your figure is not ugly and it is not your fault that it has turned out this way, believe me, your doctor will see people with much more embarrassing ailments and illnesses. I know it can feel like you are the only person on the planet that looks abnormal and feels like this - I've been there and it can certainly knock your confidence - but you're not on your own. Scoliosis is a recognised medical condition and although I've not needed to use them, I believe that there are many forums and support groups on the internet, try typing 'scoliosis' into a search engine. I wish I could help you more, please go to your doctors and start to turn your life around! Jane x

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    I am 16 years old and In october 2009 i had the Scoliosis operation. I wasnt in pain at all before and wasnt awaer i had it until i was 14/15. I am wanting to watch the video of what they did as i would like to know but my family have been telling me to wait a bit long as it has only been about 7 months. i was wounding if you could send me the video so that i could watch it in my own time or maybe in a years time as i dont think i will get the oppertunity again and i would want to miss it but i also dont think im ready to see it many thanx natasha





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    Dear EB, Regarding Jade's Scoliosis segment, I am a little concerned that such emphasis was put on Jade's operation being "life saving" which in Jade's particular situation may well have been but it is not the "norm", I almost missed the fact that the treating Consultant Mr Harding stated that the type of scoliosis Jade had was Neuromuscular which could indeed have impact on her lung function in addition to walking ability as emphasised in the film. I as someone who is regularly in contact with the families of children with scoliosis was horrified at the blatant scaremongering of this section, many families and children with Scoliosis if not well informed about their condition could be sent into panic that they/their child could if not treated immediately be in need of a stairlift and wheelchair! Whilst not wishing to play down Jade's condition, treatment and recovery I would urge Channel 4 and Embarrassing Bodies to be more careful with the portayal of such a young lady who has neuromuscular scoliosis which has in your show been simply portrayed as "Scoliosis". I would be interested to know whether the Scoliosis Association of the UK were indeed shown the final cut of this section which to my opinion was very misleading and leaves me worried for the families of children with scoliosis awaiting consultations/treatment viewing this.





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    My name is Rachel and i am 13 and i also have scoliosis but mine is not so bad. i have to wear a back brace until i'm 16. I have medical problems connected to it and my legs are very thin because of my scoliosis.





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    I have congenital scoliosis and I was diagnosed at the age of 12. I think my curve is pretty severe in comparison to normal scoliosis, but my doctor is reluctant to offer my the operation. I can't find much information about congenital scoliosis because it's relatively rare. I do get lower back pain (and I can't touch my toes). My doctor said that having the operation would limit my movement, but i don't see the problem because I'm not very active anyway. It just seems as if he doesn't want to operate, which is frustrating for me because I want to have the operation. I'm 14 now and my curve hasn't changed and I'm probably not going to grow any taller, so they think it might not get any worse. I'm still worried because of all the stories I've read about adult scoliosis. I saw the embarrassing bodies episode and her operation went very well. I've never read any stories where people regret the operation. So what I want to know, I guess, is why won't my doctor operate?





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    My little sister suffers with scoliosis and she has recently joined SAUK (Scoliosis Association uk) and has found it very useful. They give you e-mail addresses of people in the same area as you who also have the same condition. Hope this helps you. Good luck! x

    My name is Tracey (Jades mum)and i would like to point out Jade was born with Muscular Dystrophy which E.B was told when we were contacted to do the show . We did say it in our interview but it wasn't shown. Jades lung capacity was 41%. this is to do with her MD but because of her scoliosis it was putting more pressure on her lungs.Jade also has no lumber curve and narrow chest cavity.Jade had an electric wheelchair and stair lift b4 any signs of scoliosis. The whole point of the program was to show the operation and show how fast recovery was.Jade had her op on a monday , Sat up on tuesday, walked on thursday and we went home on sunday. Jade stopped taking any pain relief 10 days after her op. Yes 10 days couldnt beleive it our selves.Compared to other scoliosis sufferers Jades curve was not as bad as others. She had been monitored over the last 2 years and shes never worn a brace.Everyone is individual and has different complications.





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    what was jades curve?

