Video

9 year old Emily, has a problem with her poo, and according to kids it can’t get much more embarrassing than that. Emily has to go to the toilet a lot, often suffering from diarrhoea and a swollen and gassy stomach. Dr Pixie examines Emily’s stomach, finding a backlog of poo still in her bowel. She sends Emily to see Paediatric Gastroenterologist, Chris Taylor.

Please visit Patient UK to find out more about Coeliac Disease

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my 11 years old daugther has a big belly and bad breath smell since baby, went to see GP several times about same situation without any success, her permanent teeth are yelow with dark stains plus she has long hair in her nose,since 4 years old she complain about pain in her tommy at least 4 days in a week, sometime severe pain,I took her so many times to the hospital because of severity of the pain,she feel very embarrassed when people point one of her problem, sametime I think about coeliac disease, she never been tested even after asking my GP, could you please tell me if coeliac disease can cause those problems? its a lot of problems for one girl, anyone with similar problem who could help please? I dont know what to do to help her. Thanks





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I have Coeliac Disease, it took 3 decades of constant ill health from birth (gluten in diet from being a very small baby). Symptoms include: balance problems, severe exercise intolerance, catching every virus going around and struggling to get over infections before getting another viral infection, dreadful flu like symptoms, recurring tonsilitis - sore throat, pins and needles sensation (ice burn sensation), breathless, anemia, feeling sick, retching after eating, hungry all the time but yet feel over full and sick after eating, bowel symptoms, hypertension, tachycardia, concentration problems, high temperature all the time, very emaciated, swollen abdomen after eating, sometimes completely swollen with oedema, glomerulonephritis chronic, tremor, dizziness, tinnitus, vertigo, headaches, ATAXIA. But alas 3 decades it took for a diagnosis, I was told I would grow out of it, that I was weak and of poor stock ! and that I was female thus it was attention seeking, mental and all in my head and told not to worry majority of females have mental problems, I was told to go and get a husband and have a baby as that would give me a focus in my life and my symptoms would just go as my focus wasn't on my symptoms !!! Many doctors and decades later minus any self-esteem and confidence I had in myself and the medical world, my medical file was accidently put on the wrong desk, that person's desk was a gastrointestinal registrar researching the connection between anemia and coeliac disease, and at last I got diagnosed. Within 4 weeks I was 100% healthy at last (naturally not eating any processed food), unfortunately I started going down hill again after eating processed foods and I found out the prescription food and other gluten-free items had too much gluten in them for me (I wasn't aware they had any gluten in them, they have since reduced the amount of gluten permitted in the gluten free food), my neurological problems returned and never left, I have moderate ataxia caused by the gluten disorder coeliac disease, the damage has been done, I am strict with my diet, but sadly I am unable to reverse the 3 decades of damage. I am unable to have children because of the health problems. And have osteoporosis also caused by coeliac disease, eyesight problems (blurred vision, double vision, paresthenia, muscle weakness, pyramidal signs, hypertension/tachycardia, low ferritin levels. I urge people to not just think bowel problems for Coeliac Disease or other Gluten Disorders you can have myriad of symptoms mild to severe at anytime, and the sooner you get diagnosed the better, we should not underestimate the damage caused by any Autoimmune disorder including Gluten Disorders. It is quite misleading when the symptoms of Coeliac Disease seem to be bowel only, maybe embarrassing bodies can help by describing that their maybe a myriad of symptoms not related to bowel?





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can anyone help with a worrying problem? my 9yr old son has a problem when eating, every time he starts eating he will come over all uncomfortable, and struggle to eat anymore.will go the toilet and be sick, this happens even after drink, he is undreweight and it is getting him down. he is under the hospital and has a camera down with it only coming back that he has inflammation. he will cough till he is sick with so much saliva. please can anyone help?





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Have you tried cutting gluten out of his diet? this sounds exactly like me...I had the same problems since I was a baby but was misdiagnosed as an eating disorder (they thought the nausea and inability to eat much was all in my head). Finally diagnosed coeliac at age 21 xxx

I have had a blood test which has shown that I have Coeliac disease but I still need an endoscopy to confirm the diagnosis, does anyone know how likely it is that i do have Coeliac disease? I am guessing that i still need to consume Gluten in order for the endosopy to be correct??





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I have Coeliac disease,I was diagnosed about 4 years ago (aged 25) after a long process back and forth to the DR's. I had to demand a blood test as the Dr wasn't aware of Coeliac disease. But things do get better. At first i was very reluctant to eat the replacement products and just went without, but you do get used to them. I promise. At first it seems awlful but things are improving all the time.





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my son has a problem going for a poo he might only go now and again ( more than a month sometimes ), i have taken him to see the gp and all they do is give something to make him go he is now 14





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Yes, this happened to me before. I went to the doctor and he said he could do nothing about it. However, he said to eat mild: soup, bread, and to settle it NO Cheese or Milk. Then, with this steady diet, I got better 4 weeks later. And I repeat, absolutey no cheese or milk. No Macoroni and cheese, no oatmeal made with milk, made with water, and keep sugar in him. Hope this helps!!


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