Video

Six month old Bradley is suffering from plagiocephaly, an asymmetrical head, and there are several causes; the soft bones in his head have been pushed out of shape; a genetic fault; or sleeping in the same position. Dr Christian sends Bradley and his mum Hayley to see an orthotist who will fit Bradley with a helmet, to be worn for six months, that will mould those soft bones into the right shape. After four months in the helmet, Bradley comes to visit Dr Christian, there is already a remarkable improvement in the symmetry of Bradley’s head.

The EB team would like to thank:
Mr Stephen Mottram, Clinical Specialist Orthotist

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my son had plagiocephaly when he was small, which at the time was one of the worst cases the orthopic drs had seen. my son was unable to move his head and was looking to the left most of the time which made the condition worse. We had 2 helmets for him and i can honestly say they helped him a great deal, you cant tell anymore that he did have a problem. im so glad he got the help as now at the age of 6 he has to wear glasses and without the help of the helmets he wouldnt of been able to wear them because of the shape his head was in. my younger son also had signs of the condition but being aware of what happened with my eldest we managed the condition our selves, by not putting pressure on his head, lots of tummy time and placing him on his side during the day to sleep. his head is perfect now.





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we have just found out that our grandson has flat head syndrom and it could cause learning difficulties is this true,





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You could do some fund raising to get the funds for a helmet. People do it for cancer or serious ill children. I don't think a Helmet Fund should be any different. The NHS say that as yet there is 'insufficient evidence that the helmets shape better or more than re-positioning'. Therefore they do not budget for them. If you think your child will benifit from the treatment don't give up! Bake buns, shave your heads, wash cars, just fund raise and get your friends and families involved. Talk to Ossur see what they can offer on a payment scheme. Just don't give up. There is a short window of time in a babies life where this can be done! Turn you axiety into positive fund raising ;).





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I have 3 months old twins. Both have flat head syndrome. I saw my GP but he didn't do anything about it. He only recommended a private clinic. Please help as I'm very worried about my babies health.





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Hi, they are young enough to maybe try a pillow specially designed for flat head syndrome (or plagiocephaly- google it you will find lots of products) and try to keep them off the back of they're heads as much as possible, lots of tummy time! My daughter has plagiocephaly and is 11 months old now, i've fought with my GP/ hospital for treatment as trying everything else has failed, but i am now going private (with a clinic called 'technology in motion'- who offer free advice/ assessment) as it hasnt improved... the nhs just dont recognise it as a serious condition (mentally to the child if not physical)and refuse any treatment.. Dont worry too much (easier said than done i know), i have been told that serious health issues only usually arise if the actual skull bones/plates have fused too early. I hope this helps a little :)

My daughter was born with 'a flat head' or Plagiocephaly. I did not realise the severity until she was 10 months old. There was no funding on the NHS for a correction helmet. They told me "It is not a life threatening condition just cosmetic." I was lucky enough to see a lady on the local news who was petitioning to government for NHS funding to treat children with this problem. With her help i found Ossur, technology in motion. They are based in Leeds. Treatment was started straight away. Although we were only able to use the helmet for a few months before the skull bones fused the results were, are, teriffic (she is now 5) I am so pleased we persued the treatment and would recommend anyone to contact Ossur for a consultation.

My son is now 6 - he had helmet treatment when he was 7 months to treat the same problem (plagiocephaly and brachycephaly). We agonised about it before choosing to treat it, as the health visitor said he might grow out of it, and anyway his hair would cover it. The GP said he might not grow out of it, and it could make it hard to wear glasses or a cycle helmet. The helmet made a huge difference, and when he came out of the helmet at 12 months his head was the right shape and his forehead was symmetrical. At age 6 you'd never guess he had a problem when he was little.





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Have you noticed any developmental problems or heard anyone who has had any? The only thing holding me back from getting the helmet for my son is the fear that it will cause brain damage on a such a sensitive little head.

IM THE SAME MY WEE BOY IS NEARLY TEN MONTHS AND HE HAS A VERY FLAT HEAD BUT HAVENT BEEN GIVING ANY HELP THOSE HELMENTS LOOK GREAT AND WORK!





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My Wife and I have a beautiful daughter, but yes her head is disformed and its driving me crazy. We went through hell and back to get her into this world and now we're faced with this. Everyone including my wife and Doctor say it will get better as she gets older, but I remain to be convinced. It doesn't help that she will hardly spend anytime on her tummy during the day, though she does like her bouncer. My main concern is not only could she get bullied but what if it turns out that it affects brain development. And dont get me started about that we should of been warned about this when she was born. Maybe sueing the NHS might make them wake up and realise. I know one thing, this is making me worried sick.





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I agree. My baby has an uneven shaped head. The health visitors have been so unhelpful. One commented 'Yes his head is rather flat, try repositioning him, it may help but may not. Make an appointment with the GP, though don't think he'll do much about it'. It really annoys me that no one warns you about this condition when your baby is born when the repositioning techniques would be really beneficial. It really upsets me and I worry so much that he is going to be teased about his head when he is older. 2,000 is so much money and I worry how we are ging to scrape this money together if the condition doesn't improve in it's own time.





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Does anyone know if there is any age limits on this treatment? My little girl is 10 months & everyone including the health visitor has told me just to leave it now but if it can be fixed then i would rather sort it.





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My son is wearing the helmet, it realy works!!! They should say how mutch does it cost, 2000 pounds and its not NHS refunded but I thin it should!!!!





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I think it is terrible in this day and age you should be paying to get your childs head the right shape


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