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    Epilepsy

    Epilepsy is a long-term condition which causes people to have what are known as fits, attacks, convulsions, or seizures. Read more →

    My son just turned 4 we have been under the hospital for about a year now and hes had eeg's and mri scans and still found no brain problems but he has been diagnosed with focal epilepsy due t the electricity being produced further in the brain, When he has a seizure his eyes roll leg and arm stiffen and he's a bit twitchy sometimes he can do 10 in a day then nothing for a few weeks. He is now taking a anti seizure drug called Carbamazephine and they are at bay so go back and pester your gp for cosultant referal! My son is also very fit and healthy in every other way. Good luck x

    hi for 7 months now my daughter has been having a seizure once every month, she is still being investigated for epilepsy but i am a concerned mother who only wants to know whats going on, thing is with my daughter is that each seizure she has had is different from the one she has had before, she used to have them in her sleep for a few minutes, she had a major one that lasted 20 mins and was given medicine to stop the seizure, shes had ones where just her leg shakes, ones where she knows its coming and can talk through it.. it will happen once a month and now on that day she will have more to come, shes had 3 eeg's and is not getting any results :( can anyone give any advice as i have been trying to look up this condition on my own as doctors say my daughter may just be a mystery (which does not help me 1 bit) many thanks a concerned mother





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    i was diagnoesd with epilepsy when i was aged 6.I did nt understand it at first but i had my first tonic clonic seizure when i was 12. But this year and last year have been diffcult i have had 2 to 3 years and i have been in hospital plus my tablets have nt been working well. i am going through depression and bad anixety





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    my 3 year old son has severe epilepsy and has all the seizures that bailey has, he has been diagnosed with lennox gastaut syndrome epilepsy and so far has had no seizure control with any medications, he can also have 100's of seizures a day. his are caused by a condition called tuberous sclerosis complex which means he has tumours on his brain and brain damage meaning he's also severely disabled. this video really touched my heart and i always find it helps me feel less alone with what life is like.





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    My son was diagnosed with epilepsy 18 months ago at age 2½ years. His seizures were resistant to any kind of medication and some medication actually increased the number of seizures especially the drop seizures. He has been on the ketogenic diet for 15 months and has had periods of 3-4 weeks of being seizure free or having between just 2-8 drops a day. He is only on the ketogenic diet and does not take any medication at all. The Matthews Friends website (http://www.matthewsfriends.org)is dedicated entirely to the ketogenic diet and is packed full of information and help. My son is now living a normal life just like any other 4 year old, thanks to the ketogenic diet and his 'magic' food.





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    Hi I am a mum of my wonderful son who has a rare epilepsy syndrome called 'Dravet Syndrome'. he will be 7 soon and had very prolonged seizures from 4 months old, develped normally till the age of 3 then regressed loosing all his speech, understanding and fine & gross motor skills, although 1 year later he did regain his gross motor skills but nothing else. Seizure still hard to control used most available drugs, keto diet and currenlty using a VNS implant. I know that my sons epilepsy type is rare but do know must epilepsy's are easy to control on just one medication. Good Luck to all having to experience this condition





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    Hello Natalie Thank you kindly for your caring comments it nice to hear that you are confident with your Epilepsy the one thing that we hope for Bailey is that he can be happy and have a life in the future. Bailey has Lennox Gastaut Syndrome of Epilepsy a hard syndrome to control with drugs, so unfortunately it will be hard for Bailey as there is no medical findings why Bailey has Epilepsy, although at the moment he is having a good time since having a Vagal Nerve Stimulator inserted in his chest it has reduced the number of small seizures and the recovery from the Tonic Clonic seizure is quick, we just hope it stays or improves this way. Thank you again for leaving a positive comment it made us smile to think that Bailey will be happy even if he has to live with Epilepsy. Kind Regards Rachel, Craig, Bailey & Ross

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