Video

This extended ‘Living with…’ video follows the Williams family, whose eight year old son Bailey has epilepsy. Bailey can have up to 200 seizures a day. Seizures are an electrical discharge in brain, which may be caused by illness or brain damage, but in many cases the cause is unknown. The Williams family have taken many precautions to control Bailey’s seizures; he wears a helmet to protect his head from drop seizures, is on medication, and his bed is fitted with pressure pads that set off an alarm if Bailey has more than seven seconds of movement. Unfortunately there is no cure, but medication is frequently changed to ensure the best control over the disease.

The EB team would like to thank:
Daisy Garland Charity

Channel 4 is not responsible for the content of external websites

Did you find this useful? YesYes NoNo

54 of 69 people said they found this useful

Comments and Questions

Comments & Questions are now archived, but if you see anything on the site that worries you, please report it and one of our moderators will look at it as soon as possible.
Please note: Unfortunately Channel 4 cannot respond to individual inquiries. If you have any concerns, you can check out NHS Choices, but ultimately it is always best to check with a health professional.

Just watched a repeat of EB in Australia and saw your story, my daughter 21yo was diagnosed with Epilepsy almost 6 years ago and our stories are very similar, we are also looking into VNS, pleased to see previous posts that VNS has helped (even a little)... thanks for doing the show, don't feel quite so 'alone' xx





This will be published. Surnames, nicknames or usernames are not allowed


Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

By posting on this website you are agreeing to abide by our community guidelines

My heart goes to Bailey when I watch the program and hope he can get better. I just found out about adjustment with the 'Longevitology' and it may be able to help. It costs nothing to try. So good luck.





This will be published. Surnames, nicknames or usernames are not allowed


Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

By posting on this website you are agreeing to abide by our community guidelines

I live with a mum who has very mild epilepsy she has tablets for it I have to know the recovery presition and to know my dads mobile of by heart he used to work nights but he stopped just in case she has a fit I don't mind it i look after my mum if she needs it if not then she looks after her self!





This will be published. Surnames, nicknames or usernames are not allowed


Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

By posting on this website you are agreeing to abide by our community guidelines

Hi there, this is a message for Baileys parents.My son has ESES which is a rare form of Epilepsy and he ended up with over a 100 seizures day and 85% of the night also.His doctor put him on Rivotril and from the next day his seizures dramatically reduced and soon after he had none during the day.He also takes other meds but its Rivotril that changed his life.Hope this info helps.Best of luck I know how hard it is.





This will be published. Surnames, nicknames or usernames are not allowed


Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

By posting on this website you are agreeing to abide by our community guidelines

Dear Emer and Hanna We thank you whole heartily for the information you have given us and its so nice to know we are not alone in the way we live our lives and our children. We had filmed soooo much on the day and wanted to bring across so many more points such as how the siblings are affected, the side effects of medications, the numerous hospital visits, the global delays, co ordination, schooling and transport to school, claiming benefits, respite the list is endless as you already know we could do with having and hour on Epilepsy alone, we hope the few minutes of filming gave people and insight a least. Take Care Rachel, Craig, Bailey & Ross.

hi another message for bailey and his parents.my nephew is two and suffes with drop attacks and tonic clonic seizures he also wears a helmet and very often has really bad falls as a result he usually has alot of black eyes.he will never be able to talk as of now and onwards he is brain damaged.i would also like to say his mother is amazing in what she does for him his brother too.bailey you your brother and your parents do amazing.good luck

my 3 year old son has severe epilepsy and has all the seizures that bailey has, he has been diagnosed with lennox gastaut syndrome epilepsy and so far has had no seizure control with any medications, he can also have 100's of seizures a day. his are caused by a condition called tuberous sclerosis complex which means he has tumours on his brain and brain damage meaning he's also severely disabled. this video really touched my heart and i always find it helps me feel less alone with what life is like.