    My comments are not really based on Jades story but more from the comment above from Samantha. My daughter is 12 and has Scoliosis, I enjoy watching the programmes that give information regarding surgery etc. Although my daughter has had two curves corrected throught posterior spinal fusion she still needs to wear a spinal brace to aid a third uncorrected curve from worsening as she matures, and may need further surgery. What I dont like from these kinds of stories is how they are sensationalised. Most scoliosis suffers have other associated problems, hence the need for surgery. I agree with teh comment above, using terms like "life threating" and "paralysis" etc makes good viewing and reading in the case of magazine articles but the reality is much more of a worry. Each scoliosis sufferers condition will be unique to them but will have many similarities to the next sufferer and I think its unfair to tell one sufferers story without pointing out that these associated complaints, possible assocaited conditions and worries are pretty much the same for all Scoliosis sufferers and should not be dramatised as much. This is a serious condition and I would never question that, but having been through a 9 hour operation, 3 days in intensive care, 4 blood transusions and 13 days in hopsital with my daughter I just get annoyed as we made no fuss and just got on with it, the reality is these surgeries are being carried out all over the country probably most days of the week, our child, brother or sister is not the only one to have the condition. Newpaper articles and magazines are the worst for it. Anyway mump over. Louise





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    I am 16 and i had the operation in febuary of 2009. I was diagnosed idopathic scoliosis and it occured in later teenager years, Unlike how channel four stated that it is only genetic. I would like to say that i did not have any breathing difficulties as i was still able to do everyday activites. I would like to know whether the breathing difficulties were based souly upon the scoliosis that Jade suffered or if there was a different problem as i had a 65 degree curve and a large twist. Fortunatly my operation went smoothly and i have just past my year aniversary and everything is fine with an subtle thin scar down my back. Thank you to my doctor. And i am willing to talk to people that are preparing for an operation.





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    My name is nicole, I had a 4 hour operation when I was 4 to have metal rods attached to my spine. Since then I have had another 13 ajustments to the rods.( I am now 13) I had the operations every 6 months. Before I had the operation at 4 I had many braces including full body braces( wierd). I am very glad that I have had all of my operations because if I would have not had them unfortunally I would have died. I am also very greatfull to my surgeons and any other people that helped me along as It has dramatically changed my life( in a good way)! My ribs got crushed because they did not recognise the scoliosis from birth but I am hopefully having that repaired with my scar being made thinner when my operations have stopped. I would like to say I hope anyone else with scoliosis has good luck and how especially brave we all are especially the teenagers and children!





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    I had scoliosis last year and I had my operation last may and I'm doing great





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    i have scoliosis with an over 60 degree curve. i've been waitlin around a year for the surgery and i wish the time woulf come already!! im 13





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    yes i have the same thing. so just touch your toes and ask someone to look at your spine and if it slightly curved then yes you have scoliosis and if it is straight then you would have to see your doctor...

    I am a 15 year old girl from bristol and i dont have Scoliosis, i have lordosis and at the moment there is a 30 degree curve and soon i will have to have an operation i am really scared.





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    Hi, i also have Lordosis, but im 21 and male, is your Lordosis causing you any pain? As your body is still growing; i would have though your Doctor would have offered you a back support belt. Did you doctor say an operation is the only option?

    at the moment i do get a bit of pain but it used to be worse...i have been told about some sort of injection that i can have every 6 months, but im scared of needles. i know someone that has had the operaation already and he thinks its the best thing he could have done thats reasurred me a bit :)yeah my doctor said i would have to have in the next few years or maybe sooner. they haven't offered me anything because they knew it would happen because i have muscular dystrophy, i haven't seen the doctor for a while but when i go next there going to talk about it more...my doctor is the same as the one that was on embarressing bodies with the other young girl :)

    i whatch jades story and not long after my dad relsied i had a bump in my back so i was sent to the doctora and they say i have a chance its scoliosis from ruby xXx





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    Heyya my name is Sammi and 13 years old had surgery over 10 weeks ago i am doing find if you want to ask any questions go a head, If you have facebook search for Scoliosis Association(UK)





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    I am 16 and I have just discovered that I have Scoliosis. The doctor is referring me to a specialist. One of my hips is more 'curved' than the other, and I sometimes get a few pains in my curvier hip. I feel quite upset about it and I really need reassuring. What can I do to help make it better?





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    Hi yer. Since the age of 6 months old I was diognosed with scoliosis. I was in Body Plaster's and Braces up to the age of 14. I was one of the lucky one's that didn't need an op like Jade to have a rod attached to my spine. I'm now 35 and I'm pretty well and with no back pain.





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    My daughter kayleigh aged 13 has also got scoliosis and awaiting her opperation she has a 72 degree curve.Before i watched the programme i was very scared about it but since watching it it doesnt seem to be as bad as i first thought it has been a great help.





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    I have a rare type of scoliosis but I have 3 different curves and all of witch are agonisingly painful on a day to day basis, I have been braced 7 times and they have made me slightly worse than what I previously was I have not undergone any surgery yet but I want to

    It's weird that an all of the articles about scoliosis it says that it doesn't cause pain but then almost every person with it (including myself) does seem to suffer pain with it.





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    hi i am 38 and i got scoliosis had it seen i was 10 never had the op but i wish i did, been preg 3x i found it hard my hips was in a lot of pain.the back pain i get its like pins and needles.is their anything i do to help it now i am older?





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