This will be published. Surnames, nicknames or usernames are not allowed


Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

By posting on this website you are agreeing to abide by our community guidelines

We have tried the KGD and it didnt work for Bailey his Glucose and Ketone Levels went dangerously high and we couldnt bring them down safely so we had to stop the diet but he now has a Vagal Nerve Stimulator and the little seizures that he has have reduced and the recovery period on his tonic clonic seizures is good so little improvements fingers crossed but thank you for the advice.





This will be published. Surnames, nicknames or usernames are not allowed


Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

By posting on this website you are agreeing to abide by our community guidelines

Are you aware of a treatment called the Ketogenic Diet? Check it out along with a film called, First do no Harm. The treatment has substantially reduced seizures and in many cases cured the illness. There's a lot of information on the web and a centre that specialises in the treatment, it's worth a look





This will be published. Surnames, nicknames or usernames are not allowed


Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

By posting on this website you are agreeing to abide by our community guidelines

We have two alarms one is a bed alarm from a charity called Muir Maxwell Trust and a Sats machine from Daisy Garland both these charities have websites and all details on how to apply for these alarms are listed on there. I wish you, your family and brother warm wishes take care





This will be published. Surnames, nicknames or usernames are not allowed


Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

By posting on this website you are agreeing to abide by our community guidelines

i have a brother that has got epilepsyand me and my mum would like 2 know if u can tell us were we can get one of the alarms that goes on the bed and how much would it b





This will be published. Surnames, nicknames or usernames are not allowed


Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your answer.


Please don't swear or be rude in your answers, as they will not be added to the site. Please do not use your full name when posting answers. If in doubt, refer to the community guidelines

Questions submitted to the site will be answered by other site users, not by medical professionals, so if you have a medical concern, please book an appointment with your GP.

By posting on this website you are agreeing to abide by our community guidelines

Are you aware of a treatment called the Ketogenic Diet check it out along with a film called, First do no Harm. The treatment has substantially reduced seizures and in many cases cured the illness. There's a lot of information on the web and a centre that specialises in the treatment, it's worth a look


More Information

  1. Attention Deficit Hyperactivity Disorder

    In Conditions - We all know there are times when kids can't sit still or concentrat…

  2. Autism and Asperger Syndrome

    In Conditions - Autism and its milder form Asperger Syndrome, often referred to tog…

  3. Clinic Consultation: Egg Allergy

    In Videos - A clinic consultation looking at the treatment options available fo…

  4. Clinic Consultation: Excess Hair

    In Videos - A clinic consultation with a young lady suffering from a worrying c…

  5. Clinic Consultation: Phobia

    In Videos - A young girl comes to the clinic with an insect phobia that is prev…

  6. Clinic Consultation: Tip Toe Walking

    In Videos - An clinic consultation that looked at child who had problems walkin…

  7. Embarrassing Bodies Kids: Episode 3

    Embarrassing Bodies Kids - In episode 3 the doctors deal with a curved spine, allergic reactio…

  8. Embarrassing Bodies Kids: Episode 4

    Embarrassing Bodies Kids - The doctors see cases of constipation, phobias and excessive dribbl…

  9. Epilepsy

    In Conditions - Epilepsy is a long-term condition which causes people to have what…

  10. In Detail: Curved Spine

    In Videos - An in detail look at the operation to correct a curved spine.

  11. In Detail: Excessive Dribbling

    In Videos - An in detail look at the operation to correct excessive dribbling i…

  12. In Detail: Hip Dysplasia

    In Videos - An in detail look at the operation to correct a displaced hip.

  13. In Detail: Squint

    In Videos - We take an in detail look at the operation to correct a childhood s…

  14. Living with Autism

    In Videos - A look at the realities of life for two severely autistic children…

  15. Should We Be Worried? - Behavioural Problems

    In Videos - From hair-chewing to nose-picking, Dr Christian is back to discuss…


Important Notice

The information provided on this website (including any NHS Choices medical information) is for use as information or for educational purposes only and is not a substitute for professional medical care by a qualified doctor or other qualified healthcare professional. We do not warrant that any information included within this site will meet your health or medical requirements. This Embarrassing Bodies site does not provide any medical or diagnostic services so you should always check with a health professional if you have any concerns about your health.


If you want to embed our videos in your site, read our embedding T&Cs here